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Topic: vaginal physical therapy and estrogen

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

Meet others in this age-range who share similar life issues.

Posted on: Jul 27, 2014 08:17PM

momand2kids wrote:

Hi

wondering if anyone has done this?  My gyn says I will need to as my lower regions are "shrinking" as a result of chemo, AI's etc.  She recommended a therapist who she says is great--- would love to hear if anyone else has done this work?

I am also thinking about asking my onc to allow some sort of estrogen to be reintroduced--it seems that maybe vagifem is the lowest dose kind?  Any thoughts about that?  I am off the AI and was ER +... but the dryness and the shrinkage really make intercourse almost impossible.  Have been working with coconut oil, olive oil and bought some of the items I saw in another thread.... but still need help!!!

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Jul 28, 2014 01:39PM ladyboss1997 wrote:

I use Replens. I use it 3 times a week, and lots of lubricant during sex. It has worked wonders.

Getting on with Life! Dx 6/2/2011, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2-
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Jul 30, 2014 09:30PM momand2kids wrote:

Thanks Lady-I use it too- almost every day---- probably need to "practice" more.....

Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Jul 31, 2014 06:24AM rgiuff wrote:

My oncologist was 100% in favor of the idea of using vaginal estrogen.  My GYN prescribed a compounded mix if estriol, estradiol,  and testosterone.  He explained that this combo is the closest to what was being produced naturally in that area prior to menopause. Bad thing about it is that it's only partially covered by insurance (costs me about $25 for a 3 month supply)  I do find that it works well and seems to help sensation too, without any side effects. I  had previously tried the estrace cream, which was almost completely covered by insurance,  but was also messier and gave me gas pains.


 . That o

RoseG Dx 4/2008, IDC, <1cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2- Dx 4/6/2008, IDC, Left, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 5/19/2008 Lumpectomy: Left Radiation Therapy 8/19/2008 Breast
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Aug 16, 2014 01:30PM Keryl wrote:

I use Estring ring; my onco and gyno said it's localized and not to worry. It works well but take some time to kick in (Like weeks) It is covered by insurance but pricey and not generic, so you still pay a chunk. I use replens also, which has no hormone properties but makes things feel better. I will ask my onco on 9/9 about some of your suggestions to ensure I am on the lowest possible. Anyone know anything about Estring? 

Dx 5/13/2008, IDC, 2cm, Stage II, Grade 3, 4/9 nodes, ER+/PR+, HER2- Surgery 7/29/2008 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 10/1/2008 AC + T (Taxol) Radiation Therapy 3/1/2009 Breast, Lymph nodes Surgery 9/14/2009 Reconstruction (left); Reconstruction (right) Surgery 4/24/2011 Reconstruction (left) Surgery 5/15/2014 Reconstruction (left): Latissimus dorsi flap
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Aug 20, 2014 08:07PM glennie19 wrote:


momand2kids:

I haven't had that type of PT, but the PT I go to for a different problem actually specializes in the nether regions.  Urinary and vaginal problems. I would give the PT a try. A lot of muscles down there!

Fibromyalgia and Truncal Lymphedema,,, some of the fun things I live with. Total hysterecomy 9/29/14 Prophy MX Righty 11/30/17 Dx 6/27/2013, Paget's, 1cm, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Surgery 8/7/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left Dx DCIS
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Aug 22, 2014 10:20PM brady wrote:

Anyone with "vaginal atrophy" caused by Femara (for estrogen positive breast cancer) tried using Osphena??

Dx 12/30/2011, IDC, 3cm, Stage IIIB, Grade 2, 13/19 nodes, ER+/PR+, HER2+
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Aug 22, 2014 11:13PM glennie19 wrote:

Don't know anyone who has used Osphena, but this is what Clinical Pharmacology has to say:

Ospemifene has not been adequately studied in women with breast cancer; therefore, it should not be used in women with known or suspected breast cancer or with a history of breast cancer. Unopposed estrogen therapy increases the risk of endometrial cancer in women with a uterus.

Fibromyalgia and Truncal Lymphedema,,, some of the fun things I live with. Total hysterecomy 9/29/14 Prophy MX Righty 11/30/17 Dx 6/27/2013, Paget's, 1cm, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2- Surgery 8/7/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left Dx DCIS
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Aug 23, 2014 07:52AM bevin wrote:

I use vaginal estrogen suppositories approved by my Oncologist and GYN who stated the estrogen is limited and localized. They were both comfortable with the low levels in this prescription. For the first two weeks you use it 5 days a week, then after twice a week. It is expensive, insurance covers, but its a high co-pay.

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 5/1/2010, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/9/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/9/2010 Breast
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Aug 24, 2014 12:23AM gale1525 wrote:

I have used Vagifem for  3 years I am not sure how much it has helped. I did go to a P.T. for urine control and it helped  a lot. I would highly recommend it.

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