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Topic: vaginal dryness

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

Meet others in this age-range who share similar life issues.

Posted on: Dec 22, 2011 06:33PM

blessed wrote:

ok, yeah, touchy subject, but I need to know and you guys are the bomb for my embarrasing questions.  I am on aromasin (4th year) and am 52.  It is so painful, without having sex, but very painful during.  Anyone else????  I am using replens and that is all.  Thank you so much!!!!!

8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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Jun 24, 2014 04:10PM - edited Jun 24, 2014 04:12PM by sgcam

Just found this thread and see that it has not been very active recently, hopefully someone will find this info useful.

Wanted to comment on Replens- I agree it's terrible and clumps up. My Oncologist - a woman- recommended a product called Luvena - it is in an applicator also but it is not only a lubricant it is a probiotic and works really well. I use that in conjunction with using vagifem ( even though I am ER+) I have ordered Luvena from Amazon and have found it at my local Riteaid Pharmacy. The only negative is Luvena could benefit from upgrading their applicator.  I have also used dilators (mentioned in article pasted above by Oceana) when things were at their worst and found it very helpful- you can find them at various internet sites.

Dx 11/28/2007, IDC, 2cm, Stage IIB, 1/14 nodes, ER+/PR+, HER2- Surgery 11/28/2007 Lumpectomy: Left Surgery 12/10/2007 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/8/2008 CMF Hormonal Therapy 6/29/2008 Fareston (toremifene) Surgery 4/23/2014 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy Breast, Lymph nodes
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Jun 24, 2014 06:39PM Blessings2011 wrote:

Just wanted to check in... I am still using a tiny amount of Premarin Cream several times a month... just around the outside, and in the urethra. No more bleeding tissues, no more feeling like I have a bladder infection. No more pain just from sitting.

The MO emphasized that no lubricant will take the place of an estrogen when it comes to plumping up atrophied tissues, but that it is very important to keep the tissues moisturized when you're not using the estrogen product. (I am 100% ER+.)

She recommended an organic product called V-Magic, by Medicine Mama's Apothecary... sooo soothing on burning tissues! I found mine at the Health Food Store. http://medicinemamasapothecary.com/product/vmagic/

As for washing the nether regions, I rely on Cetaphil RestoraDerm Skin Restoring Body Wash, Fragrance Free(body wash/cleanser , which has a 0-2 low hazard rating by the EWG. You can get it anywhere. Again, VERY soothing.

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/5/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 9/5/2012 Arimidex (anastrozole) Hormonal Therapy 10/22/2013 Femara (letrozole) Dx 7/15/2021, IDC: Papillary, Left, <1cm, Stage IA, ER+/PR+, HER2-
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Jun 29, 2014 09:39AM BUNKIE10 wrote:

Blessing - I am going to have to try that cetiphil wash. I use the sensitive bar soap on my body but have trouble with the other areas. Everything makes me sore or itchy. Thanks for the info. I will also try V-magic.

Dx 6/11/2012, DCIS, Stage 0, Grade 2, ER-/PR- Surgery 7/22/2012 Lumpectomy: Left Surgery 8/7/2012 Lumpectomy: Left Radiation Therapy 10/3/2012 Breast
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Jul 26, 2014 11:13AM momand2kids wrote:

so glad to have found this-- have posted in other sections of the board.  My gyn is recommending pt for vaginal shrinkage-- I have been a user of replens/coconut oil-- but still struggling with this issue--- I like alot of the suggestions here--- and I need to be more consistent in using these things.... 

Has anyone done the physical therapy?  I am really motivated to do this but would love to know others experiences

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Aug 6, 2014 01:01PM PugMum59 wrote:

I had pretty much forgotten about this site. Stupid Me! Lately, it seems like every time I turn on the television I'm seeing/hearing all these couples raving about sex after 50! I just wish they would interview some of us who have gone through bc tx and all the fun side effects you don't think about at the time of treatment. Like: sudden menopause and the inability to take ANYTHING for it. Quite frustrating. Maybe if some of the men tried sex with an unlubricated condom lined with steel wool they would understand why some of us just quit trying. I have tried astroglide, and replens, among others, and yes it lubricates, but it's still quite painful. I feel like my body has betrayed me twice and it really pisses me off. Thanks for letting me vent. I'll go back now and read some suggestions.

