Posted on:
Dec 22, 2011 03:33PM
B
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Sep 2007
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82
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Jul 20, 2012
Posted on:
Dec 22, 2011 03:33PM
blessed
wrote:
ok, yeah, touchy subject, but I need to know and you guys are the bomb for my embarrasing questions. I am on aromasin (4th year) and am 52. It is so painful, without having sex, but very painful during. Anyone else???? I am using replens and that is all. Thank you so much!!!!!
8-03-07,IDC,stage1,grade1 1.2cm,er+,pr+Her2-,bilateral mastectomy,oncotype dx 15
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3jaysmom
Joined:
Apr 2010
Posts:
4,158
Latest activity:
Feb 20, 2020
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Sep 18, 2012 10:23PM
3jaysmom
wrote:
honestly, I haven't started the vagifem yet. going to an onco gyn, and want a 2nd opinion.. but the onco said 3xs for one week, then wait a week or two, and use olice oil everyday. its not just the sex part thay its a problem.. i could start a forest fire just walking, im so dry there!!!!3jays
3jaysmom
Chemotherapy
4/20/2009
Dx
DCIS, 2cm, Stage IIB, 1/27 nodes, ER-/PR+, HER2-
L
Lou10
Joined:
Feb 2011
Posts:
325
Latest activity:
Sep 12, 2021
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Sep 18, 2012 10:27PM
Lou10
wrote:
3jaysmom - the "forest fire" is too funny. 
(I can't even remember the sex part.)
Diagnosis: 12/15/2010, IDC (plus DCIS & ILC), 2.5cm IDC, Stage IIb or III (unknown -- radiation to lymph nodes instead of ALND surgery), Grade 2, 2/2 nodes (sentinel and intramammary fully involved with extracapsular extension), ER+++/PR+++, HER2-
Surgery
1/25/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel
Chemotherapy
4/13/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Radiation Therapy
9/14/2011 Breast, Lymph nodes
Hormonal Therapy
11/7/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
8/22/2012 Femara (letrozole)
Hormonal Therapy
7/10/2013 Aromasin (exemestane)
Hormonal Therapy
7/12/2014 Femara (letrozole)
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Dec 30, 2012 06:00PM
gratitudeforlife
wrote:
No one needs to feel embarrassed or shy about vaginal dryness. After all we've all endured and continue to endure, who gives a heck about talking candidly about sex-related matters. I had three rounds of FEC and then three rounds of Taxotere, with Herceptin, and the last three rounds put me into menopause (I was close, being 49). The end result is that I am drier than the Sahara Desert in the vaginal region, and intercourse is very painful. Thanks to those of you who suggested olive oil and coconut oil. I have 1005 natural argan oil in my bathroom, too, so I am going to try out these remedies.
Dx
5/9/2012, IDC, 3cm, Stage IIA, Grade 3, 0/6 nodes, ER+/PR+, HER2+
Surgery
5/27/2012 Lumpectomy: Left
Chemotherapy
7/27/2012 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Hormonal Therapy
2/14/2013
H
hipline
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Nov 2010
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177
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May 4, 2022
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Dec 30, 2012 09:29PM
hipline
wrote:
My onco gave me Creme de la femme. It's an all natural lubricant created by a doctor. You can buy it on Amazon.
Pleomorphic ILC, Onco DX score 16
Dx
11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2-
Surgery
12/13/2010 Mastectomy; Mastectomy (Left); Reconstruction (Left): Silicone implant
Hormonal Therapy
1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
1/23/2014 Femara (letrozole)
Surgery
12/5/2018 Mastectomy; Mastectomy (Right); Reconstruction (Right): Silicone implant
S
SheChirple
Joined:
Oct 2011
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948
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Dec 27, 2014
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Dec 30, 2012 09:47PM
SheChirple
wrote:
lhinz asked about desire. Well, I have taken the tact of use it or lose it. I may not be intensly passionate, or ready to spark an evening, but I find that if I 'go with the flow' I'm not disappointed.
It truly helps that my husband understands and does all he can. Just before Christmas he drew me a bath, with candles, wine and chocolates. He came downstairs, took me by the hand, escorted me up to the bath, slowly undressed me and got into the bath with me....three hours later........we slept well that night.
Romance!!! That is how to spark the desire.
A smile is the most beautiful curve on a woman's body.
