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Topic: The Scar Project needs your help - please read!

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Feb 19, 2012 12:56PM

BlueCowgirl wrote:

I'm sure many of you are aware of The Scar Project www.thescarproject.org , which feautures beautiful and tasteful photographs of breast cancer survivors, scars and all. Facebook has decided that these images are vulgar and offensive, and has censored the photographer's facebook page. I am so personally offended by this - I feel like facebook is saying that my scars are something to be ashamed of.

If this is an issue that is important to you, please join the Bring Back the Scar Project Images group on facebook to unite in protesting this act of censorship. Thank you! 

Lettuce weight and sea. Dx 2/16/2011, 6cm+, Stage IIIA, Grade 2, 3/13 nodes, ER+/PR+, HER2-
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Feb 19, 2012 01:01PM angelsister wrote:

I'll look for the group blue cowgirl, i have seen those photo's. The women were tremendously brave and to censure them as vulgar and offensive is demeaning to them and all women x

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Feb 19, 2012 02:26PM Faye33 wrote:

I love the scar project!  However, that being said, there are pictures in the project I would not want my young child viewing.  Not because they are vulgar or inappropriate, but because that is a lot of physical and emotional pain for a small child to absorb.  It could create incredible fear and anxiety in some children.  Should they be censored on facebook?  I'm not sure.  I feel that it should be the parents responsiblity to know what their children are viewing through facebook, so I'm not sure censoring the pictures is putting the responsiblity where it should lie... on the parents.

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Feb 19, 2012 02:57PM Pompeed wrote:

            There are thousands of images in the Internet which are truly vulgar and offensive and downright filthy.  And those are not censored.  Adults use those sites all the time.  Billions of dollars spent on them.

            If I didn't know before why I do not belong to Facebook, I know now: it's policy is clearly one of censorship as pertains to women's health issues.  Self-appointed arbiter of what's "pretty" and what's not "pretty."

            I guess Facebook thinks adults are so out of control of their own children that they have adopted the position of nanny to censor what Facebook says should be censored.  Just in case some kid might get a dose of his mother's reality. 

            People will be demanding the banning books in libraries in this country again pretty soon.

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Feb 19, 2012 03:16PM - edited Feb 19, 2012 03:18PM by angelsister

There is nothing sexual about the photo's tho faye. I don't think they are sensationalised or ugly in any way. I agree that parents need to know what their children are viewing but there are photo's on facebook I'd struggle to explain to a young child but not the scar project pics.

as for emotional trauma? Yes i think they show reality but they also so life and beauty in the face of that reality
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Feb 19, 2012 03:20PM Myleftboob wrote:

Could they not have the FB page a group that has to be joined?  How young are kids on FB anyway.  I don't think kids would want to view these anyway no?

T/C/H 2/17, 3/9, 3/30, 4/20 then H til 1/13 Surgery 12/13/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Targeted Therapy 5/11/2012 Herceptin (trastuzumab) Hormonal Therapy 5/11/2012 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 7/15/2016, IDC, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 0/4 nodes, ER+/PR-, HER2+ Chemotherapy 7/25/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 19, 2012 03:23PM CoolBreeze wrote:

Nobody is under 13 is allowed to have a facebook account, so whether children see them or not shouldn't be an issue. Good parenting means you lock down your computer and don't expose kids to things before they are ready.  These photos are perfectly appropriate for those over 13, but if you don't think so than don't allow your child on facebook.

That said, FB is a private company and can do what they want.  My issue with this is that this already happened once, about a year ago.  A big uproar was made and the photos were put back.  So, I wonder if maybe this isn't a made-up issue for publicity?  

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV Dx 8/17/2009, IDC, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Feb 19, 2012 03:53PM DivineMrsM wrote:

Not sure how I feel about the photos being on FB.

However, I just checked out the link, looked at the images, and I have never seen a slideshow of breast scars like this.  It is just so powerful.   Very moving. Such bravery. And dignity.

