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Topic: vaginal dryness

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

Meet others in this age-range who share similar life issues.

Posted on: Dec 23, 2011 12:33AM

blessed wrote:

ok, yeah, touchy subject, but I need to know and you guys are the bomb for my embarrasing questions.  I am on aromasin (4th year) and am 52.  It is so painful, without having sex, but very painful during.  Anyone else????  I am using replens and that is all.  Thank you so much!!!!!

8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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Dec 23, 2011 12:39AM JMW wrote:

I am also 52 and having the same problems. I cannot have sex.....way too painful. Do the replens work? I have a dr. app. after Xmas to see if there is anythink I can do about it. But I am curious about the replens as no need for a dr. prescription.

Dx 10/2010, IDC, Left, 1cm, Stage IIA, Grade 2, 3/12 nodes, ER+/PR+, HER2-
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Dec 23, 2011 12:54AM blessed wrote:

I have only tried the 3 samples the doc gave me, but it helps for a bit, maybe if I use it on a regular basis.  I feel so alone in this and my doc says it can sometimes be painful, but it really burns and is very irritated.  I can't believe this is normal and I cant wait to get off this cancer pill to see if it goes away then!  But then again I am afraid to be off the pill, silly huh?

8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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Dec 23, 2011 01:06AM sewingnut wrote:

Do a search on the BCO site for Scream Cream.  It is a vasodilator used to lubricate. Everyone that has tried it has had great success.  It can only be made by a compounding pharmacy though and may not be covered by your insurance company.

Dx 12/2010, IDC, 5cm, Stage IIIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+
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Dec 23, 2011 01:43AM blessed wrote:

thank you!

8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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Dec 23, 2011 02:39AM catbill wrote:

I can tell you that I am a scream cream user and it works better than anything else that I've tried.  I really don't feel any pain during sex any more.  It was put together in a compounding pharmacy for about $50.  No insurance coverage, but my flexible spending account did reimburse me.  I got the prescription from my primary MD, and the formula is the one you can find here at BCO on the scream cream thread.

Some people do use Lidocaine with it.  So far I haven't needed both but I have it in case I need it.

Oncotype 8, no chemo, no rads, bilat mastectomy, on Arimidex Dx 9/29/2010, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Jan 24, 2012 12:47AM janetlp wrote:

I have been looking for help with this for YEARS. The answer is always, that is just the way it is. My husband tries to be understanding but he gets frustrated. I go to the gym take the best care of myself and I can't have sex. I never heard of scream cream. Should I ask my OBGYN or PC.

Help Thanks Janet

Dx 2/2006, ILC, 1cm, Stage I, Grade 2, 0/22 nodes, ER+/PR+, HER2-
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Jan 24, 2012 12:58AM bookgirl wrote:

Count me in. 52 seems to the key # here. My GYNO suggested I ask my Onc about a topical hormone cream but I'm very ER+ and I find I obsess about BC returning all the time anyway so I don't feel comfortable using the Hormone cream. I also find besides intercourse being painful I end up with a UTI. I asked My GYNO about SC but he seemed totally uninterested. Sort of the same way I am about sex! I see my Onc next month and see what his input is on SC. Thanks for posting

Dx 9/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Jan 24, 2012 01:18AM janetlp wrote:

I'll be 51 in March and it;'s been three years painful sex and when I try the next day I get UTI. I tried the hormone cream and stoped. Too scared. I have always been so positive but sometimes I get so PISSED. No boobs, no sex, menopause, hot flashes depression from tamoxifen for five years, and osteoporosis.

 Ok I feel better now...LOL

Dx 2/2006, ILC, 1cm, Stage I, Grade 2, 0/22 nodes, ER+/PR+, HER2-
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Jan 24, 2012 01:22AM - edited Jan 24, 2012 02:24AM by tenaj

I'm 52 also... Read through some threads recently and saw my gyn 1/7 & got a RX for scream cream as per the advice I've read. Just picked it up the other day. Not quite ready to give it a try as I had my exchange on the 17th. I did speak with gyn about dryness , I was using replens with some help, but not enough. She suggested olive oil. In the shower every day, massage your lady parts with olive oil. Well, I have been doing that and things feel much smoother & no pain to the touch. Just thought I'd pass that along. Can't wait to try the SC!

