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Topic: vaginal dryness

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

Meet others in this age-range who share similar life issues.

Posted on: Dec 22, 2011 05:33PM

blessed wrote:

ok, yeah, touchy subject, but I need to know and you guys are the bomb for my embarrasing questions.  I am on aromasin (4th year) and am 52.  It is so painful, without having sex, but very painful during.  Anyone else????  I am using replens and that is all.  Thank you so much!!!!!

8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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May 20, 2012 04:37PM Ginger48 wrote:

How are you applying the olive oil?

BRCA2+ Knowledge is power! lumpectomy 4/12/11, NSBMX 6/22/11, exchange to implants 10/27/11, ooph 12/7/11 Dx 4/5/2011, IDC, <1cm, Stage IA, 0/1 nodes, ER+/PR+, HER2-
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May 21, 2012 02:55AM Cyborg wrote:

Ginger48, earlier in the thread they mentioned just massaging it in, but then I was thinking it would benefit me by being inside ...(?).

Does anyone know if Ky is bad for us girls with BC

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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May 27, 2012 02:30AM Cyborg wrote:

Does anyone know if KY is bad for us girls with BC

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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May 30, 2012 04:01PM mclark55 wrote:

Cyborg,

KY is considered to be not so great by most natural therapists because of the ingredients.  You might want to consider using organic coconut, almond or olive oils.  There have been some good recommendations farther up the page.  Wish I could offer something else.  I even tried the KY sensitive jelly but it burned like hell on those fragile tissues.  Not nice!

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
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May 31, 2012 07:16AM Angelfalls wrote:

Are coconut, almond and olive oils ok for those with ER+ tumours?

Dx 3/2003, IDC, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Surgery 3/31/2003 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Chemotherapy 4/29/2003 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 11/14/2003 Hormonal Therapy 1/4/2004 Dx 9/15/2006, 5cm, Stage IV Radiation Therapy 10/31/2006 Surgery 1/30/2007 Prophylactic ovary removal Hormonal Therapy 2/27/2007 Arimidex (anastrozole) Dx 10/5/2011, Stage IV, mets Chemotherapy 1/4/2012 Xeloda (capecitabine) Chemotherapy 3/19/2012 Taxol (paclitaxel) Hormonal Therapy 10/23/2012 Aromasin (exemestane) Targeted Therapy 5/6/2013 Afinitor (everolimus) Hormonal Therapy 1/6/2014 Femara (letrozole) Chemotherapy 1/30/2014 Navelbine (vinorelbine)
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May 31, 2012 09:53AM Cyborg wrote:

I have been using coconut oil and cocoa butter but the l
Ky was so great and lasted longer

Winning!!! Dx 2/23/2011, ILC, 2cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2-
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May 31, 2012 04:56PM mclark55 wrote:

Angelfalls:  Yes!  But make sure they're organic.

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
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Jun 1, 2012 01:33PM Angelfalls wrote:

Thank you, Marnie!

Dx 3/2003, IDC, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Surgery 3/31/2003 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Chemotherapy 4/29/2003 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 11/14/2003 Hormonal Therapy 1/4/2004 Dx 9/15/2006, 5cm, Stage IV Radiation Therapy 10/31/2006 Surgery 1/30/2007 Prophylactic ovary removal Hormonal Therapy 2/27/2007 Arimidex (anastrozole) Dx 10/5/2011, Stage IV, mets Chemotherapy 1/4/2012 Xeloda (capecitabine) Chemotherapy 3/19/2012 Taxol (paclitaxel) Hormonal Therapy 10/23/2012 Aromasin (exemestane) Targeted Therapy 5/6/2013 Afinitor (everolimus) Hormonal Therapy 1/6/2014 Femara (letrozole) Chemotherapy 1/30/2014 Navelbine (vinorelbine)
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Jul 20, 2012 10:18AM blessed wrote:

Blessings20, thank you for posting about also the vaginal bleeding during sex is when it happens to me.  It is embarrassing and I use KY without estrogen, have yet to try the scream scream espicially with the bleeding (bleeding and scream in the same sentance scare the yell outta me lol....).  I am to the point of using the vag a fem no matter the estrogen costs.  Anyone else have relief from the bleeding with any of the above mentioned products?

 I did not realize when I started this thread that so many like me were suffering.......again I thought it was just me and as always you girls have come thru! 

