Meet others in this age-range who share similar life issues.
Posted on: Jul 12, 2019 09:16PM - edited Jul 12, 2019 09:17PM by hope2learn
concern for breast cancer survivors and menopausal women
Many of us with breast cancer , as well normal menopausal women have problems with vaginal dryness ( ergo also sex) and possible other pelvic floor issues .
As all of us know, this is the result of the estrogen withdrawal either brought on by aromatase inhibitors or menopause.
I think Estrace cost roughly $186, the generic versionof estradiol from Mylan costs about $109
Even the compounded versions of the cream are going up and up.
This is a particular crucial subject matter for all breast cancer patients who suppress estrogen with Aromatase inhibitors. And it it not just about vaginal dryness and a healthy sex life . If you do not use the estrogen regularly, you can end up with some kind bladder dysfunction. So, you really do not want to skimp on that estrogen cream and use the amount prescribed.
I personal , in order to live a somewhat normal life, I spent a fortune ( for me it is ) per month out of pocket for vaginal moisturizers and vaginal estrogen cream . My drug plan does not cover it.
It is even more maddening as the amount of the drug "estradiol" per gram in that cream is absolutely minimal ( 10 micro-gram / gram).
But what can we do ? That is why all of us who need it pay it.
Here is Dr. Kirtly Parker Jones from the University of Utah talking about this matter
To quote her :
"Now, if I wanted to take estradiol, my natural hormone, by pill for hot flashes, I could go to Walmart and get a 90-day supply for $10. If I wanted to use the same hormone vaginally, prepared to be absorbed by the vagina and this isn't rocket science, drug technology, it will cost $520 depending on how the estradiol is delivered. Now, $520 is the upper end, $300 is the lower end.
So what is the reason that the pharmaceutical industry puts such high prices on vaginal estradiol? It's because they can. "
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Jul 13, 2019 12:00AM coraleliz wrote:
And I thought my $60 copay on Estrace was too high. I used half the amount prescribed & every other day instead of every day. I didn't follow the link, it will make my blood boil for sure!
Jul 13, 2019 06:27AM gb2115 wrote:
It's not just vaginal cream, so many meds are unaffordable. I see it all the time, Medicare claiming something is "covered" at a tier 5, but the OOP cost is over $1000 a month. Ridiculous. Don't waste our time saying our patients meds are "covered."
I don't know what to tell you, since it's not covered by your plan maybe check the brand to see if they have a coupon for it being uncovered? Drug companies do that sometimes.
Jul 13, 2019 09:07AM santabarbarian wrote:
Wow, mine is covered - $10 copay - so i had no idea of the sticker price. Ridiculous.
Jul 13, 2019 09:33AM letsgogolf wrote:
I was using Estrace when I was diagnosed with breast cancer and was told in no uncertain terms that I should never again use it. I noticed that several of you are ER+, PR+. Is your oncologist aware that you are using this?
Jul 13, 2019 12:16PM Beesie wrote:
Letsgogolf, I was wondering the same thing. I remember talking to both my MO and my gynecologist, and both were very clear that these products were off limits because my breast cancer was highly ER+.
This is interesting, particularly the reference to women to take AIs: https://www.acog.org/Clinical-Guidance-and-Publica...
Jul 13, 2019 12:38PM letsgogolf wrote:
Beesie, That is exactly what I was told. In fact, I had issues with dryness prior to my breast cancer, liked Estrace and argued at length wanting to continue using it. Two doctors from my team talked to me, pretty much telling me that it carried too much risk and could possibly undo some of the effects of Arimidex. I remember researching myself pretty extensively at the time which was over 2 years ago and came to the conclusion that they were correct. Even the packaging inside the Estrace warns about increasing the risk of breast cancer. I guess it's up to each of us to do our own research and figure out if we are willing to take the chance.
Aug 12, 2019 02:34AM WC3 wrote:
Testosterone gel is about $250 to $700 for a 30 day supply for a man with low testosterone. However the maker of Androgel has a voucher program for men only that reduces it to $20 or something like that.
Aug 12, 2019 03:38AM - edited Aug 12, 2019 03:39AM by Olma61
Order online from Canada. (But this does seem risky for ER+ women)
Oct 3, 2019 09:12PM muska wrote:
I believe vaginal creams with low estrogen are considered an acceptable option if 'regular' lubricants are not providing the desired effect. I was told by my oncologist she would prescribe if I needed it. So far, I manage by using LiquiBeads two/three times a week.
Check this recommendation: Use of vaginal estrogen in women with history of breast cancer
Oct 4, 2019 12:30AM ksusan wrote:
My oncologist and an oncological gynecologist encouraged me to use it, but I won't.
Nov 12, 2019 12:05PM - edited Nov 12, 2019 12:14PM by wallycat
I am reading that vaginal 10mcg or 4 mcg pessories are acceptable; cream I was told is not "allowed" (my onco) as it can be upwards of 1mg. There are some articles showing that women on AIs show an increased blood level for the first 2 weeks on the inserts, but it comes down in most (though not all) women after 2 weeks. Still not as low as not taking anything, but there is quality of life.
I finally went on Imvexxy (it offered a mfg. coupon so made it $70/3 months) and am using as little as possible. For me, it was my bladder. It was quality of life....you can't leave the house and you have to pee constantly...it was ridiculous---never mind sleep!
I'll wean to the least amount and try to skip a month here and there. That will help with the financial and the health stuff.
The latest goodrx showed vagifem over 120
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