You know, there is too much effing breast canser.  TOO MUCH 

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Feb 19, 2012 05:46PM BlueCowgirl wrote:

Divine MrsM - I too was very moved by the photos - and devastated that even though I am a "young" person with breast cancer, all of the women photographed are younger than I am. So saddened when I read that... 

For those of you who commented about the photos being inappropriate for facebook: are you okay with the images being on the internet at all, but just not on facebook? Would you mind explaining? Just curious, thanks.
Lettuce weight and sea. Dx 2/16/2011, 6cm+, Stage IIIA, Grade 2, 3/13 nodes, ER+/PR+, HER2-
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Feb 19, 2012 06:10PM - edited Feb 19, 2012 06:11PM by greenfrog

Didn't FB censor some woman a few years ago who'd posted info on how to check your breasts for lumps? So they are running true to form. I never have anything to do with FB - clearly it is managed by imbeciles if they regard internationally acclaimed work like the Scar Project as "vulgar and offensive". GENUINE offensive vulgarity can be found any hour of the day by just flipping on the tv for god's sakes.

Dx 5/2008, IDC, 1cm, Stage I, Grade 3, 0/19 nodes, ER+, HER2-
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Feb 19, 2012 06:54PM Faye33 wrote:

Hmmm... I didn't know that you couldn't have a facebook account until you were 13.  I guess since that is the case, I personally don't have a problem with a 13 year old viewing those pictures.  They should be mature enough and if not they should not be on facebook.  I know of kids in the 8-10 year old range which have facebook.  At that point the parents are to blame for allowing their kids to have facebook against the rules and for any content they may view which they are not ready for.

But that is my personal preference.  I believe facebook is a private company.  They should be able to decide what they want to allow on their site.  Yes, The Scar Project is educational, but there are also half nude pictures of women in it.  How would facebook fairly draw the line where some nude is ok, but others isn't?  They have every right to avoid that issue if they would like.  The Scar Project is free to have their own website where they can deal with any and all issues people may have with the pictures.

As I stated before, I love The Scar Project.  Those women are so brave and honest!  They show people who have been pink washed for so many years the reality of breast cancer.  As hard as it is to see the pain on their bodies and in their eyes, the women also emerge with a overall picture of beauty and survival that is amazing! 

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Feb 19, 2012 06:59PM - edited Feb 19, 2012 06:59PM by CoolBreeze

The way it works is when they get a certain number of complaints the software automatically removes it.  It can and often is reviewed by a human later.  I wouldn't blame facebook as they are trying to keep the pornographers off the site and with hundreds of millions of users they can't look at everything, they have to use software to manage the site.  I'm sure soon enough, like last time, somebody will review it, realize the content isn't provocotative, and put it back.

Ann's cancer blog: www.butdoctorihatepink.com .....multicentric/multifocal IDC/ILC+DCIS/LCIS/ADH Official dx? "Your breast was a mess." ~UniMastectomy/Chemo/Herceptin/Tamoxifen/Recon Almost Done! Oh wait. mets to liver 5/21/11 Now Stage IV Dx 8/17/2009, IDC, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR-, HER2+
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Feb 19, 2012 07:32PM Iz_and_Lys_Mum wrote:

Thanks bluecowgirl, ive done that x

Dx 8/26/2010, DCIS, 6cm+, Stage 0, Grade 3, 0/1 nodes
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Feb 19, 2012 08:45PM - edited Feb 19, 2012 08:49PM by DivineMrsM

Facebook is what you make it.  I have never gone on FB and discussed one moment of my 'journey' with bc.  Ever.

 I will never carry on a disagreement with someone else on FB other than to politely mention my point of view. For example, one of my friends mentioned she didn't care for Joel Osteen.  I simply said, oh, I like him, he seems sincere.  That was as far as that topic went.

 For me, FB is social.  

Not political.  Not controversy-filled.  It is more of an escape for me.  I would never post something like The Scar Project link on my status.  If I have friends who continually post the same kinds of controversial things (say, for instance, many daily status updates about Occupy America), I just hide their statuses.

