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Topic: Pagets disease of the nipple or breast under 50?

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

Meet others in this age-range who share similar life issues.

Posted on: Mar 3, 2012 04:57PM

Dlia wrote:

Has anyone under 50 been diagnosed with pagets disease?

Dx 6/30/2011, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2+
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Mar 3, 2012 05:23PM Snobird wrote:

Sorry I was 56 whendx as a recurrence.

Dx 10/2006, Paget's, <1cm, Stage 0, Grade 3, 0/7 nodes, ER+/PR-, HER2+ Surgery 12/20/2006 Lumpectomy: Left Surgery 2/15/2007 Lumpectomy: Left Radiation Therapy 3/7/2007 Surgery 12/6/2010 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 11/17/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Mar 3, 2012 05:41PM Dlia wrote:

Can I pm you?

Dx 6/30/2011, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2+
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Mar 3, 2012 05:58PM Dlia wrote:

Is there a forum for pagets disease of the breast?

Dx 6/30/2011, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER-/PR-, HER2+
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Mar 4, 2012 07:54PM Dulie wrote:

Hi Dlia,

I was just looking for a forum with other bc sisters with Pagets.  I'm 47 and am recovering from a bilateral mastectomy (I can't remember all the abbreviations the forum uses and the pain pills are making me fuzzy) and had both my nipples removed.  My path report says Paget's, IDC and DCIS.

 From what I have been reading Paget's is uncommon and I am not sure there is a specific support group on this site.  maybe one could be made?  Anyway, I had never heard of Paget's and I had no symptoms... well, an occassional slight itch but not even on a daily basis.  Surgeon is just as stunned... 

I mostly lurk and with all going on here and recovery I don't reply much but after today I realize I'm not doing so well winging this pretty much alone though many caring people are about me...

Let me know if you discover a group or such... Take care!

Mum says I've always been an overachiever. DX'd with IDC, DCIS, Paget's and Papillary BC. Two tumors RT breast, one benign tumor LT breast. Stage 1c. BMX 2/23/12 w/clean margins. Now the journey of Tamoxifen and getting back on my feet. Dx 1/4/2012, 1cm, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Mar 7, 2012 02:06PM SandyInNj wrote:

I did and was diagnosed at the age of 39.  I was bleeding from the nipple, no other symptoms.

Hugs ~Sandy~ Dx 9/4/2002, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
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Mar 7, 2012 02:16PM EileenKaye1 wrote:

I had paget's==irritation on nipple--15 years ago.  Lesion was .6cm--I felt this tiny mass 1 1/2 years before my doctor recognized it.  He said I was imaging little lumps.

I'm more aggressive in making sure I get proper medical care these days.  Eileen

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Jun 25, 2014 11:18PM bluepalace wrote:


I had it in my 20s. First, at 23, a benign mass--left.

At 26, and six months apart, bloody discharge from R and L nipples, so back in the OR twice to have all milk ducts removed. Negative with cell changes.

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