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Topic: Advocacy smorgasbord-Advocate 4 breast cancer, healthcare causes

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Feb 25, 2020 04:22PM

Lumpie wrote:

I think that many of us want a way to advocate for breast cancer and health care related causes. Sometimes we aren't sure where to begin. Sometimes the cause is ...or is not...a good fit. Recognizing that our time, energy, interests and other available resources vary, I thought it might be beneficial to start a thread that would allow us to share links that offer others an opportunity to speak up and be hear to the extent they are comfortable. Some may be "one minute activist" type. Others may require more time and effort. Share generously. Pick and choose what works for you. Advocacy smorgasbord!

In general, please share postings that relate to breast cancer causes or access to care for breast cancer. Please be respectful of members' varying outlooks and preferences.

Thanks for being part of the effort, the conversation and the solution!

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 1/13/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Surgery Lumpectomy: Right Surgery Lumpectomy: Right Radiation Therapy Whole-breast: Breast
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Jan 7, 2021 01:14AM Lumpie wrote:

Update: The Henrietta Lacks Enhancing Cancer Research Act Signed Into Law

Dear Advocate,

We are excited to share that the Henrietta Lacks Enhancing Cancer Research Act was signed into law yesterday, January 5, 2021! This vital bill will increase access to cancer clinical trial participation among communities that are traditionally underrepresented in trials in order to decrease health disparities.

The bill is named after Henrietta Lacks, who died of cervical cancer in 1951. During her cancer treatment, doctors took samples of her tumor, and from this the HeLa cell line was created. Without her or her family's knowledge, these HeLa cells were used in modern medical research to develop treatments for a variety of diseases, including cancer.

Clinical trials provide individuals with cancer the opportunity to participate in ground-breaking research that may bring about treatments that improve quality of life, extend survival, and even prove life-saving. However, only a small fraction ultimately end up enrolling in a cancer clinical trial due to barriers that make participating difficult or even impossible, including:

  • Lack of available trials at local sites
  • Restrictive eligibility criteria
  • Transportation to trial sites
  • Taking time off from work
  • Potentially increased medical and non-medical costs

The Henrietta Lacks Enhancing Cancer Research Act aims to reduce these barriers and make it easier for patients from diverse backgrounds to enroll in clinical trials by directing the federal government to study and publish a report regarding barriers to participation in federally funded cancer clinical trials by populations that have been traditionally underrepresented in such trials.

This update courtesy of Cancer Policy Institute at the Cancer Support Community

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 1/13/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Surgery Lumpectomy: Right Surgery Lumpectomy: Right Radiation Therapy Whole-breast: Breast
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Jan 7, 2021 02:21AM Lumpie wrote:

Sharing this report by CBS news.

Medical Boards Often Protect Doctors Over Patients

The reporters advocate opening the National Practitioner Database to the public - and I concur. Contact your legislators.

https://www.cbsnews.com/video/medical-boards-often...

{Relates to practice in the U.S.}

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 1/13/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Surgery Lumpectomy: Right Surgery Lumpectomy: Right Radiation Therapy Whole-breast: Breast
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Feb 5, 2021 12:47AM Lumpie wrote:

Sharing... FYI....

End of Year Package Includes Provisions to Make Cancer Care More Accessible and Affordable

Late last month Congress approved an end-of-year funding package. We were thrilled to see that Congress prioritized cancer patients by including the following pieces of legislation which are now enacted into law :

  • CLINICAL TREATMENT Act: Guarantees coverage of the routine care costs (e.g. physician visits or laboratory tests) of clinical trial participation for Medicaid enrollees with life-threatening conditions, like cancer.
  • No Surprises Act: Protects patients from surprise medical bills from emergency and non-emergency services, including cancer care.
  • Removing Barriers to Colorectal Cancer Screening Act: Waives cost-sharing requirements under Medicare for colorectal cancer screenings, making these critical screenings more affordable.

The bill also had emergency coronavirus relief provisions, including direct payments (economic impact payments), expanded unemployment insurance, and food and rental assistance, among other relief provisions. Click on the button below to learn more.

LEARN MORE

{These updates courtesy of Cancer Support Community.}

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 1/13/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Surgery Lumpectomy: Right Surgery Lumpectomy: Right Radiation Therapy Whole-breast: Breast
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Sep 15, 2021 07:07PM Lumpie wrote:

EEOC Sues Employer, Claiming Failure to Accommodate Worker at Risk for COVID-19(link is external)

Georgia: The U.S. Equal Employment Opportunity Commission (EEOC) filed a lawsuit against ISS Facility Services Inc., claiming the employer unlawfully denied a request for a reasonable accommodation, and then fired the worker for making the request. The worker, whose heart condition placed her at heightened risk for contracting COVID-19, had asked to work from home.

https://www.eeoc.gov/newsroom/eeoc-sues-iss-facili...

{From Mid-Atlantic ADA Center and eeoc.gov; Free access}

"We must be willing to let go of the life we have planned, so as to have the life that is waiting for us." "If adventures will not befall a young lady in her own village, she must seek them abroad." "Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 1/13/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Surgery Lumpectomy: Right Surgery Lumpectomy: Right Radiation Therapy Whole-breast: Breast

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