8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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Jul 20, 2012 11:24AM autism_mom wrote:

Ladies. Read this thread and HAD to chime in. I went through this about 15 years ago after a run of Lupron for endo. Had to use lidocaine gel for over a year. My gyn finally sent me to a specialist at UCSD that deals with vaginal vestibulitis. Apparently it can be brought on by rapid menopause from ooph or meds. In my case it caused chronic inflammation of the Bartholins glands that sit just inside the hymenal ring. These glands are partly responsible for natural lubrication during intercourse. I had what is called a vestibulectomy to surgically remove these glands and never had painful intercourse again. Please do yourselves a favor and at least look into this. It may not be the problem but if it is you might actually be able to fix it. Good bye lidocaine (and whatever the heck scream cream is...lol)

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Aug 20, 2012 09:51AM hwhranch wrote:

mY OBGYN had me get something over the counter...I can't remember what it is called but i will go home and look tonight.  It has worked wonders.

Dx 2/2011, IDC, 5cm, Stage IIIA, Grade 3, 1/15 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2011 AC + T (Taxol) Surgery 8/8/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left Radiation Therapy 9/19/2011 Breast Surgery 12/12/2011 Prophylactic ovary removal Hormonal Therapy 1/15/2012 Surgery 11/7/2012 Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement
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Aug 20, 2012 10:09AM SusannahW wrote:

Hwhranch, yes, please let us know what your doctor prescribed!
Thanks, susannah

Dx 3/2012, IDC, Stage I, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 4/26/2012 Lumpectomy: Right Radiation Therapy 6/3/2012 Breast Hormonal Therapy 8/31/2012 Femara (letrozole) Hormonal Therapy 10/8/2012 Aromasin (exemestane)
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Aug 20, 2012 01:52PM - edited Aug 20, 2012 01:56PM by hwhranch

Astroglide Natural...and it is all natural ingredients.  Works wonderfully. You can buy it right off the shelf.

Naturally free from Glycerin, Alcohol, Fragrance, Flavorings Hormons.

Water Bases, Water Soluble, Long lasting, Whisper-light, Hormone and petroleum-Free.

Dx 2/2011, IDC, 5cm, Stage IIIA, Grade 3, 1/15 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2011 AC + T (Taxol) Surgery 8/8/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left Radiation Therapy 9/19/2011 Breast Surgery 12/12/2011 Prophylactic ovary removal Hormonal Therapy 1/15/2012 Surgery 11/7/2012 Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement
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Aug 20, 2012 04:31PM SusannahW wrote:

Thanks, will pick some up.

Dx 3/2012, IDC, Stage I, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 4/26/2012 Lumpectomy: Right Radiation Therapy 6/3/2012 Breast Hormonal Therapy 8/31/2012 Femara (letrozole) Hormonal Therapy 10/8/2012 Aromasin (exemestane)
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Sep 11, 2012 03:03PM mclark55 wrote:

Hi there hwhranch - how nice of you to share that with us!  I can't wait to try it!  I checked out their website and was pleasantly surprised that the only ingredient I could object to was phenoxyethanol (I checked it out on the Environmental Working Group's Skin Deep website and it isn't too bad - here's the link: www.ewg.org/skindeep/ingredien... )  Usually there are 4-5 ingredients I refuse to let enter my system, so I was pleasantly surprised.  I've written it down.  Thanks for sharing.

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
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Sep 11, 2012 03:50PM stephN wrote:

Hey y'all,

I have the Astroglide Natural and it works great.  I also have tried one called YES.  It's expensive, but it is also all natural and they make a waterbased one that is designed to be used inside and an oil-based one that's designed to be used outside.  

I also talked to my onc about this issue the last time I was there a few weeks ago and she prescribed the estrogen cream.  She said that using it doesn't increase your serum estrogen, only the estrogen in the vaginal tissues.  She's very conservative, so I am going with her on this one, but I know some oncologists don't agree.  You should definitely check with yours.  I'm 43, not quite ready to throw in the towel yet, haha!  Oh, she also said that there's a very good generic daily lubricant that you can find at Walgreens.  I haven't found that yet, but I'm going to look for it.

autism_mom, thanks for the insight.  I'll have to check into that!  It was definitely surgical menopause that threw me into this plight.  It happened so fast!

Thanks for sharing all the info, ladies.  I really appreciate  your candor! 

DX 7/12/11 DCIS w/IDC microinvasion, Stage 1, Grade 3, 0/1 nodes, ER+/PR+
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Sep 11, 2012 05:17PM Blessings2011 wrote:

I am 100% ER+, and the MO told me to continue with my Premarin cream, a tiny bit inserted vaginally, for the dry, bleeding tissues.

I asked if Replens would do the same thing, and she said no, that it was just a lubricant. It would not help the tissues themselves.

And like stephN says - my MO is very conservative, so I trust her judgement.