Dx
10/14/2011, IDC, 1cm, Stage I, Grade 1, 0/6 nodes, ER+/PR+, HER2-
Surgery
11/28/2011 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Surgery
7/23/2012 Reconstruction (left); Reconstruction (right)
Surgery
8/14/2012 Reconstruction (right)
Surgery
5/24/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Surgery
6/9/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
M
mclark55
Joined:
Apr 2012
Posts:
167
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Sep 19, 2016
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Jan 5, 2013 05:16PM
- edited
Jan 5, 2013 05:17PM
by
mclark55
SheChirple - You go sister! Awesome - we all need a husband like yours!
Re the Creme de la Femme - I got all excited about what I thought was going to be a great new product we could use. Did some research, here's the list of ingredients that are in it - from their website: Creme de la Femme is a blend of extremely pure mineral oil and pharmaceutical-grade petrolatum combined with paraffin and ceresin (cosmetic waxes). So Creme de la Femme is an oil-based vaginal lubricant that remains semi-solid at room temperature. Then the instant it touches warm skin, it melts into silky, sheer moisture. Unlike other vaginal lubricants, Creme de la Femme contains no alcohol, dyes or glycerin. All ingredients used in the formula are FDA monographed and registered.
The mineral oil and petrolatum worry me a little - being products of the petroleum industry they are generally known in natural healing circles to be a problem - petroleum based chemicals exude synthetic estrogen (known as xenoestrogens). These bad estrogens are absorbed thru the skin and accumulate in our organs. They also affect our respiratory system and can play havoc with the hormone balance. I've got a whole article on my website about xenoestrogens, here's a link:
http://marnieclark.com/protect-yourself-from-xenoestrogens-estrogen-dominance/
I believe I'll stick with the organic coconut and olive oil.
Love and light, Marnie (MarnieClark.com)
Dx
4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+
Surgery
4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap
Chemotherapy
10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
U
udpt82
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Oct 24, 2021
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Jan 13, 2013 11:46AM
udpt82
wrote:
I can't say how timely this is and how happy I am that I tripped upon this thread. I was on Tamoxifen from February 2009 until early February 2012 and had no significant lubrication issues. I will say the libido was poor though. Started Armidex February 2012 and have developed lubrication issues. I don't feel dry during the day but have trouble during intercourse.
Truth be told, I am still uncomfortable having these discussions (even at 53) but am seeing a new female gyn (supposedly with a holistic approach) in April and will discuss it with her. I will check with my insurance and maybe try to move the appointment up.
Am I correct, that most people are suggesting that oils or other products be used on a regular basis, even if my trouble is only during intercourse? Are there any that can improve comfort and libido?
I am kind of at a loss but any info is appreciated.
Thanks
C
Cure4all
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Jul 2008
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1
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Apr 28, 2015
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Feb 2, 2013 05:06PM
Cure4all
wrote:
Hello Ladies,
It has been quite a while since I have posted on this board but I am feeling the need to connect with some of you in similar situations.
Feeling the same on all aspects of what has been discussed. Since dx, I've been thrown into surgical menopause (2010) so am feelng the vaginal dryness, etc. I recently went to the GYN (she focusses on women previously dx with breast cancer) and she prescribed Estring for the vagina. She said that it is to strengthen the vaginal wall as it thins as we age and go through menopause. As far as lubricants, she mentioned that Replens, or any of the natural ones will work as well as olive oil. Anyone else use this or heard of Estring?
K
Kay_G
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Feb 7, 2021
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Feb 2, 2013 05:34PM
Kay_G
wrote:
Someone suggested I use coconut oil. I have just started trying it, and so far so good!
Well that is a pie crust promise, easily made, easily broken. Mary Poppins
M
mclark55
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Apr 2012
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167
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Sep 19, 2016
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Feb 4, 2013 02:06PM
mclark55
wrote:
HI Cure4all - I hadn't heard of Estring before so I looked it up. Did you say you had breast cancer? If that's the case, I doubt I'd be using Estring - have a look at this link to see what is said about it: www.rxlist.com/estring-drug.htm . Just thought you should know!
Sending hugs,
Marnie
Love and light, Marnie (MarnieClark.com)
Dx
4/2/2004, IDC, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR+
Surgery
4/21/2004 Lumpectomy: Left; Reconstruction (left): Latissimus dorsi flap
Chemotherapy
10/31/2004 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex)