My life is serious enough, thanks to effing canser.  I don't have to get on a bandwagon, or contribute or be a spokeswoman or anything for the effing disease. I'm going to use FB to keep in touch with friends and relatives, post pictures and keep up with my loved ones in a positive way.  I chose not to use it for any kind of educational lectures about bc or anything else.  

Well, that's my reasoning. 

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Feb 19, 2012 08:46PM DivineMrsM wrote:

I guess I do all my bitchin' here.

lol

Peace & Love 

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Feb 19, 2012 08:56PM Pompeed wrote:

            It's reality.  There's no shame in reality. 

            One thing it does is put the lie to all of the wretched cheery pink rah rah sis boom bah! stuff.  Which is how a lot of the public sees breast cancer.  Instead of the hell and misery and maiming and death that it really is.

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Feb 20, 2012 01:00AM BlueCowgirl wrote:

Faye, another breast cancer related facebook page that got censored showed women with mastectomies with and without reconstruction, covered in body paint. Ironically, Sports Illustrated apparently has shared the same type of body-painting images on their facebook page and is not censored. To me, that says, supermodel breasts are ok to show on facebook, but breast cancer breasts are not - that's where I have a problem.  

CoolBreeze, didn't realize that was how it worked. Thanks for the info.

DivineMrs.M - this is the place to bitch! Thanks for your explanation. Interestingly, I used to NEVER put anything even remotely political or controversial on my facebook - I used it as a promotional tool for my business, which IMO I didn't want to have anything to do with politics or religion or anything like that. Funny how cancer changes people (me, at least). While I don't generally post anything cancer-related on my facebook status, I have since my diagnosis become very involved with politics and activism, and that's what facebook mostly is for me now. So I can see both sides here...And yes, facebook always allows you to remove certain friends' updates from your feed - God knows, I'm sure many of my friends have removed mine! Cool

Lettuce weight and sea. Dx 2/16/2011, 6cm+, Stage IIIA, Grade 2, 3/13 nodes, ER+/PR+, HER2-
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Feb 20, 2012 07:24AM DivineMrsM wrote:

BlueCowGirl,

Well, that stuff about Sports Illustrated just pisses me off, more objectivication of women, and I can certainly see your point there.

It kind of reminds me of this: I have been made aware, (yes, thru a FB friend), that there's a movie called Miss Representation made in 2011 in which:

the film exposes how mainstream media contribute to the under-representation of women in positions of power and influence in America. The film challenges the media’s limited and often disparaging portrayals of women and girls, which make it difficult for women to achieve leadership positions and for the average woman to feel powerful herself.

Here's a link:   Miss Representation » The Film  

Anyway, it' s on Oprah's network which I don't get, but hope to get the chance to see the movie. 

Oh, and about the using FB as a promotional tool for business....I have a couple friends who use FB to try to drum up business (for example:  Use me as your photographer!) and I hide those kinds of friends, too.  I just don't care to read their sales pitches. 

btw, I used to always be fighting for a cause, and seemingly always involved in some kind of grass roots movement for change in different areas where I live with mixed results.  Since bc, I stopped.  It is time for me to reflect and look at things from a different perspective.

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Feb 20, 2012 09:42AM AnneW wrote:

From David Jay on his SCAR PROJECT facebook page:

Please do not focus on the words "inappropriate and offensive". I was paraphrasing from the numerous warnings and emails I have received over the past few years. Facebook would never say "The SCAR Project images are offensive" . . . the few moronic people reporting them do and Facebook reacts by deleting the images based strictly on their "no nudity" policy. David Jay
2002 IDC stage 1, grade 1, rads & AI Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Feb 20, 2012 10:35AM - edited Feb 20, 2012 10:44AM by BlueCowgirl

Thanks AnneW.  I hadn't read that post from David Jay when I learned about this, I had only read what he posted a few hours before that: 

As Facebook deems the images of The SCAR Project inappropriate and offensive, I must remove all of the actual SCAR portraits from FB, leaving just the images from the exhibitions. I cannot take the chance of having The SCAR Project banned completely.