Especially NOW, since I took my first Anastrozole last week!!!!! Surprised

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/5/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 9/5/2012 Arimidex (anastrozole) Hormonal Therapy 10/22/2013 Femara (letrozole) Dx 7/15/2021, IDC: Papillary, Left, <1cm, Stage IA, ER+/PR+, HER2-
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Sep 17, 2012 10:22PM 3jaysmom wrote:

ive been reading here a lot. went to the onco, and she said the vagifem was safe, even with high counts of estrogen based cancer. just you have to rotate it, on for a few weeks, skip a week, then again for a few days..

  she also gave me the ok to insert olive oil all the way in.. the old gyn didn't know wether that would cause a problem... off to an onco gyn in two weeks.. she'll have more input im sure...

  the olive oil works well for me. i freeze it in ice cubes trays, and by the time i do it, it melts.. only have to keep repeating if im intimate...use it daily.. hope that might work for someone...3jaysmom

3jaysmom Chemotherapy 4/20/2009 Dx DCIS, 2cm, Stage IIB, 1/27 nodes, ER-/PR+, HER2-
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Sep 18, 2012 02:54PM ck55 wrote:

How many times a week are you using the Vagifem? I just completed my 5 years on Femara and my onc switched me over to Tamoxifen with the thought that I could use the Vagifem and any estrogen that got into my system would be blocked.

She prescribed the Vagifem at 3 times a week. Is this the standard? How quickly did you feel a difference? It would be so nice not to cringe evey time my husband makes a move toward me. Yell

Cyndi

DX 11/9/06 9cm ILC Stage 3A Mastectomy ER+ PR+ HR- 2/16 Nodes DD AC/Taxol Radiation
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Sep 18, 2012 03:33PM Lou10 wrote:

There was a teleconference last week organized by Living Beyond Breast Cancer. Someone asked about lubricants and Dr. Susan Hong said to get a silicone-based one rather than a water-based one (I'm assuming because they lubricate better). I got something called Wet Platinum but haven't tried it yet.

Diagnosis: 12/15/2010, IDC (plus DCIS & ILC), 2.5cm IDC, Stage IIb or III (unknown -- radiation to lymph nodes instead of ALND surgery), Grade 2, 2/2 nodes (sentinel and intramammary fully involved with extracapsular extension), ER+++/PR+++, HER2- Surgery 1/25/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 4/13/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/14/2011 Breast, Lymph nodes Hormonal Therapy 11/7/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/22/2012 Femara (letrozole) Hormonal Therapy 7/10/2013 Aromasin (exemestane) Hormonal Therapy 7/12/2014 Femara (letrozole)
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Sep 19, 2012 12:23AM 3jaysmom wrote:

honestly, I haven't started the vagifem yet. going to an onco gyn, and want a 2nd opinion.. but the onco said 3xs for one week, then wait a week or two, and use olice oil everyday. its not just the sex part thay its a problem.. i could start a forest fire just walking, im so dry there!!!!3jays
3jaysmom Chemotherapy 4/20/2009 Dx DCIS, 2cm, Stage IIB, 1/27 nodes, ER-/PR+, HER2-
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Sep 19, 2012 12:27AM Lou10 wrote:

3jaysmom - the "forest fire" is too funny. Laughing  (I can't even remember the sex part.)

Diagnosis: 12/15/2010, IDC (plus DCIS & ILC), 2.5cm IDC, Stage IIb or III (unknown -- radiation to lymph nodes instead of ALND surgery), Grade 2, 2/2 nodes (sentinel and intramammary fully involved with extracapsular extension), ER+++/PR+++, HER2- Surgery 1/25/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 4/13/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 9/14/2011 Breast, Lymph nodes Hormonal Therapy 11/7/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/22/2012 Femara (letrozole) Hormonal Therapy 7/10/2013 Aromasin (exemestane) Hormonal Therapy 7/12/2014 Femara (letrozole)
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Dec 30, 2012 08:00PM gratitudeforlife wrote:

No one needs to feel embarrassed or shy about vaginal dryness. After all we've all endured and continue to endure, who gives a heck about talking candidly about sex-related matters. I had three rounds of FEC and then three rounds of Taxotere, with Herceptin, and the last three rounds put me into menopause (I was close, being 49). The end result is that I am drier than the Sahara Desert in the vaginal region, and intercourse is very painful. Thanks to those of you who suggested olive oil and coconut oil. I have 1005 natural argan oil in my bathroom, too, so I am going to try out these remedies.

Dx 5/9/2012, IDC, 3cm, Stage IIA, Grade 3, 0/6 nodes, ER+/PR+, HER2+ Surgery 5/27/2012 Lumpectomy: Left Chemotherapy 7/27/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 2/14/2013
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Dec 30, 2012 11:29PM Hipline wrote:

My onco gave me Creme de la femme. It's an all natural lubricant created by a doctor. You can buy it on Amazon.

