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All TopicsForum: Advocacy → Topic: Petition to Count Diagnoses of Metastatic Breast Cancer

Topic: Petition to Count Diagnoses of Metastatic Breast Cancer

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Feb 25, 2017 10:26AM

nottoday wrote:

Please consider signing this petition so that all diagnoses of metastatic breast cancer are included in our cancer registries. This increases the possibilities for research and treatment and prevention advances: It would enable us to know how many women are living with MBC, what proportion of those diagnosed with early-stage breast cancer subsequently develop MBC, and how trends have change over time. Currently most cases are MBC are only counted after death, limiting vital research that could be occurring while people with MBC are still alive. See: https://www.change.org/p/seer-start-counting-all-people-living-with-metastatic-breast-cancer.

Dx 7/23/2014, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR-, HER2- Chemotherapy 10/22/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/19/2015 Aromasin (exemestane)
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Feb 26, 2017 08:42AM cive wrote:

Only problem being you can't do it and maintain your anonymity, you put it out there to the whole world. 

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Aug 12, 2017 10:13AM Lumpie wrote:

1) At least for me, signers of this petition do not display.

2) You can generally select a toggle when you sign these petitions so that your signature displays as "anonymous."

3) By signing, you are indicating that you support the petition, not that you have MBC. I have promoted the petition and hope that many non-"lifers" will sign!

"Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 1/13/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Dx 2017, Stage IV, metastasized to liver Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right

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