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Aug 6, 2014 01:26PM clarrn wrote:

Just found this.   30 and going through chemo.   Painful painful sex even with lots of astroglide  :(  I have always had the higher sec drive in our house and I am getting so depressed about this.   Will talk to my MO on the 12th and see what he says.  95% ER+

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( now onto a Free Tram Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant Surgery 8/24/2020 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap
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Aug 6, 2014 03:09PM 2Tabbies wrote:

PugMum, I'm right with you on all of that. I had a complete hysterectomy and oophorectomy at age 45 for ovarian cancer. Menopause hit me like a ton of bricks so I went on an estrogen patch. That solved the problem. Fast forward 12 years, and I get diagnosed with ER+ breast cancer. No more estrogen supplements plus I have to take Tamoxifen. So in addition to a flat chest, awful mood swings, depression, and hot flashes, I've lost all libido and sex is painful. I've lost count of how many times my body has betrayed me. (Did I mention I also have an incurable, very rare form of lymphoma? It's just "smoldering" at the moment so I'm in "watch and wait" status, but could kick into gear at any time.) I guess I'm just supposed to be grateful I'm still alive, but I'm so angry. As for the topic at hand, I've tried Replens which helped some but leaves me with a goopy, smelly discharge. My GYN gave me some Luvena samples. They help some, but it liquifies and runs out of me almost as soon as I insert it. So it's really messy. I think I'm going to try the vit E and/or coconut oil suppositories. To top it off, with no libido, I have very little motivation to work on this issue. It just feels like one more chore. Thank god my husband has been patient, but I can't expect the poor man to live like a monk forever.

In addition to BC, I had/have: stage Ia ovarian cancer, DX 12/2002 and Waldenstrom's Macroglobulinemia (a rare non-Hodgkins lymphoma), DX 1/2009 Dx 7/11/2013, ILC, Stage IIIA, Grade 2, 3/7 nodes, mets, ER+/PR+, HER2- Surgery 8/2/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 9/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/6/2013 Breast, Lymph nodes Hormonal Therapy 1/26/2014 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/11/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 11/11/2014 Reconstruction (right): Tissue expander placement
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Aug 6, 2014 03:18PM Tomboy wrote:

im not glad, exactly, that you guys are angry about this, but i am too, and it makes me feel so not alone, but i am still angry about it. and that they didn't warn us.

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Aug 6, 2014 06:29PM 2Tabbies wrote:

Welcome to this club we had no desire to join. It does help to know you're not the only one so you don't have to feel abnormal. I was pretty sure this was going to be a big issue for me because it was after my oophorectomy/hysterectomy. The only thing that helped was an estrogen supplement, and that's now out of the question. You're right that nobody warns you. I guess I understand why they don't tell you when you're first diagnosed. No point upsetting you with something you can't prevent. But at the very least once treatment is done, the docs need to raise the subject and help you find ways to be as sexually functional as possible and as you want to be. My onc is pretty much useless for this. Thankfully, I have a good gyn.

In addition to BC, I had/have: stage Ia ovarian cancer, DX 12/2002 and Waldenstrom's Macroglobulinemia (a rare non-Hodgkins lymphoma), DX 1/2009 Dx 7/11/2013, ILC, Stage IIIA, Grade 2, 3/7 nodes, mets, ER+/PR+, HER2- Surgery 8/2/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 9/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/6/2013 Breast, Lymph nodes Hormonal Therapy 1/26/2014 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/11/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 11/11/2014 Reconstruction (right): Tissue expander placement
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Aug 6, 2014 07:15PM tangandchris wrote:


Glad I found this thread too....40 and I'm dry as a chip! Sometimes I feel itchy and I wonder if it is from the dryness as well.

Dh and I bought some warming liquid to try, but now after reading this thread I'm wondering if it is safe. It's a generic walmart brand, but similar to the KY product.

Where can you find coconut oil? It's very frustrating and I haven't even started Tamoxifen yet. No period since chemo in Feb and I am assuming I won't have one anytime soon. My sex drive is low, but once we start I can warm up. The problem is that I'm so worried that intercourse is going to hurt that it kills the mood again.

*sigh* I am angry no one warned about this too. I guess early on in my dx I wouldn't have cared much, but now I do.

