All Topics → Forum: "Middle Age" 40-60(ish) Years with Breast Cancer → Topic: 22/24 positive lymph nodes Anyone with similar?
Posted on: Nov 13, 2010 08:19PM
Posts 1 - 30 (31 total)
Nov 14, 2010 09:00AM pitanga wrote:
The writer and cultural critic Susan Sontag had 39 positive nodes when she was dx'd in the mid 1970s. They classed this as Stage IV and believed she would not last for more than a few months.
She lived until 2004, and her death was caused by another cancer, not related to BC. If you google her name you will find a lot about her experience.
She is my muse.
Hang in there,
Nov 14, 2010 09:12AM cat54 wrote:
YES, I had 17 out of 20 positive nodes and was sent for a cat scan and pet scan immediately, I suggest you do the same, mine luckily was clear but they told me it was now stage 3 cancer... but still very treatable with a good outcome.... hope that helps, Cat
Nov 15, 2010 12:47PM dlb823 wrote:
snowman1, check the Stage III forum (Forum Index above). You will find quite a few women there who had multiple node involvement and are doing fine after aggressive treatment. And remember that any published stats you may find pertain to women who were treated 5, 10 or more years ago -- not with today's third generation of chemo drugs and much more targeted therapy. Just be sure that you have a medical team that believes your prognosis and outcome can be positive with proper treatment. And if you have even a shadow of a doubt about that or anything they tell you, absolutely get a second opinion. Deanna
Nov 15, 2010 01:31PM Spoonchek wrote:
I had 29/29 lymph nodes positive for cancer. Scary for sure. The doctors will monitor you (or at least they should) I did have spread a year later to bones (small spots) and femara kept me fine for about 15 months. Now on Aromasin and fingers crossed, it seems to be working. I am however Her2 positive and ER + and PR+. Try not to worry, just be alert and stay on top of your body and your scans.
Dec 14, 2010 12:51AM Ihopeg wrote:
I had 19/20 nodes positive 4 years ago. I also had ILC. But, the ILC wasn't found until path report after single mast. I wish it would have been found sooner so that i could have had a double mast. I had chemo, rads,ooph( so that I would go into menopause) and have been on femara since. i would say that i am doing fine. I have a bone scan every year as well as MRI of the remaining breast. Other than that I see a dr form the team once every 4 months.
Jul 30, 2011 12:35AM jtlysiak wrote:
I was diagnosed August 9, 2000, my surgery was November 30. I had 39+ positive nodes. The cancer had eaten the nodes so badly they couldn't get an accurate count. I did some chemo and some radiation with chemo. It's been 10 years! It's kind-of-like child birth you forget. No cancer - six grandkids. Life is good.
Mar 18, 2012 02:00PM 11BC wrote:
I had 13 out of 31 lymph nodes test positive for cancer (3/3 sentinel node dissection + remainder axillary node dissection). That was in Sept. 2007, followed by ACT chemo and 7 weeks radiation. I've been taking Tamoxifen since July 2008.
I have been and am NED: No Evidence of Disease. Cancer Free.
My best to you all!!
jtlysiak: I particulary am happy to hear your story!
snowman1: How are you doing?
Mar 27, 2012 01:02AM nfranklin wrote:
I had 11 out of 26 positive lymph nodes, and one breast removed, deciding whether or not to do chemo. Will do RAD and take FEMARA for the next 5 years.
Mar 27, 2012 09:30AM , edited Mar 27, 2012 09:33AM by 11BC
nfranklin: It is a very personal decision whether or not to do chemo. A friend just went through it recently. She opted to do chemo. Another of my friends decided after doing chemo and radiation that she didn't want to take Tamoxifen.
I did do chemo and radiation. And now I'm almost four years out and cancer free. I was unsure about what to do at the time so I followed my oncologist's guidance. At my three-year after chemo/radiation check-up, my oncologist seemed surprised I had gone almost four years without a recurrence. My risk of recurrence had been highest in the first two to three years. For me, that confirmed that my decision to do chemo was the right choice.
You could ask your oncologist what your risk of recurrence would be if you did/didn't do chemo. You could also ask her/him if your risk is highest in the first few years, etc. You could ask if there are chemo options (I had a few choice of types/length of chemo). You could ask if there are alternatives to chemo.
Mar 27, 2012 11:42AM nfranklin wrote:
11BC: thank you so much. You advice was very helpful. I am so glad I found this discussion board.