A little confusing if you ask me! Thanks for the updated info.

DivineMrsM: GAH! I would never use Facebook for my business in the way you're talking about! I cannot stand when people do that! I used it more to keep in contact and discuss business privately with people in my industry who are scattered throughout the country.
The MissRepresentation movie sounds really interesting and I hadn't heard of it before. Thanks for turning me on to it.

Lettuce weight and sea. Dx 2/16/2011, 6cm+, Stage IIIA, Grade 2, 3/13 nodes, ER+/PR+, HER2-
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Feb 20, 2012 11:55AM - edited Feb 20, 2012 11:55AM by sushanna1

This is unbelievable.  My grandmother showed me her mastectomy (Halstead radical surgery) scar at a fairly young age.  I think that I was 8 or 9.  I often think about her.  She understood a child's fear and curiosity and took the time to explain to me.  My mother, on the other hand, was furious.   

Grandma approached it as just part of life, not a big deal.  I am still grateful to her.  In her own way, she was preparing me for my own future (though mercifully not a Halstead radical mastectomy.)  

I am appalled at Facebook's action.   

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Feb 20, 2012 01:15PM Angelfalls wrote:

I am more appalled by the people who felt the need to report these images. What exactly is their problem? If they don't like the reality of BC, why don't they just bury their heads in the sand (I'd be happy to help them!), and avoid the pages they find so offensive?

I hadn't heard of this project before reading this thread and after seeing the pictures, I was moved and impressed by the honesty, strength and dignity these women show and which IMHO really comes through in the photos. Maybe that's the problem - the people who complained just can't deal with strong women, preferring their females pink and candy-coated with 2 pert breasts. Let's hope if they or their loved ones have to face a BC dx, they'll be able to come to terms with the reality and not find it "inappropriate and offensive".
Angelfalls

Dx 3/2003, IDC, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Surgery 4/1/2003 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Chemotherapy 4/30/2003 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 11/15/2003 Hormonal Therapy 1/5/2004 Dx 9/15/2006, 5cm, Stage IV Radiation Therapy 11/1/2006 Surgery 1/31/2007 Prophylactic ovary removal Hormonal Therapy 2/28/2007 Arimidex (anastrozole) Dx 10/5/2011, Stage IV, mets Chemotherapy 1/5/2012 Xeloda (capecitabine) Chemotherapy 3/20/2012 Taxol (paclitaxel) Hormonal Therapy 10/24/2012 Aromasin (exemestane) Targeted Therapy 5/7/2013 Afinitor (everolimus) Hormonal Therapy 1/7/2014 Femara (letrozole) Chemotherapy 1/31/2014 Navelbine (vinorelbine)
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Mar 13, 2012 03:45PM MuddyGlasses wrote:

Unfortunately, there are those who's sensibilities are still "offended" by the truth. I love what the photographer's motto: "breast cancer is not a pink ribbon", goes exactly in tune with what I've been doing with my own art. (Some of my pictures have also been excluded from some popular websites, because they were deemed them too "graphic" -- and they are not even photographs). 

Join the "bring back the scar project" group, leave a comment, help them re-instate the scar project. 

Eni at MuddyGlasses.com: Double Mastect - now going on my way to third reconstructive surgery! Favorite motto: BRCA1+ sucks! Dx 11/11/2010, IDC, 5cm, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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Mar 14, 2012 11:50AM Paula66 wrote:

Yes I would like someone to report a few FB images that show a current star in a photo shoot naked and just her arms covering her nipples and wrapped around her belly.  Hey thats ok because they think cause oh she's so cute because she's preggers.  Give me a break. But they can't show a picture of a woman who lost her breast, hmmm.  This is why I have went on my page to bring awareness to this.  Maybe tonite FB will shut me down for what I'm gonna post! 

Fight Like a Girl!!! Dx 10/24/2010, IDC, 2cm, Stage II, Grade 3, 2/3 nodes, ER+/PR-, HER2-

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