Topic: Anyone do endometrial ablation?

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer — Meet others in this age-range who share similar life issues.

Posted on: Aug 19, 2019 06:40PM

Posted on: Aug 19, 2019 06:40PM

HopeWins wrote:

I was on the pill for the last few years due to really heavy/crampy periods. Went on the pill, which took care of it. Now that I have an ER 100% positive cancer, that's out the window. Anyone try ablation? My OB mentioned it as an option a couple years ago. Like I need another medical procedure... but getting my period for the first time since stopping the pill has me thinking I might need to do something.

Any thoughts/opinions/experiences welcome.

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Oct 31, 2019 07:58PM notarobot wrote:

Hopewins ,I really hope you get some relief too. I am sorry if my sharing scared you off. Like I said some things work awesome for some, sometimes its not so great. I just wanted to share a not so great side, to encourage you to really read the fine print ,so to speak. I was NOT informed that anything like what I m dealing with now was a possibility. Good luck and my prayers are with you.

Dx 2/3/2019, IDC, Left, 4cm, Stage IIA, 0/1 nodes, ER+/PR+, HER2- Surgery 4/13/2019 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 5/30/2019 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2019
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Nov 1, 2019 07:10AM summerangel wrote:

Notarobot, thank you for posting that link, it was very informative! My tone sometimes comes off rather harshly online. I'm a matter-of-fact kind of person, and that wasn't my intention. I am definitely glad I haven't had any issues, too, and I'm sorry you have! I did have my ablation under 40 and had a tubal at 30, so I have two out of the 3 risk factors for a later hysterectomy. Of course, the article didn't say whether those who later had a hysterectomy did so because of abnormal bleeding or other issues (specifically continued significant menstrual pain). I would guess that a good number had continued pain, as an ablation does not change anything except bleeding.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 3/27/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right) Surgery 6/1/2015 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 8/28/2015 Reconstruction (Left): Fat grafting, Silicone implant; Reconstruction (Right): Fat grafting, Silicone implant Surgery 12/4/2015 Reconstruction (Left): Fat grafting, Nipple reconstruction; Reconstruction (Right): Fat grafting, Nipple reconstruction
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Nov 1, 2019 11:55AM MBPooch wrote:

I had my ablation in my GYN's office under twilight. I was only out for about 10 min. the procedure itself is only a couple minutes. Recovery was so easy and I've never gotten my period since.

Dx 10/16/2017, DCIS/Paget's, Left, 1cm, Grade 3, 0/3 nodes, ER+/PR+ Surgery 11/29/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 5, 2019 07:45PM - edited Nov 5, 2019 07:49PM by notarobot

we are all different, no doubt. I just wanted the young lady to look at every aspect of the treatment she was being suggested to having. I went in with sunshine and rainbows of getting rid of the horrible periods I have had for DECADES, ended up with "normal periods" after that, which to tell you the truth, I was HAPPY that I could go a day without bleeding thru my pants, or get at least 4 hours of sleep and not bleeding out all over my sheets.

the fact that I have/ am fighting breast cancer that IS ER positive does make a difference. and I truly regret not just having the hysterectomy done years ago. Id rather deal with hot flashes any day... and YES, OMG, Ive had the hot flashes.

Summer Angel, I think we are all here to help one another get thru this ,whatever part of the journey we are on.. the written word is all in how your mood is when you read it. I dont think anyone is here to be mean, or judgmental , lets just help each other.

Dx 2/3/2019, IDC, Left, 4cm, Stage IIA, 0/1 nodes, ER+/PR+, HER2- Surgery 4/13/2019 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 5/30/2019 Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2019
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Nov 9, 2019 10:25AM - edited Nov 9, 2019 11:17AM by caschurr

I am not sure if my situation will be of any help to you, but thought it is worth mentioning... I had a uterine ablation 6 months after the birth of my last son... I bleed till I was anemic. Started the day of his birth until a week or 2 after I had the ablation. (Almost 7 months straight of moderate to heavy bleeding) I was 32 at the time..38 now. For a few years after the procedure I did have very light periods every month, maybe 3-4 days of light bleeding, but they were always prolonged by non stop spotting for another week or so after. It has progressively worsened these last couple years to a more moderate flow for 10-15 days every 21 days.. often with breakthrough spotting on the 6 days I wasn't bleeding moderately. I've always had fluctuations in Hormone levels, but once I was done having kids no doctor seemed to care much about my hormones and I tried hard to ignore my symptoms too!! So 6 years post ablation I was back with full blown, prolonged periods, and a bunch of other issues which revealed estrogen dominance. My body is not producing nearly any progesterone. Unfortunately, No progesterone to counter act estrogen has recked havoc within my body, the breast and gyn oncologist’s have it listed as “estrogen excess”, I assume no different than someone taking extra estrogen hormones, its been determined my high circulating levels of estrogen is what caused my uterine lining to regenerate, plus growth of another uterine fibroid. I was started on 200 mg of progesterone nightly to see if I could hold off on a hysterectomy until my youngest started kindergarten....it did work pretty well over the last 8 ish months. My bleeding stopped almost immediately! Only was having a day or 2 per month of spotting...and maybe 3 months out of the 8 I'd have a few days to week of a very light period. I wish I could continue, but since then changes and pre-cancers have been found in my breasts. Thanks again to the many years that my estrogen had the upper hand. Therefore, now I have no choice, I will be having a total hysterectomy..including both ovaries. Boo!! I am not sure if your doc would entertain the idea of checking hormones to see if progesterone would help, maybe just short term to get you some “extra" time or not. I know in my case, I can not continue regardless of how low the risk is of having a precancer becoming a cancer, due to a connective tissue disorder leaving me with only surgical options...without the use of any radiation ever and chemo only if it's a last resort. Stinks. On a side note, my sister in law had an ablation around the same time I did.. age 32, she has had no problems and no periods since! She also never had any history of hormonal imbalance either. My mother had one around age 40... 20 years later, no problems for her either! No history of hormone imbalances for her either, but she does have same connective tissue disorder.Sending you all my best thoughts and prayers

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Nov 10, 2019 06:36AM HopeWins wrote:

that's very interesting. Thanks for sharing. My cancer was 100% ER+, but PR- I was on the pill when I was diagnosed. I think I'm a little skittish introducing progesterone to my body even though my cancer was PR- and I had a bmx. Idk, I just feel like the pill had a lot to do with my cancer. It would be good to know my hormone situation though. I have chronic sinus headaches every month with my period. I suspect I have polyps and the hormone fluctuations affect them. They were much worse when I was on the pill. A little better now, but its unpredictable.

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Dec 9, 2019 05:45PM SiameseX2 wrote:

I am looking into ablation as well, my doctor mentioned this as an option today. Even though I went off Tamoxifen in June 2018, an endometrial polyp developed a few months later (seen on ultrasound). It was very small, but by now its largest dimension is 1.5cm. I am now getting extra heavy bleeding with my period, so bad I've had to miss work. Now there is a second smaller polyp.

Next step is the ultrasound where they fill your uterus with saline. And then probably hysteroscopy.

3/27/17 DCIS grade 2/3 ER+/PR+ Dx 5/5/2017, DCIS, Right, <1cm, Stage 0, Grade 2, ER+/PR+ Radiation Therapy 6/5/2017 Whole breast: Breast, Chest wall

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