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/22/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/12/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to bone/other, ER+/PR-, HER2-
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Aug 6, 2014 08:03PM Tomboy wrote:

You can find cocoanut oil in the same aisle as as the other cooking oils. food grade is the one you want. And it  is "hard" at room temperature. my onco gyno recommended it to me too. it wasn't until i started getting uti's after treatment, that onc's got together and allowed me to do estrace vaginal cream. really it is just a trace of estrogen. it only did just help with dryness, and i am not getting uti's anymore either. but then i am not doing anymore sex, either. my main complaint, well no, i have several. But, they even gave it to me at lllc, highly estrogen positive. That only means receptors in the breast, not circulating. my circulating estrogen, 5 years after meno, and after chemo, and 8 months of AI's, is less than 1%. A grown man has 8%. sheeesh. there is another thread called i want my mojo back. its pretty good, too. one woman made coconut "suppositories" that she could put up in there before they melted.

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Aug 6, 2014 08:09PM 2Tabbies wrote:

Tangandchris, I ordered some coconut oil from Drugstore.com. In addition to a regular jar of it, they have it and vitamin E in gel caps that can be used as a vaginal suppository. Amazon probably has them too. You also might check your local natural foods store. Someone further up in this thread mentioned the Yes Yes Yes products (www.yesyesyes.org). I ordered their introductory package. They're a bit pricey, but it will be worth it if it works. I'm going to give this problem the shotgun approach and try a lot of different things.

In addition to BC, I had/have: stage Ia ovarian cancer, DX 12/2002 and Waldenstrom's Macroglobulinemia (a rare non-Hodgkins lymphoma), DX 1/2009 Dx 7/11/2013, ILC, Stage IIIA, Grade 2, 3/7 nodes, mets, ER+/PR+, HER2- Surgery 8/2/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 9/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/6/2013 Breast, Lymph nodes Hormonal Therapy 1/26/2014 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/11/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 11/11/2014 Reconstruction (right): Tissue expander placement
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Aug 6, 2014 08:14PM jill47 wrote:

Hi all new to this group, good timing, got a call from my gyno surgeon's office today wanting to schedule a 1 year post TH/BSO pelvic exam(!) ouch....been dry as a desert, no libido, no estrogen, hurts to even touch.  It will be a painful but insightful exam, lots to discuss w/ doc.   Hoping he can prescribe me some relief, it can't be hormones (98% ER+) and the off the shelf lubricants burn like hell.   I am a happily married women who should have many years of sex ahead but not in this condition.  I'll keep reading your suggestions.  Liked the article on vaginal atrophy.  

5/2012 Grade 2 DCIS, 2+cm extensive comedo necrosis. 0/4 nodes. 98% ER+/99% PR+. LCIS/ALH presented after NSBMX 7/12. TH/BSO 8/13. Dx LE arm/truncal 10/2015. Convert to prepectoral 6/20/16
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Aug 7, 2014 05:40AM Tomboy wrote:

yesyesyes?nonono! preservative:phenoxyetanol= alcohol:classified irritant=drying &ouch

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Aug 7, 2014 03:56PM momica111 wrote:

I'm using a vitamin E suppository made by Carlson that also has coconut oil in it.  I've also used Yes but wondering about the previous post and what's in some of the lubricant alternatives like silicone.  Yes uses organic ingredients.

Dx 9/14/2011, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/7/2011 Lumpectomy: Left Surgery 10/21/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 11/18/2011 Breast Hormonal Therapy 2/25/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/29/2013, IDC, <1cm, Grade 2, ER+/PR+, HER2- Surgery 5/28/2013 Mastectomy: Left; Reconstruction (left) Hormonal Therapy 8/28/2013 Femara (letrozole), Zoladex (goserelin) Surgery 9/16/2013 Reconstruction (left): Nipple reconstruction Surgery 3/31/2014 Reconstruction (left) Dx 3/16/2018, IDC, Left, <1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2-
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Aug 7, 2014 08:26PM Tomboy wrote:

Momica, Yes does us organic ingredients, but if you do look up the ingredients, right on their own webpage,the very last ingredient that they use as a preservative, is citric acid and phenoyxethanol, a type of alcohol. and alcohol is a known skin irritant. but i do hope it works for people, anyway.