Surgery 1/16/2011 Reconstruction (left); Reconstruction (right) Surgery 6/14/2011 Mastectomy: Left, Right Surgery 6/28/2011 Lymph node removal: Left, Underarm/Axillary Surgery 1/28/2013 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Jan 24, 2012 01:30AM bookgirl wrote:

Ok,Olive Oil...I buy it by the gallon at Costco anyway, worth a try. Please keep us posted on the SC. Thanks for tip.

Dx 9/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Jan 24, 2012 01:53AM LtotheK wrote:

I just posted this:  hyaluronic acid has been studied as a safe alternative for vaginal atrophy.  Talk to your naturopath!

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Mar 31, 2012 06:07PM SMOORE wrote:

First of all ,  thanks to all you ladies who have posted and are talking about this.  I too,  am 50 , and my hubby just thinks I'm being a whiner, or using this as an excuse to get out of having sex... I think not!  I'm going to try the olive oil, and ask my PCP about scream cream on my wellness exam next month.  I'll report back and let you know how this helps!... Thanks again!!Sealed

Dx 11/27/2007, DCIS, 1cm, Stage 0, Grade 3, 0/5 nodes, ER+/PR+
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Apr 1, 2012 04:47PM barsco1963 wrote:

I have read that hyaluronic acid is not safe for cancer patients, especially those with bc. It has been linked to tumor/cancer progression.

It isn't knowing the worst, the worst is not knowing. Dx 5/30/2011, IDC, 4cm, Stage IV, Grade 2, 21/29 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 7/24/2011
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Apr 4, 2012 08:26AM Cyborg wrote:

I will read anything on this topic . I feel like the antihormonals have killed my sex life. Thanks for making this thread.

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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Apr 4, 2012 08:35AM jenlee wrote:

maybe cocout oil?

Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Apr 15, 2012 06:10AM Joanne58 wrote:

Yes--coconut oil has saved me!  It's fairly cheap, all natural and lasts a long time.

"There is beauty all around when there's love at home." --John H. McNaughton Dx 9/7/2010, IDC, Left, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ (FISH) Surgery 9/16/2010 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/28/2010 AC Targeted Therapy 1/21/2011 Herceptin (trastuzumab) Radiation Therapy 3/23/2011 Hormonal Therapy 4/27/2011 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 18, 2012 05:04PM mamabee wrote:

Please tell me more about coconut oil. I've started using Replens and it helps a little but I'm still too dry and I've started to hurt. Do you use the coconut oil every day? Use it as a lubricant too? 

PALB2 mutation Dx 11/2011, ILC, 3cm, Stage IIIB, Grade 2, 2/7 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/22/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/10/2012 Breast, Lymph nodes Hormonal Therapy 8/26/2012
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May 9, 2012 08:18AM - edited May 9, 2012 08:33AM by Cyborg

To mammabee, I use it nearly everyday. I froze some suppositories. Actually didn't freeze them but refrigerated them.

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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May 9, 2012 10:55PM mclark55 wrote:

Boy I sure am glad I found this thread.  Will check into Scream Cream (what a great name!).  My ever-suffering husband will be glad if we can get this fixed, I'm sure!  As will I.  Sex life is nill at the moment!

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
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May 9, 2012 11:04PM lhintz wrote:

I'm not having pain issues, although the dryness is less than pleasurable. I struggle with interest...my hubby and I had a very nice sex life prior to the BC treatments. Now...not so much. I feel like the treatments, menopause and arimidex have basically eliminated my sex drive. No pressure from my husband, but I still feel guilty. Has anyone found a way to increase their desire?

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May 9, 2012 11:06PM - edited Aug 10, 2012 07:30PM by del4

This Post was deleted by del4.
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May 12, 2012 08:43PM mclark55 wrote:

Sunflowers:  Loved the organic cocoa butter idea.  I'll check it out!

