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Topic: The importance of social media as a patient advocacy tool

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Nov 24, 2018 02:53PM

Traveltext wrote:

Times are changing and much of the discussion on breast cancer has moved to social media, particularly on closed Facebook pages where patients are gathering to share their stories and experiences. I know of dozens and even BCO runs a popular page.

Patient advocates can be found on Twitter, where medical professionals and patients come together daily to share a huge variety of information on bc. On Monday nights (EST U.S. time) there's an active Twitter chat on a different topic each week using #bcsm.

Anyway, those of you interested in social media and our disease can read about its use in this interview I did last week with Marie Ennis-O'Connor:

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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