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Aug 7, 2014 10:35PM udpt82 wrote:

I am sorry so many of us have these issues, but I am glad to know I am not alone.  I saw a new gyn (woman) in the spring and she said unfortunately there was not a good solution to dryness and painful intercourse without estrogen products.  I have been trying Astroglide Natural but it only gives a little relief and I have burning when I apply it.  I will look into the Scream Cream and some of the other suggestions made here.  It would be nice not to have burning before intercourse, tentativeness during intercourse because of pain, and then burning afterwards.  Am I asking too much??

Mommica111 and 2Tabbies, do the Vitamin E and Coconut Oil suppositories moisturize and lubricate or do you use them with other products?

I am also curious if anyone has found anything to help with the non-existent libido.  It is ridiculous!  My DH is very understanding but I know he would love if I had a little more interest.  Any suggestions?

Thanks.

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Aug 8, 2014 12:16AM Blessings2011 wrote:

Due to severe side effects, I have been off my AIs since May 27th. I was on Arimidex for a year, and on Femara for six months. My MO took me off all of them.

The situation in the nether regions has improved greatly.

Even without my "safety net" of an AI, my MO still approves using a tiny amount of Premarin cream in the outer vaginal area. This prevents bleeding from atrophied vaginal tissues, and when used in the urethra, prevents incontinence, pain, and the symptoms of a UTI.

There is no lubricant on the market that can duplicate the reversal of tissue atrophy like an estrogen product can. I have to trust my MO that she knows what she's doing... I am 100% ER+, but my risk of recurrence is very low.

Now, having said that, I want to bring up a product that was mentioned several pages back: Scream Cream. No, I haven't used it, but those who have, swear by it.

Here is a link to the thread that discusses it:

The Solution To Painful Intercourse!

https://community.breastcancer.org/forum/8/topic/776318?page=1

And......

List of Ingredients for Scream Cream (Must be made in a Compounding Pharmacy)

http://www.ijpc.com/_pdf/Scream_Cream.pdf

Hope this helps some of you ladies out there.

ALSO - Trader Joe's sells a very nice, relatively inexpensive Organic Virgin Coconut Oil (only ingredient) that is solid at room temperature and shelf stable. I read that one member here shaped hers into little suppository shapes and froze them for future use.

And PugMom - when I read your post, I was thinking "condoms lined with razor blades" is more like it!!! Bawling

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/5/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 9/5/2012 Arimidex (anastrozole) Hormonal Therapy 10/22/2013 Femara (letrozole) Dx 7/15/2021, IDC: Papillary, Left, <1cm, Stage IA, ER+/PR+, HER2-
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Aug 8, 2014 04:32AM 2Tabbies wrote:

I only ordered the vitamin E and coconut oil suppositories the other day so I haven't even received them yet. It sounds like they are more of a moisturizer than a lubricant. If all the stuff I ordered fails, I'm going to ask my doc about scream cream. 

I don't know of anything for the libido issue. Wish I did. Anybody else think that if men had these problems, there would have been more progress by now? Maybe I'm  a cynic, but it seems like we're just supposed to suck it up.

In addition to BC, I had/have: stage Ia ovarian cancer, DX 12/2002 and Waldenstrom's Macroglobulinemia (a rare non-Hodgkins lymphoma), DX 1/2009 Dx 7/11/2013, ILC, Stage IIIA, Grade 2, 3/7 nodes, mets, ER+/PR+, HER2- Surgery 8/2/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 9/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/6/2013 Breast, Lymph nodes Hormonal Therapy 1/26/2014 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/11/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 11/11/2014 Reconstruction (right): Tissue expander placement
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Aug 8, 2014 08:12AM doxie wrote:

I've used pure coconut and then 50% cocoa butter and 50% olive oil to make suppositories.  The later was the best.  Both worked well for a vaginal moisturizer.  Unfortunately I became allergic to both.  Now I'm using shea butter 2:1 ratio to olive oil.  But I've not found anything that works well for intercourse.  My MO and GYN won't prescribe estrogen creme.  

Certain things make vaginal atrophy worse.  No sex for years and no vaginal birth.  I'm just starting to date again and am playing the chaste one until I get up the nerve to have sex.  Last time it was painful and killed the mood even though I prepped with a dilator.  

