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All TopicsForum: "Middle Age" 40-60(ish) Years with Breast Cancer → Topic: 22/24 positive lymph nodes Anyone with similar?

Topic: 22/24 positive lymph nodes Anyone with similar?

Forum: "Middle Age" 40-60(ish) Years with Breast Cancer — Meet others in this age-range who share similar life issues.

Posted on: Nov 13, 2010 06:19PM

snowman1 wrote:

I just had a double mastectomy and reconstructive surgery for invasive lobular cancer. My surgeon said that I had 22/24 positive lymph nodes. I am very concerned about this high number. Has anyone else had an experience with this many pos.nodes.

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Posts 1 - 30 (31 total)

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Nov 13, 2010 08:35PM peace4friend wrote:

I had 30 of them come back positive.It is a very scary thing to hear, but try not to worry.The lymph nodes are there to clean out your system. They are doing their job. I have been cancer free for 6 years.

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Nov 13, 2010 09:16PM snowman1 wrote:

Thank you so much for your reply, it gives me hope and encouragement!

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Nov 14, 2010 07:00AM pitanga wrote:

The writer and cultural critic Susan Sontag had 39 positive nodes when she was dx'd in the mid 1970s. They classed this as Stage IV and believed she would not last for more than a few months.

She lived until 2004, and her death was caused by another cancer, not related to BC. If you google her name you will find a lot about her experience.

She is my muse.

Hang in there,

Lisa 

Round 1-- 1999, age 39, Stage IIA. Round 2-- 2009, local recurrence and bone mets. Dx 2/5/2009, IDC, <1cm, Stage IV, Grade 2, mets, ER+/PR-, HER2-
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Nov 14, 2010 07:12AM cat54 wrote:

 YES, I had 17 out of 20 positive nodes and was sent for a cat scan and pet scan immediately, I suggest you do the same, mine luckily was clear but they told me it was now stage 3 cancer... but still very treatable with a good outcome.... hope that helps, Cat

Dx 8/18/2010, IDC, 2cm, Stage IIIc, Grade 2, 17/20 nodes, ER+/PR+, HER2+
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Nov 14, 2010 05:57PM , edited Nov 14, 2010 06:00PM by snowman1

This Post was deleted by snowman1.
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Nov 14, 2010 06:04PM , edited Nov 14, 2010 06:05PM by snowman1

This Post was deleted by snowman1.
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Nov 14, 2010 06:10PM snowman1 wrote:

 I hope this post wind up in the right spot this time, new at this! Thank you for the encouraging replies! God Bless you and watch over you!

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Nov 14, 2010 06:13PM Ondagrow wrote:

11 out of 13...then i had a pet scan and they suspected two more...

‘FunNY hOW lIfE sHoWs uP WiTh nO nOTIficATion aNd I mUst aDjust’
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Nov 15, 2010 10:47AM dlb823 wrote:

snowman1, check the Stage III forum (Forum Index above).  You will find quite a few women there who had multiple node involvement and are doing fine after aggressive treatment.   And remember that any published stats you may find pertain to women who were treated 5, 10 or more years ago -- not with today's third generation of chemo drugs and much more targeted therapy.  Just be sure that you have a medical team that believes your prognosis and outcome can be positive with proper treatment.  And if you have even a shadow of a doubt about that or anything they tell you, absolutely get a second opinion.    Deanna     

"The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIa, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Nov 15, 2010 11:24AM snowman1 wrote:

Good advice, much appreciated!

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Nov 15, 2010 11:31AM Spoonchek wrote:

I had 29/29 lymph nodes positive for cancer. Scary for sure. The doctors will monitor you (or at least they should)  I did have spread a year later to bones (small spots) and femara kept me fine for about 15 months. Now on Aromasin and fingers crossed, it seems to be working. I am however Her2 positive and ER + and PR+. Try not to worry, just be alert and stay on top of your body and your scans.

Mets to bones and skin Dx 5/26/2008, IBC, Stage IIIc, Grade 3, 29/29 nodes, ER+/PR+, HER2+ Dx 6/6/2009, IBC, Stage IV, mets, ER+/PR+, HER2+
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Dec 13, 2010 10:51PM Ihopeg wrote:

I had 19/20 nodes positive 4 years ago. I also had ILC. But, the ILC wasn't found until path report after single mast. I wish it would have been found sooner so that i could have had a double mast. I had chemo, rads,ooph( so that I would go into menopause) and have been on femara since. i would say that i am doing fine. I have a bone scan every year as well as MRI of the remaining breast. Other than that I see a dr form the team once every 4 months.

