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Topic: Having trouble with gums and mouth with Prolia

Forum: "Middle Age" 40-60(ish) Years Old With Breast Cancer —

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Posted on: Apr 7, 2020 11:25AM

florida2015 wrote:

I realize this might not be correct board for this question. Maybe someone can point me to right board if no one has had this issue. I had a lumpectomy and radiation in February 2015. 
I have been given Prolia shots twice a year and haven’t had any adverse effects however I started having mouth pain 3 months ago and thought it was a cavity however I have been to two different periodontists. The second one mentioned I might have osteocronosis die to Prolia. Can anyone relate to this?  

Dx 2/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+, HER2- Surgery 3/2/2015 Lumpectomy: Left
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Apr 7, 2020 11:59AM - edited Apr 7, 2020 12:01PM by MinusTwo

florida - osteonecrosis of the jaw is a side effect of Prolia, but a rare one.

Have they taken X-rays? I mean the kind that goes all around your head & captures all the jaw & bone. If you can't get that done at your periodontist, try an endodontist. That's where I got those pictures taken when no one could figure out the continuing pain after a root canal. Turned out the same tooth had another root canal that wasn't obvious but showed on those films.

Edited to say: BTW - your original subject says gum pain. I don't think gum issues would be related to osteonecrosis of the jaw.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 7, 2020 12:10PM florida2015 wrote:

Yes the perio did that and he said it could be ONJ prescribed two antibiotics and a rinse. Nothing has worked for the constant pain. I am going to an endomtist next 

Dx 2/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+, HER2- Surgery 3/2/2015 Lumpectomy: Left
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Apr 7, 2020 12:18PM MinusTwo wrote:

Be sure your perio sends copies of the scans to the endo so they don't have to start over. Good luck.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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