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/13/2010 Mastectomy: Left; Reconstruction (left): Silicone implant Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole) Surgery 12/5/2018 Mastectomy: Right; Reconstruction (right): Silicone implant
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Dec 30, 2012 11:47PM SheChirple wrote:

lhinz asked about desire.  Well, I have taken the tact of use it or lose it.  I may not be intensly passionate, or ready to spark an evening, but I find that if I 'go with the flow' I'm not disappointed.

It truly helps that my husband understands and does all he can.  Just before Christmas he drew me a bath, with candles, wine and chocolates.  He came downstairs, took me by the hand, escorted me up to the bath, slowly undressed me and got into the bath with me....three hours later........we slept well that night.

Romance!!!  That is how to spark the desire.

A smile is the most beautiful curve on a woman's body. Dx 10/14/2011, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2- Surgery 11/28/2011 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/23/2012 Reconstruction (left); Reconstruction (right) Surgery 8/14/2012 Reconstruction (right) Surgery 5/24/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 6/9/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jan 5, 2013 07:16PM - edited Jan 5, 2013 07:17PM by mclark55

SheChirple - You go sister!  Awesome - we all need a husband like yours!

Re the Creme de la Femme - I got all excited about what I thought was going to be a great new product we could use.  Did some research, here's the list of ingredients that are in it - from their website: Creme de la Femme is a blend of extremely pure mineral oil and pharmaceutical-grade petrolatum combined with paraffin and ceresin (cosmetic waxes). So Creme de la Femme is an oil-based vaginal lubricant that remains semi-solid at room temperature. Then the instant it touches warm skin, it melts into silky, sheer moisture. Unlike other vaginal lubricants, Creme de la Femme contains no alcohol, dyes or glycerin. All ingredients used in the formula are FDA monographed and registered.

The mineral oil and petrolatum worry me a little - being products of the petroleum industry they are generally known in natural healing circles to be a problem - petroleum based chemicals exude synthetic estrogen (known as xenoestrogens). These bad estrogens are absorbed thru the skin and accumulate in our organs. They also affect our respiratory system and can play havoc with the hormone balance.  I've got a whole article on my website about xenoestrogens, here's a link:

http://marnieclark.com/protect-yourself-from-xenoestrogens-estrogen-dominance/

I believe I'll stick with the organic coconut and olive oil.

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
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Jan 13, 2013 01:46PM udpt82 wrote:

I can't say how timely this is and how happy I am that I tripped upon this thread.  I was on Tamoxifen from February 2009 until early February 2012 and had no significant lubrication issues.  I will say the libido was poor though.  Started Armidex February 2012 and have developed lubrication issues.  I don't feel dry during the day but have trouble during intercourse.

Truth be told, I am still uncomfortable having these discussions (even at 53) but am seeing a new female gyn (supposedly with a holistic approach) in April and will discuss it with her.  I will check with my insurance and maybe try to move the appointment up.  

Am I correct, that most people are suggesting that oils or other products be used on a regular basis, even if my trouble is only during intercourse?  Are there any that can improve comfort and libido?

I am kind of at a loss but any info is appreciated.

Thanks

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Feb 2, 2013 07:06PM Cure4all wrote:

Hello Ladies,

It has been quite a while since I have posted on this board but I am feeling the need to connect with some of you in similar situations.  

Feeling the same on all aspects of what has been discussed.  Since dx, I've been thrown into surgical menopause (2010) so am feelng the vaginal dryness, etc.  I recently went to the GYN (she focusses on women previously dx with breast cancer) and she prescribed Estring for the vagina.  She said that it is to strengthen the vaginal wall as it thins as we age and go through menopause.   As far as lubricants, she mentioned that Replens, or any of the natural ones will work as well as olive oil.  Anyone else use this or heard of Estring?

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Feb 2, 2013 07:34PM Kay_G wrote:

Someone suggested I use coconut oil. I have just started trying it, and so far so good!

Well that is a pie crust promise, easily made, easily broken. Mary Poppins
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Feb 4, 2013 04:06PM mclark55 wrote:

HI Cure4all - I hadn't heard of Estring before so I looked it up.  Did you say you had breast cancer?  If that's the case, I doubt I'd be using Estring - have a look at this link to see what is said about it:  www.rxlist.com/estring-drug.htm .  Just thought you should know!

Sending hugs,

Marnie

Love and light, Marnie (MarnieClark.com) Dx 4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+ Surgery 4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap Chemotherapy 10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)

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