I Dx 11/10/2006, ILC, 5cm, Stage IIIc, Grade 2, 20/21 nodes, ER+/PR+, HER2-
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Jul 29, 2011 09:35PM jtlysiak wrote:

I was diagnosed August 9, 2000, my surgery was November 30. I had 39+ positive nodes. The cancer had eaten the nodes so badly they couldn't get an accurate count. I did some chemo and some radiation with chemo. It's been 10 years! It's kind-of-like child birth you forget. No cancer - six grandkids. Life is good.

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Mar 18, 2012 11:00AM 11BC wrote:

I had 13 out of 31 lymph nodes test positive for cancer (3/3 sentinel node dissection + remainder axillary node dissection). That was in Sept. 2007, followed by ACT chemo and 7 weeks radiation. I've been taking Tamoxifen since July 2008. 

I have been and am NED: No Evidence of Disease. Cancer Free.

My best to you all!! 

jtlysiak: I particulary am happy to hear your story!

snowman1: How are you doing? 

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Mar 26, 2012 10:02PM nfranklin wrote:

I had 11 out of 26 positive lymph nodes, and one breast removed, deciding whether or not to do chemo. Will do RAD and take FEMARA for the next 5 years.

Taxol 1 X 12 weeks, FAC 1 X every 3 weeks for 4X, Rads 5 days a week for 6 weeks. Dx 9/9/2011, ILC, 5cm, Stage IIIa, 11/26 nodes, ER+/PR-, HER2- Surgery 02/24/2012 Lumpectomy (Right) Surgery 03/19/2012 Mastectomy (Right) Chemotherapy 04/09/2012 Adriamycin, Cytoxan, fluorouracil, Taxol
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Mar 27, 2012 06:30AM , edited Mar 27, 2012 06:33AM by 11BC

nfranklin: It is a very personal decision whether or not to do chemo. A friend just went through it recently. She opted to do chemo. Another of my friends decided after doing chemo and radiation that she didn't want to take Tamoxifen.

I did do chemo and radiation. And now I'm almost four years out and cancer free. I was unsure about what to do at the time so I followed my oncologist's guidance. At my three-year after chemo/radiation check-up, my oncologist seemed surprised I had gone almost four years without a recurrence. My risk of recurrence had been highest in the first two to three years. For me, that confirmed that my decision to do chemo was the right choice. 

You could ask your oncologist what your risk of recurrence would be if you did/didn't do chemo. You could also ask her/him if your risk is highest in the first few years, etc. You could ask if there are chemo options (I had a few choice of types/length of chemo). You could ask if there are alternatives to chemo.

Good luck. 

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Mar 27, 2012 08:42AM nfranklin wrote:

11BC: thank you so much. You advice was very helpful. I am so glad I found this discussion board.

Taxol 1 X 12 weeks, FAC 1 X every 3 weeks for 4X, Rads 5 days a week for 6 weeks. Dx 9/9/2011, ILC, 5cm, Stage IIIa, 11/26 nodes, ER+/PR-, HER2- Surgery 02/24/2012 Lumpectomy (Right) Surgery 03/19/2012 Mastectomy (Right) Chemotherapy 04/09/2012 Adriamycin, Cytoxan, fluorouracil, Taxol
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Mar 27, 2012 10:33AM 11BC wrote:

nfranklin: You're welcome. Wishing you well! I also feel fortunate to be part of this discussion board. 

dlb823's comment from 11/15/10 is helpful, too. As she says, the level of care/treatment has (and continues) to improve w/ new generations of chemo drugs and targeted therapy.

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Sep 8, 2012 05:39PM emerald0320 wrote:

Hello, I had my mastectomy a month ago and had my first dose of chemo,and being 60 I decided to not get reconstruction did anyone else make that decision and are you sorry? I'm single and having second thoughts. For now just want to get through this, going for 2nd chemo tx this week and not looking forward to it.

emerald0320 Chemotherapy 08/28/2012 Adriamycin, Cytoxan, Taxol
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Sep 8, 2012 05:40PM , edited Sep 8, 2012 05:47PM by emerald0320

This Post was deleted by emerald0320.
emerald0320 Chemotherapy 08/28/2012 Adriamycin, Cytoxan, Taxol
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Sep 20, 2012 08:14AM dipti wrote:

This has been a great discussion. There is HOPE for everyone. Many thanks for all the wonderful courageous experiences.

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Sep 25, 2012 08:03AM snowman1 wrote:

Lol, needing some encouragement today so I googled this topic. What came up was my original post on here right after I was diagnosed 2 yrs. ago! So sorry that I never followed through to see all of the encouraging responses but I was a bit overwhelmed. Just figured out how to sign in again. It has been a long journey which like all of you thankfully I'm still on! I'm doing well. In 2010 I had double mastectomy, chemo and radiation. I have had one failed implant due to radiation. Still deciding on whether I will persue further. It has been recommended to me that I have ovaries out because I developed blood clots in my lungs last Thanksgiving as a side effect of tomoxifen. Now on coumadin. This would allow me to go on another med. without that side effect. So I'm still here, less fearful as God has gotten me through so much and given me strength that I didn't know I had!! Every CAT has come back good. My daughter was 10 when I got diagnosed and my two older children in college. Like many of you, my children were a big motivation for me to do well! Today I'm going to persue a local support group, something I should have done long ago! I've had support from church friends and know a couple of BC survivors but I realize my need to connect to other women like myself. Thankful for all of your encouraging replies!! Lean on your faith and stay positive!