These should be some of the best years for sex, but instead we are faced with pain.

Dx 8/2011, IDC, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 9/2/2011 Lumpectomy: Right Hormonal Therapy Aromasin (exemestane) Radiation Therapy Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 8, 2014 10:15AM Jenwith4kids wrote:

Has anyone read this book:  http://www.amazon.com/gp/product/0062301519/ref=o...

I bought it, but have only read the intro so far...  sex is pretty far from my mind right now, I hope that will change once I'm through active treatment.  The book got great reviews, hopefully it will be helpful.

Jen

So many changes since 1/8/2014 - Much good has come from the bad, and I do remember to allow myself the fact that "it's okay to not be okay". Looking forward to having this further and further behind me each day. Dx 1/9/2014, IDC, 2cm, Stage IIIA, Grade 2, 5/14 nodes, ER+/PR+, HER2- Surgery 2/14/2014 Lymph node removal: Right, Sentinel Surgery 2/14/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/14/2014 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/20/2014 AC Chemotherapy 5/15/2014 Taxol (paclitaxel) Surgery 9/2/2014 Prophylactic ovary removal Radiation Therapy 9/8/2014 Lymph nodes Hormonal Therapy 9/12/2014 Arimidex (anastrozole) Hormonal Therapy 3/5/2015 Femara (letrozole) Surgery 4/27/2015 Reconstruction (left); Reconstruction (right)
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Aug 8, 2014 01:42PM momica111 wrote:

I use the suppositories for internal moisture and I use Yes for intercourse.   I use coconut oil in the shower as a full body moisturizer and on external vaginal tissue.  I buy trader joes organic and melt a tablespoon in my hands. That's enough for whole body.   Intercourse has gotten a little easier but I am considering Estrace or equivalent which my onc will permit.  

Dx 9/14/2011, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/7/2011 Lumpectomy: Left Surgery 10/21/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 11/18/2011 Breast Hormonal Therapy 2/25/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/29/2013, IDC, <1cm, Grade 2, ER+/PR+, HER2- Surgery 5/28/2013 Mastectomy: Left; Reconstruction (left) Hormonal Therapy 8/28/2013 Femara (letrozole), Zoladex (goserelin) Surgery 9/16/2013 Reconstruction (left): Nipple reconstruction Surgery 3/31/2014 Reconstruction (left) Dx 3/16/2018, IDC, Left, <1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2-
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Aug 8, 2014 04:08PM GraceB1 wrote:

I've starting taking Osphena. It's been advertised on TV lately for vaginal dryness during sex. It is a SERM. Selective Estrogen Response Modulator. It's been tested with tamoxifen but not the arimidex or aromiasin. It "should" be OK to used even though I'm 100% ER+. It has helped tremendously even after only a couple of weeks. It was really a quality of life issue as I was so uncomfortable all the time and it wasn't confined to just the vagina, hurt to even sit. My OB/GYN recommended it as he said I looked really beat up down there and the onc was sorta OK with it. I thought it was re-occurring yeast infections but that wasn't it. 

Grace B I'm just special - primary neuroendocrine, less than .001% of all breast cancers. Start each day with gratitude. Dx 6/10/2013, Right, 6cm+, Stage IIIA, Grade 2, 2/11 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 7/12/2013 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 1/8/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Targeted Therapy 2/12/2014 Herceptin (trastuzumab) Radiation Therapy 3/4/2014 Breast, Lymph nodes Hormonal Therapy 5/18/2014 Arimidex (anastrozole) Dx 1/29/2020, Right, <1cm, Stage IA, ER+/PR-, HER2- Hormonal Therapy Femara (letrozole)
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Aug 9, 2014 10:24AM jill47 wrote:

Thanks GraceB for the reference of Osphena, I've seen their ads in mags; I'll mention it to my gyno when I see him for my pelvic later this month. 