Mar 27, 2012 01:33PM 11BC wrote:
nfranklin: You're welcome. Wishing you well! I also feel fortunate to be part of this discussion board.
dlb823's comment from 11/15/10 is helpful, too. As she says, the level of care/treatment has (and continues) to improve w/ new generations of chemo drugs and targeted therapy.
Sep 8, 2012 08:39PM emerald0320 wrote:
Hello, I had my mastectomy a month ago and had my first dose of chemo,and being 60 I decided to not get reconstruction did anyone else make that decision and are you sorry? I'm single and having second thoughts. For now just want to get through this, going for 2nd chemo tx this week and not looking forward to it.
Sep 25, 2012 11:03AM snowman1 wrote:
Lol, needing some encouragement today so I googled this topic. What came up was my original post on here right after I was diagnosed 2 yrs. ago! So sorry that I never followed through to see all of the encouraging responses but I was a bit overwhelmed. Just figured out how to sign in again. It has been a long journey which like all of you thankfully I'm still on! I'm doing well. In 2010 I had double mastectomy, chemo and radiation. I have had one failed implant due to radiation. Still deciding on whether I will persue further. It has been recommended to me that I have ovaries out because I developed blood clots in my lungs last Thanksgiving as a side effect of tomoxifen. Now on coumadin. This would allow me to go on another med. without that side effect. So I'm still here, less fearful as God has gotten me through so much and given me strength that I didn't know I had!! Every CAT has come back good. My daughter was 10 when I got diagnosed and my two older children in college. Like many of you, my children were a big motivation for me to do well! Today I'm going to persue a local support group, something I should have done long ago! I've had support from church friends and know a couple of BC survivors but I realize my need to connect to other women like myself. Thankful for all of your encouraging replies!! Lean on your faith and stay positive!
Oct 11, 2012 02:06PM CoralWoodward75 wrote:
I was diagnoised with breast cancer in Jan 2009. I was concerned to hear that the cancer had spread to 22/24 lymph nodes. I had a masectomy and chemotherapy and radiotherapy. I am currently taking Tamoxifen....todate no reoccurence of cancer elsewhere in body. It was good to read other people's experience when so many lymph nodes are involved.
Oct 26, 2012 11:19AM , edited Oct 26, 2012 11:22AM by d-marie
I am so glad I came to this site. I have been so afraid. I am waiting on the results of my biopsy - the doctor that did the biopsy told my husband and I that it doesn't look good because of the size (2cm) and the shape of the tumor. In my head I have been planning my funeral and how to take care of things for my family before I die. You have all given me hope. Most of the time I feel my faith has kept me strong. But my mind does wander to the dark side and it gets me feeling anxious and scared - then I feel shame that my faith isn't stronger.
Oct 26, 2012 04:15PM , edited Oct 26, 2012 04:17PM by Racy
d-marie, welcome. I'm sorry you are going through this worry but don't lose hope yet!
If you do get diagnosed with cancer, it could still be early stage at 2 cm. There are many treatments available depending on the exact type, size etc of the bc a person has.
Best advice is to stay on this site. You will find all the information you need to get through bc, and enormous support, friendship and love from everyone here.
Best wishes. Let us know your biopsy result when you find out.
Oct 26, 2012 05:51PM , edited Oct 26, 2012 05:54PM by liefie
d-marie, I was diagnosed with a 1.8 cm tumour in December last year. It was very scary, but turned out to be an early Stage 1 Grade 1 cancer. I also had one positive lymph node with micromets. Today I am back to my healthy self after surgeries, chemo and radiation. I have just been told by my oncologist that my prognosis is excellent. So try not to worry so much. This stage is actually the worst because of the uncertainty of what's going on. Once you know what you are facing, and there is a treatment plan in place, you will feel better. Breast cancer these days are seen more as a chronic disease rather than the killer it was in the past. Best wishes!
Nov 4, 2012 03:49PM Toots wrote:
..........a friend of mine sent me a message 'Fear knocks at the door but let Faith answer it and there won't be anyone there' when I have real down moments I think of this and feel so much stronger............
Apr 23, 2013 06:26PM AryaS wrote:
I just got my pathology back. It's something like 32 out of 47 positive. I am having PET and Cat Scans next week. Still planning to kick this cancer's butt however that is one scary number I got. Glad this thread exists. Please keep posting.