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Topic: Ovarian Cysts-Decision to make?

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

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Posted on: Aug 31, 2012 09:14AM

tiff2008 wrote:

My 5 year bc anniversay is Feb 2013, I stopped Tamox early (8 months ago) due to the uterin thickening and a couple D&C's.  This past month I had my reg vag ultasound and they found  a couple ovarian cysts, gyno wanted to repeat ultrasound in 3 weeks.  Repeated that today, the ovarian cysts was smaller ( I had a period between the 2 ultrasounds), gyno was happy cyst was smaller but wants me to think about some options...1. come back again in 3 months, 2. Hystrectomy or 3. a CA125 test, which we all know has many false positives.  So I have to make a decision what to do??  I made an appt with my onocologist to discuss and get her thoughts as well.  I'm scared to have a hysterectomy.  

Has anyone else had these experiences?

Tiff

Dx 2/8/2008, IDC, 1cm, Stage I, Grade 2, 0/7 nodes, ER+/PR+, HER2-
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Aug 31, 2012 10:15AM SpecialK wrote:

Sorry you find yourself with decisions to make. How old are you, and would your onc put you on an AI if you had a hysterectomy? Are you comfortable with watch and wait? I always had cysts on both ovaries from a pretty young age, and had one large one rupture when in my 20's.  My 23 year-old daughter also has them routinely.  I had a hysterectomy/oopherectomy when I was 45 because I had a large number symptomatic fibroids in my uterus.  At the time the doc casually suggested taking the ovaries as well, based on my age.  The US I had 6 months prior to the surgery did not show any ovarian issues, but I had a 3 cm mass in the rt. ovary at post-op path.  It was a pre-malignant type (dermoid) so I was happy to see the ovaries gone.  Also, happy that when dx'ed with BC I did not have to make the decision you are making right now.  Good luck!

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Aug 31, 2012 10:45AM tiff2008 wrote:

I am 47 and I guess I'm okay to watch and wait.  I'm not sure what kind of cysts they are, not sure gyn can tell from a ultrasound?  Gyn did mention since I was 47 I was getting close to menopause anyway.. I have an appt with my oncologist next week and hopefully I'll get some good feedback from her from a professional stand point :)  Did you have any problems with your hysterectomy/ooph?  Are you on an AI now? If so, how is that going? 

Dx 2/8/2008, IDC, 1cm, Stage I, Grade 2, 0/7 nodes, ER+/PR+, HER2-
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Aug 31, 2012 11:19AM SpecialK wrote:

tiff - I did not have any problems with the hyst/ooph.  As I said I had symptomatic fibroids which involved a heavy cycle that lasted for months, I looked like I was about 5 months pregnant because I had so many fibroids, had GI issues, so I was happy and relieved to have it dealt with.  I had an abdominal surgery so it was like recovering from a C-section.  There are a number of ladies who have had the DaVinci surgery and said the recovery was easy.  I started on Femara and stayed on it for a year.  I did have joint aching, which was not horrible but my onc felt it was worth trying Arimidex to see if it would ease up, so I switched and it was slightly better, so I am on it now.  The joint issue is really the only SE I have, and it is not bad - occasional insomnia but I am not a good sleeper anyway!

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Aug 31, 2012 11:22AM MiniMacsMom wrote:

Ask for an OVA 1 test its a CA125 plus other combined tumor marker test.  It is apparently more accurate and very fast to complete.  I had one since I was having lots of hemorhagic cysts and I am BRCA 2+.  My regular OB ordered it, I haven't seen a gyn onc. 

Diagnosis: 10/25/2011, IDC, 9cm, Stage IIIa, Grade 3, 4/15 nodes + Rotter's Node, ER+/P+-, HER2-, BRCA 2+
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Feb 3, 2013 07:38PM B123 wrote:

I have been on arimidex for one year now, doing fine and on zoladex shots until my hysterectomy next week. I had cat scan one month ago to find out I have a 2.8cm cystic structure on right adnexal region with non specific free pelvic fluid. Also a tiny mm gallstone on gallbladder. My doctor said its nothing to worry about and it's common but I'm freaking out! Is this normal or is it something to worry about? Also said I show hypodensities in the liver, which again she said are normal and everyone has them? I am definitely having the hysterectomy, I am 42 and can't live with the fear!

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-
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Feb 3, 2013 08:10PM B123 wrote:

I do have to ask, any of you who have had a full hyster, does your bladder really fall and cause incont problems? People I know who have had one have been fine..

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-
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Feb 3, 2013 08:12PM SpecialK wrote:

B123 - I had a total abdominal hyst/ooph 12 years ago, no incontinence problems.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Feb 3, 2013 08:21PM - edited Mar 20, 2013 11:30AM by Shrek4

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Feb 3, 2013 08:21PM B123 wrote:

Thank you Special K, I know it's the right thing to do, this new cyst scares the day lights out of me now..

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-
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Feb 4, 2013 06:59AM B123 wrote:

Day, thank you for sharing your story. It doesn't make you nervous to just wait and see? I'm going crazy and want it out. I am nausea a, back pain pelvic pressure. I don't know if it's from the cyst, the gallstone or these hypodensities? Very worried

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-

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