5/2012 Grade 2 DCIS, 2+cm extensive comedo necrosis. 0/4 nodes. 98% ER+/99% PR+. LCIS/ALH presented after NSBMX 7/12. TH/BSO 8/13. Dx LE arm/truncal 10/2015. Convert to prepectoral 6/20/16
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Aug 10, 2014 12:47AM 2Tabbies wrote:

My GYN recommended this web site:

http://middlesexmd.com/

In addition to BC, I had/have: stage Ia ovarian cancer, DX 12/2002 and Waldenstrom's Macroglobulinemia (a rare non-Hodgkins lymphoma), DX 1/2009 Dx 7/11/2013, ILC, Stage IIIA, Grade 2, 3/7 nodes, mets, ER+/PR+, HER2- Surgery 8/2/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 9/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/6/2013 Breast, Lymph nodes Hormonal Therapy 1/26/2014 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/11/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 11/11/2014 Reconstruction (right): Tissue expander placement
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Aug 10, 2014 08:33AM - edited Aug 10, 2014 08:48AM by doxie

Interestingly it strongly states to not use oils in the vagina because they break down the tissues.  Great.  I easily become allergic to chemicals.  A dry vagina makes it worse because it absorbs whatever is used.  I think that is why I has such a reaction to coconut oil, something I'd never had with it before.  

Edited to add:  In a quick google search, other GYN sites don't discourage the use of natural seed and nut oils for moisturizing.

Dx 8/2011, IDC, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 9/2/2011 Lumpectomy: Right Hormonal Therapy Aromasin (exemestane) Radiation Therapy Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 10, 2014 07:21PM 2Tabbies wrote:

Doxie, I wonder if they were referring to petroleum oils like baby oil or vaseline rather than plant based oils? I don't know. Just guessing. Maybe using things like vitamin E and coconut oil hasn't hit their radar. One of my docs, I think it was my GYN, said that vitamin E sounded like a good thing to try when I asked her about it. I'm really bummed at the moment. This very same doc who I've been with since 2003 when I had ovarian cancer just announced she's retiring. To make it worse, she's retiring because her husband has Parkinson's disease. I just want to cry for them and because I'll miss her so much.

In addition to BC, I had/have: stage Ia ovarian cancer, DX 12/2002 and Waldenstrom's Macroglobulinemia (a rare non-Hodgkins lymphoma), DX 1/2009 Dx 7/11/2013, ILC, Stage IIIA, Grade 2, 3/7 nodes, mets, ER+/PR+, HER2- Surgery 8/2/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 9/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/6/2013 Breast, Lymph nodes Hormonal Therapy 1/26/2014 Liquid tamoxifen (Soltamox), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/11/2014 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Surgery 11/11/2014 Reconstruction (right): Tissue expander placement
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Aug 11, 2014 07:53AM doxie wrote:

I too think they probably mean petroleum oils that would be in OTC products.  Ironically, petroleum oils are plant based also, just far removed in time and highly processed.

So sorry you are losing your GYN.  I need to move from my beloved CNP to an internist, but don't want to because I've been with her since 2003. We are the same age, have kids the same age, and she also treats my daughter.

Dx 8/2011, IDC, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 9/2/2011 Lumpectomy: Right Hormonal Therapy Aromasin (exemestane) Radiation Therapy Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 11, 2014 01:55PM ncollett wrote:

So glad to see I am not alone in this area. I am 48 and have no desire either. I feel so bad because I love my husband very much and he is still very attractive to me and I would love nothing better then to be able to make him happy and have sex again but it hurts so bad and I the thought of it right now especially two weeks after surgery just isnt appealing. However I am very interested in getting started again as soon as we can and would like to know where to get some of these things to help. Are they over the counter or do you need a script?

Nancy Dx 5/24/2014, IDC, 2cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/29/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 9/9/2014 Lumpectomy: Left Radiation Therapy 10/5/2014 Breast Hormonal Therapy
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Mar 9, 2015 10:30PM - edited Mar 11, 2015 09:22PM by DavisD

This Post was deleted by DavisD.
DD Dx 7/11/2011, DCIS, 2cm, Stage 0, Grade 3, ER+/PR-, HER2- Surgery 9/7/2011 Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 1/29/2012 Reconstruction (left); Reconstruction (right) Dx 2/2015 Surgery 2/22/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel; Reconstruction (right) Dx 2/26/2015, IDC, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ Targeted Therapy 3/15/2015 Perjeta (pertuzumab) Targeted Therapy 3/15/2015 Herceptin (trastuzumab) Chemotherapy 3/15/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 10/19/2015 Radiation Therapy Whole-breast: Breast, Chest wall

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