Jun 25, 2018 07:13AM SPDGirl wrote:
Hello again MissMelissa90 and thanks for starting this thread.
I am a 45 year old wife and mother of a 17 year old (with cognitive and processing delays) and was diagnosed with 2 independent spots of IDC in March of this year via MBI, mammogram, and numerous ultrasounds and 2 biopsies.
I had a grandmother that passed away from breast cancer in her late 40's so I have been attentive to mammograms for many years now. I also originally did genetic testing when I was 40 and rested easier finding out I didn't carry any BRCA genes, but that security was short lived getting a breast cancer diagnosis in spite of this. I just received results of updated genetic testing and still don't have any identifiable genetic markers for breast cancer.
I chose bilateral mastectomy for several reasons. I didn't want to try and figure out being lopsided, I wanted to avoid radiation, and my husband and I wanted to feel more secure that there was not a good chance of getting cancer in my left breast. We feel even better about this decision post BMX as the biopsy of my "good" breast ended up showing DCIS that had not been detected before surgery.
We decided against reconstruction primarily because of my issues with Sensory Processing Disorder. I have a lot of tactile issues with the chest area being a main component. I have not been able to stand a bra or form fitting clothing my whole life, so have tackled this by layering and being creative to still function and be modest. Only those closest to me know of this struggle. Therefore, my husband and I thought that going flat might even have a silver lining eventually where I could wear things, especially in the summer, that I have never been able to. I am still praying for that result, but I was unexpectedly hit with chest tightness after bmx that is the equivalent to or worse than wearing a bra which is a worse case scenario for me .
On the positive front, it has just been determined that I don't need chemo. Tamoxifen is recommended, but I haven't decided yet if I am going to go that route or not. We are currently waiting on some results of potential blood clotting genetic issues that will play a part.
I had 3 sentinel nodes removed on my right side and 2 auxiliary nodes. Physically, I don't feel too lumpy, but seem to have almost a concave appearance. Almost as if my sternum is quite prominate in the upper middle of my chest and each side below where my breasts were is sunken in, but smooth from middle of my chest moving to under my arms.