Topic: 22/24 positive lymph nodes Anyone with similar?

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer — Meet others in this age-range who share similar life issues.

Posted on: Nov 13, 2010 07:19PM

Posted on: Nov 13, 2010 07:19PM

snowman1 wrote:

I just had a double mastectomy and reconstructive surgery for invasive lobular cancer. My surgeon said that I had 22/24 positive lymph nodes. I am very concerned about this high number. Has anyone else had an experience with this many pos.nodes.

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Nov 15, 2010 12:31PM Spoonchek wrote:

I had 29/29 lymph nodes positive for cancer. Scary for sure. The doctors will monitor you (or at least they should)  I did have spread a year later to bones (small spots) and femara kept me fine for about 15 months. Now on Aromasin and fingers crossed, it seems to be working. I am however Her2 positive and ER + and PR+. Try not to worry, just be alert and stay on top of your body and your scans.

Mets to bones and skin Dx 5/26/2008, IBC, Stage IIIC, Grade 3, 29/29 nodes, ER+/PR+, HER2+ Dx 6/6/2009, IBC, Stage IV, mets, ER+/PR+, HER2+
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Dec 13, 2010 11:51PM Ihopeg wrote:

I had 19/20 nodes positive 4 years ago. I also had ILC. But, the ILC wasn't found until path report after single mast. I wish it would have been found sooner so that i could have had a double mast. I had chemo, rads,ooph( so that I would go into menopause) and have been on femara since. i would say that i am doing fine. I have a bone scan every year as well as MRI of the remaining breast. Other than that I see a dr form the team once every 4 months.

I Dx 11/11/2006, ILC, Right, 3cm, Stage IIIC, metastasized to bone, Grade 2, 19/20 nodes, ER+/PR+, HER2- Surgery 11/28/2006 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic ovary removal Chemotherapy 1/6/2007 Chemotherapy 1/9/2007 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/29/2007 Breast, Lymph nodes Hormonal Therapy 8/18/2007 Femara (letrozole) Dx 10/5/2018, ILC, Stage IV, metastasized to brain/bone, 20/21 nodes, ER-/PR-, HER2-
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Jul 29, 2011 11:35PM jtlysiak wrote:

I was diagnosed August 9, 2000, my surgery was November 30. I had 39+ positive nodes. The cancer had eaten the nodes so badly they couldn't get an accurate count. I did some chemo and some radiation with chemo. It's been 10 years! It's kind-of-like child birth you forget. No cancer - six grandkids. Life is good.

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Mar 18, 2012 01:00PM 11BC wrote:

I had 13 out of 31 lymph nodes test positive for cancer (3/3 sentinel node dissection + remainder axillary node dissection). That was in Sept. 2007, followed by ACT chemo and 7 weeks radiation. I've been taking Tamoxifen since July 2008. 

I have been and am NED: No Evidence of Disease. Cancer Free.

My best to you all!! 

jtlysiak: I particulary am happy to hear your story!

snowman1: How are you doing? 

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Mar 27, 2012 12:02AM nfranklin wrote:

I had 11 out of 26 positive lymph nodes, and one breast removed, deciding whether or not to do chemo. Will do RAD and take FEMARA for the next 5 years.

Taxol 1 X 12 weeks, FAC 1 X every 3 weeks for 4X, Rads 5 days a week for 6 weeks. Dx 9/9/2011, ILC, Right, 5cm, Stage IIIA, 11/26 nodes, ER+/PR-, HER2- Surgery 2/24/2012 Lumpectomy: Right Surgery 3/19/2012 Mastectomy: Right Chemotherapy 4/9/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel)
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Mar 27, 2012 08:30AM - edited Mar 27, 2012 08:33AM by 11BC

nfranklin: It is a very personal decision whether or not to do chemo. A friend just went through it recently. She opted to do chemo. Another of my friends decided after doing chemo and radiation that she didn't want to take Tamoxifen.

I did do chemo and radiation. And now I'm almost four years out and cancer free. I was unsure about what to do at the time so I followed my oncologist's guidance. At my three-year after chemo/radiation check-up, my oncologist seemed surprised I had gone almost four years without a recurrence. My risk of recurrence had been highest in the first two to three years. For me, that confirmed that my decision to do chemo was the right choice. 

You could ask your oncologist what your risk of recurrence would be if you did/didn't do chemo. You could also ask her/him if your risk is highest in the first few years, etc. You could ask if there are chemo options (I had a few choice of types/length of chemo). You could ask if there are alternatives to chemo.

Good luck. 

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Mar 27, 2012 10:42AM nfranklin wrote:

11BC: thank you so much. You advice was very helpful. I am so glad I found this discussion board.

Taxol 1 X 12 weeks, FAC 1 X every 3 weeks for 4X, Rads 5 days a week for 6 weeks. Dx 9/9/2011, ILC, Right, 5cm, Stage IIIA, 11/26 nodes, ER+/PR-, HER2- Surgery 2/24/2012 Lumpectomy: Right Surgery 3/19/2012 Mastectomy: Right Chemotherapy 4/9/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxol (paclitaxel)
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Mar 27, 2012 12:33PM 11BC wrote:

nfranklin: You're welcome. Wishing you well! I also feel fortunate to be part of this discussion board. 

dlb823's comment from 11/15/10 is helpful, too. As she says, the level of care/treatment has (and continues) to improve w/ new generations of chemo drugs and targeted therapy.

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Sep 8, 2012 07:39PM emerald0320 wrote:

Hello, I had my mastectomy a month ago and had my first dose of chemo,and being 60 I decided to not get reconstruction did anyone else make that decision and are you sorry? I'm single and having second thoughts. For now just want to get through this, going for 2nd chemo tx this week and not looking forward to it.

emerald0320 Chemotherapy 8/27/2012 AC + T (Taxol)
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Sep 8, 2012 07:40PM - edited Sep 8, 2012 07:47PM by emerald0320

This Post was deleted by emerald0320.
emerald0320 Chemotherapy 8/27/2012 AC + T (Taxol)

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