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
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May 12, 2012 08:48PM kira1234 wrote:

I've been using the coco butter for a few weeks now, and I will say I am so much more comfortable. I would love to ask for the scream cream, but haven't gotten the nerve up yet, just to embarrassed.

Dx 6/2010, ILC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/8/2010 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel Radiation Therapy 8/3/2010 Hormonal Therapy 10/5/2010 Aromasin (exemestane) Dx 2/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2- Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Hormonal Therapy Arimidex (anastrozole)
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May 12, 2012 09:00PM 1openheart wrote:

You will probably need to take the compounding recipe for scream cream with you to your doctor's  appointment because most have never heard of it.  Here is the link for it:  http://www.ijpc.com/_pdf/Scream_Cream.pdf

It does work well.  I burns me for about 5 minutes, but it makes for a very natural lubrication.  

For years, my gyn. has recommended using Albolen Cream.  It is an old product that has been around for years.   It is sold in a big tub.  It is a facial moisturizer but he says it is safe to use as a lubricant prior to sex.  You can usually find it a Walgreens or CVS.  

And as far as using vaginal hormones....my onc. does not want me using creams, but is fine Vag-e-fem.  It is inserted vaginally twice a week.  It is a little small white tablet and it slowly dissolves.   Very little, if any, is absorbed into the blood stream.  So far, it is keeping my tissues pretty lubricated and I have not had any UTIs like I used to.  It requires a prescription.  I would be in really bad shape with out this stuff!

"The wound is the place where the light enters you." ~ Rumi Dx 4/28/2011, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 6/14/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left; Reconstruction (left): Nipple reconstruction
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May 15, 2012 08:36AM Cyborg wrote:

Vagi femhas hormones in it, right? Is KY bad? I used it and it felt great. Is KY bad for us?

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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May 15, 2012 04:56PM 1openheart wrote:

Yes, vag-e-fem is estrogen, but very, very little is absorbed after the first couple of weeks.  It stays in the local vaginal tissues.  My ONC is the one giving this to me. I am 83 % estrogen positive.

"The wound is the place where the light enters you." ~ Rumi Dx 4/28/2011, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 6/14/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left; Reconstruction (left): Nipple reconstruction
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May 15, 2012 05:22PM mamabee wrote:

Thank you all so much for the tips re: coconut oil & cocoa butter. I just had my last surgical drain out yesterday and I'm ready to get back in the saddle...and I KNOW my DH is more than ready. Regarding cocoa butter and estrogen, I just googled a study where they used cocoa butter suppositories as the control in a study of estrogen suppositories so they must not have any affect on estrogen. I'm 100% er+ so I'm a little paranoid about that.

PALB2 mutation Dx 11/2011, ILC, 3cm, Stage IIIB, Grade 2, 2/7 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/22/2012 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/10/2012 Breast, Lymph nodes Hormonal Therapy 8/26/2012
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May 17, 2012 06:35AM Cyborg wrote:

Thank goodness, mamabee! I was freaked out about the possible estrogenic effects oc coconut oil or cocoa butter.

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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May 17, 2012 07:14AM Blessings2011 wrote:

Another wonderful Yell side effect of vaginal dryness is bleeding.

I was wondering why I was spotting years after a complete hysterectomy, and my OB-GYN told me that lack of estrogen in the tissues make them so fragile - like tissue paper - that just walking can cause the tissue to tear in some women and make them bleed. Surprised

It's important to stay lubricated even if you're NOT having sex!!!

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole) Dx 7/15/2021, IDC: Papillary, Left, <1cm, Stage IA, ER+/PR+, HER2-
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May 18, 2012 07:15AM Outfield wrote:

Blessings - me too.  I feel so old at 46 that I make myself spot just by doing nothing.  Using the olive oil every morning has been helpful for me.  I had never heard of anyone doing that before, just thought of it myself because Replens was so nasty.  Since I thought I was some kind of pioneer with it, I had to overome my initial fear of going rancid!

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