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Topic: Institutional Gender Discrimination Towards Men With BC

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Sep 18, 2019 01:44PM

Traveltext wrote:

A new article for Pinktober:

http://malebc.org/institutional-gender-discrimination-towards-men-with-breast-cancer/




NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 18, 2019 01:51PM edj3 wrote:

Thanks for sharing the article, well written and spot on.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 18, 2019 02:27PM Beesie wrote:

Excellent!

Male breast cancer needs awareness and funding and inclusion. And while that is critically important for our male community, it will beneficial for women too. As more people understand that breast cancer is not exclusively a women's disease but that men get it too, we can perhaps move away from all the pink tatas crap and start communicating and educating about the realities of this disease, for women and men.

My one quibble with the article is that I think more than 1% of research funds should be allocated to male breast cancer since men have been under-represented for so long.

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Sep 18, 2019 02:30PM - edited Sep 18, 2019 02:31PM by Meow13

Maybe the month of October can switch to male BC awareness. Even though it is rare men do get this, I don't think the average man or woman knows of this.

Awareness makes sense.

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Sep 18, 2019 05:23PM - edited Sep 19, 2019 02:03AM by Traveltext

Beesie,Yes, we need to play catch up with research, so way more than one percent is appropriate.

Meow13, Yes again, let's ramp up male awareness in Pinktober. I mean, who isn't aware that bc is a women's disease? Yet, awareness levels re men are running at around 50%


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 18, 2019 06:05PM - edited Sep 19, 2019 09:18AM by Beesie

This Post was deleted by Beesie.
Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Sep 19, 2019 02:02AM - edited Sep 19, 2019 02:03AM by Traveltext

This Post was deleted by Traveltext.
NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 19, 2019 02:18AM Brilee76 wrote:

My male cousin died from breast cancer. I agree that more focus needs to be put on males and breast cancer. I have a BRCA2 mutation as does my mother. I have 3 older brothers, 5 nephews a son and a grand son. They all seem to think it isn't a priority for them and their boys to get tested because society doesn't seem to think that men have breast tissue.

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/30/2019 Hormonal Therapy 6/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/5/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/15/2019 Femara (letrozole) Hormonal Therapy 12/29/2019 Surgery 1/19/2020 Prophylactic ovary removal
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Sep 19, 2019 02:29AM Traveltext wrote:

Brilee76, Men are being blindsided with this disease and pink charities need to share the blame for putting out such little information about men.. the males in your family need to get themselves informed. I’m a guy with a BRCA1 VUS and a mother who died young of bc. My daughter automatically gets enrolled in an annual screening program, while my son has no such plan for early detection. Both of them have two generations of hereditary bc before them. This is discrimination.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 19, 2019 02:43AM Brilee76 wrote:

I completely agree. He is at just as high a risk. It's sad to know that he isn't receiving the same opportunities as his sister. Sad

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/30/2019 Hormonal Therapy 6/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/5/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/15/2019 Femara (letrozole) Hormonal Therapy 12/29/2019 Surgery 1/19/2020 Prophylactic ovary removal

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