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Oct 11, 2012 11:06AM CoralWoodward75 wrote:

I was diagnoised with breast cancer in Jan 2009.  I was concerned to hear that the cancer had spread to 22/24 lymph nodes.  I had a masectomy and chemotherapy and radiotherapy.  I am currently taking Tamoxifen....todate no reoccurence of cancer elsewhere in body.  It was good to read other people's experience when so many lymph nodes are involved.

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Oct 26, 2012 08:19AM , edited Oct 26, 2012 08:22AM by d-marie

I am so glad I came to this site. I have been so afraid. I am waiting on the results of my biopsy - the doctor that did the biopsy told my husband and I that it doesn't look good because of the size (2cm) and the shape of the tumor. In my head I have been planning my funeral and how to take care of things for my family before I die. You have all given me hope. Most of the time I feel my faith has kept me strong. But my mind does wander to the dark side and it gets me feeling anxious and scared - then I feel shame that my faith isn't stronger.

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Oct 26, 2012 01:15PM , edited Oct 26, 2012 01:17PM by Racy

d-marie, welcome. I'm sorry you are going through this worry but don't lose hope yet!

If you do get diagnosed with cancer, it could still be early stage at 2 cm. There are many treatments available depending on the exact type, size etc of the bc a person has.

Best advice is to stay on this site. You will find all the information you need to get through bc, and enormous support, friendship and love from everyone here.

Best wishes. Let us know your biopsy result when you find out.

Dx 2010, ILC, 2cm, Stage IIa, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Oct 26, 2012 02:51PM , edited Oct 26, 2012 02:54PM by liefie

d-marie, I was diagnosed with a 1.8 cm tumour in December last year. It was very scary, but turned out to be an early Stage 1 Grade 1 cancer. I also had one positive lymph node with micromets. Today I am back to my healthy self after surgeries, chemo and radiation. I have just been told by my oncologist that my prognosis is excellent. So try not to worry so much. This stage is actually the worst because of the uncertainty of what's going on. Once you know what you are facing, and there is a treatment plan in place, you will feel better. Breast cancer these days are seen more as a chronic disease rather than the killer it was in the past. Best wishes!

When life knocks you down, roll over, and look at the stars. Dx 12/19/2011, IDC, 1cm, Stage Ib, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 02/07/2012 Mastectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left) Chemotherapy 03/07/2012 Cytoxan, Taxotere Radiation Therapy 05/31/2012 External Hormonal Therapy 08/01/2012 Tamoxifen Surgery 05/16/2013 Reconstruction: DIEP flap (Left)
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Nov 4, 2012 01:49PM Toots wrote:

..........a friend of mine sent me a message 'Fear knocks at the door but let Faith answer it and there won't be anyone there' when I have real down moments I think of this and feel so much stronger............

Fear knocks at the door, let Faith answer it- there won't be anyone there Dx 8/11/2012, IDC, 2cm, Grade 3, 20/20 nodes, mets Surgery 08/29/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Chemotherapy 10/07/2012 Ellence (chemical name: epirubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Taxotere (chemical name: docetaxel)
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Feb 25, 2013 04:04AM Lomesh wrote:

My wife also has 21/39 nodes positive. How will be the prognosis?

Dx 2/7/2013, IDC, 2cm, Grade 2, 21/40 nodes, ER+/PR+, HER2-
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Feb 26, 2013 02:04AM Lomesh wrote:

My wife has 21/39 positive nodes.
Feeling stressed . How will be the prognosis?

Dx 2/7/2013, IDC, 2cm, Grade 2, 21/40 nodes, ER+/PR+, HER2-
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Apr 23, 2013 03:26PM AryaS wrote:

I just got my pathology back. It's something like 32 out of 47 positive. I am having PET and Cat Scans next week. Still planning to kick this cancer's butt however that is one scary number I got. Glad this thread exists. Please keep posting.

Dx 4/2/2013, IDC, Stage IIIc, Grade 1, ER+/PR+, HER2- Surgery 04/18/2013 Mastectomy (Both); Reconstruction: Tissue expander placement (Both) Chemotherapy 05/28/2013 Adriamycin, Cytoxan, Taxol Radiation Therapy 10/01/2013 External Hormonal Therapy 11/20/2013 Tamoxifen

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