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Topic: Do we ever get to say we are "cured"?

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

Meet others in this age-range who share similar life issues.

Posted on: Jan 22, 2014 11:56PM

emmahandy wrote:

I am tired of cancer.  When do we get to say we are cured and bid farewell to our oncologist?

Life is tough - wear a helmet. Dx 8/1/2006, IDC, 2cm, Stage IIB, Grade 3, 1/7 nodes, ER+/PR+, HER2- Surgery 8/14/2006 Lumpectomy: Right Chemotherapy 8/31/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 1/14/2007 Breast, Lymph nodes Hormonal Therapy 7/14/2007
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Jan 23, 2014 05:29AM Springlakegirl wrote:

You will get there!  Keep your head up and know that you will be a stronger person when you are done with this!  Sending good thoughts your way!!

deniseneish.com

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Jan 23, 2014 05:40AM Morwenna wrote:

Two days ago I was the same ..... got very angry with everything, sooooo tired of cancer, and everything to do with it.

Today, for no particular reason, I am almost euphoric. I'm scaring my cats! :)

Talk about roller-coasters! ;)

Dx 11/8/2012, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER-/PR-, HER2- Surgery 11/23/2012 Lumpectomy: Left; Lymph node removal: Left Surgery 12/12/2012 Mastectomy: Left Chemotherapy 1/9/2013 AC + T (Taxol) Radiation Therapy 7/22/2013 Breast, Lymph nodes Surgery 1/6/2015 Prophylactic mastectomy: Right; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap
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Jan 26, 2014 11:42PM emmahandy wrote:

lol Morwenna.  Thanks for sharing.

Life is tough - wear a helmet. Dx 8/1/2006, IDC, 2cm, Stage IIB, Grade 3, 1/7 nodes, ER+/PR+, HER2- Surgery 8/14/2006 Lumpectomy: Right Chemotherapy 8/31/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 1/14/2007 Breast, Lymph nodes Hormonal Therapy 7/14/2007
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Jan 26, 2014 11:57PM momand2kids wrote:

in 2009 my onc said-- we can cure this---

I fully expect, when I see her in May at the 5.5. year mark that I will go off femara and maybe make plans to see her annually like my pcp and gyn.... that is OK with me.

I have considered myself cured since the surgery/treatment.  I know it could return, but the odds are on our side... so I decided that it won't.. and if it does, I will deal with it then....

The further away you get from it, the further away you are!!!

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Jan 27, 2014 01:44AM emmahandy wrote:

I saw a gyn once when I started Tamoxifen but she said it was not necessary to see a gyn.  Cool with me.  The fewer docs the better.  Why did you take Femera rather than Tamoxifen, momand2kids?

Life is tough - wear a helmet. Dx 8/1/2006, IDC, 2cm, Stage IIB, Grade 3, 1/7 nodes, ER+/PR+, HER2- Surgery 8/14/2006 Lumpectomy: Right Chemotherapy 8/31/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 1/14/2007 Breast, Lymph nodes Hormonal Therapy 7/14/2007
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Feb 1, 2014 09:59PM momand2kids wrote:

emma

took femara and lupron because I had had a blood clot years ago and did not want to risk that with tamoxifen.... 

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Sep 18, 2014 04:15PM - edited Sep 18, 2014 04:16PM by RaiderGirl

I was told by not one but two MO that bc as well as other cancers are never cured.  The definition of cured is "permanently freed from illness".  However, unlike some cancers,  bc patients can celebrate remission until old age or something else calls our number. As for BC with mets, even remission is not possible but treatment can keep the beast leased until hopefully old age gets you first. 

Somehow I am ok with the term remission. 

Remission is good. I have opened the door for her and asked her to sit a spell. 

BC is an ugly , painful, scary disease and it can't be made better by wearing a cute little pink T-shirt. When I see a sea of pink in a BC walk I get even madder. Look how many have been hurt by BC and still no closer to a cure than a decade ago. Dx 6/26/2014, IDC, 3cm, Stage IIA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Radiation Therapy 8/26/2014 3DCRT: Breast, Lymph nodes Hormonal Therapy 12/7/2014 Aromasin (exemestane)
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Sep 18, 2014 04:34PM farmerlucy wrote:

I found listening to the BCO podcast from last December's Breast Cancer Symposium very uplifting. The BCO medical advisor uses the words cure and curative quite often. Look, I know it can come back, but until it does I've decided I'm cured. If you haven't listened to the podcasts you should. They are really interesting. http://www.breastcancer.org/community/podcasts/sa...

I hope you are having a good day. I'd better get off my butt and do something today. I've got a lot of living to do. Loopy

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Nov 1, 2018 07:58PM Walden1 wrote:

Hi, I’ve also been wondering what it would take for my MO to say definitively “YOU ARE CURED!”. My mother had triple negative twenty years ago and they told her “you are considered cured after 5 years. Being highly ER PR positive I get the impression I will never have that kind of reassurance.

When I get in this mood I try to remember the advice I heard from an MO online who said “I tell my patients they are survivors from the day they are diagnosed”. I take comfort in his comment because just getting diagnosed is a significant part of the battle, and I’m so lucky I found it. I say luck because my mammogram couldn’t find my two-2cm tumours due to breast density. If I hadn’t felt them they might never have been found. Sometimes I get really angry that the mammogram didn’t work for me, and I wasn’t advised about other screening options for dense breasts and my personal risk due to family history. That said, what matters is that it was found, and from that point of view, I do already feel like a survivor.

Dx 12/28/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Chemotherapy 1/10/2018 AC + T (Taxol) Surgery 5/2/2018 Mastectomy: Right Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy
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Nov 2, 2018 06:37AM Traveltext wrote:

My onc said I’m cured when the cancer cells are out of my body. When asked if that was possible, she said not currently. She’s not known for her bedside manner! I’m happy with the term remission and am hoping stay there!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Nov 2, 2018 02:05PM edwards750 wrote:

I’ve heard multiple times there is no cure. I’m okay with remission I guess because I know it’s a temporary state and the beast could come back but I refuse to live my life agonizing over the possibility.

I’ve also heard about the 5 year milestone and in fact when I reached the 5 year mark my MO told me I could stop taking Tamoxifen. Yea! I don’t see her anymore. I have my annual mammo but that’s it. I am 7 years out last August.

So maybe we shouldn’t mince words whether it’s cured or remission and be grateful we have dodged the dreaded beast’s return so far.

Diane

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Nov 2, 2018 09:12PM JoE777 wrote:

My onc said I'm not curable, nor will there be remission, but she was adamant that the disease is manageable and treatable with many years of quality of life. No Evidence of Disease seems to bewhat she is saying and can take that and run with itHappy

Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/3/2012 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 1/7/2018 Femara (letrozole) Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes Chemotherapy Other Radiation Therapy External: Bone Targeted Therapy Kisqali

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