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Jul 24, 2011 02:38PM
When I was done with treatment, I was done with cancer. I didn't want to live the rest of my life fearful or thinking about cancer. I wanted out! It wasn't denial, it was reclaiming my life. I didn't post or read here for a while, and while I did keep my blog up, I began thinking how I could shut it down and say good-bye to my readers.
Five months out of treatment, I became Stage IV. I recommend that you pay attention to your body, learn what normal pains and abnormal ones are, keep your appointments - but don't DWELL. Dont live on this forum, and don't live in the world of cancer. If you trusted your onc to treat you, trust him or her now that you are done with treatment. Report symptoms but let them decide if it's abnormal.
I disagree with the poster above who said you should push for expensive and unnecessary tests, and to lie about your condition. That is not helpful advice. PET scans don't show cancer until they are a certain size, usually you'll be symptomatic. There are lots of false positives, which will scare you. If you have symptoms, then of course, push for care. Report all unusual things to your onc - if you have a good one, he or she will take your reports into consideration and order the appropriate tests.
But, if you are going alone with a good life, you are symptom-free there is no reason for a PET.
If it comes back, it won't keep itself a secret.
Report symptoms and pay attention - learn to trust your body again. You'll know when something is wrong, but it will take a while. Our bodies are different and they betrayed us once but you will soon know what is normal for you.
Those five months where I didn't have two or three weekly doctors appointments, a needle in my body or chemo SEs were great. Enjoy that time.
The person who said this forum is skewed is right. It's populated by early stagers who haven't let cancer go yet, or stage IV people, like me. If you have a question, come ask it but once you are finished with treatment, it's time to slowly back away and restart your life. I think a lot of people get stuck here in the world of cancer - where we all reinforce each other. I see a tendancy for people to have an ache and search the forum and see that somebody else had that ache and became stage IV and freak out. But, they ignore that 50 other people also had that ache and it was nothing, and the circle continues.
Most people at Stage I and II go on to live to be elderly women. But, they aren't posting here. So, keep vigilent, know what is normal for you, then go relax and enjoy your life.
Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV
8/17/2009, IDC, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR-, HER2+