Posted on: Sep 19, 2020 01:56PM - edited Sep 19, 2020 01:56PM by Traveltext
Traveltext wrote:PLEASE SHARE: 10 Myths and Facts About Male Breast Cancer
Men living with this disease are coming out and rejecting the shame and embarrassment of being diagnosed with a so-called women's disease. Many of us are active patient advocates for our brothers and sisters with breast cancer. In the United States, alone, around 2,620 men are diagnosed annually, and over 500 will die from breast cancer.1 Help us spread the word: breast cancer is a genderless disease!
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
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Sep 19, 2020 03:19PM bcincolorado wrote:
Thank you for sharing. I actually saw a male patient there who was being scanned when I went in for my last test. So many people do not realize it affects men as well.
Sep 19, 2020 04:29PM edj3 wrote:
One of my husband's high school friends was dx'd before I was, and as is often the case his cancer was further along when caught. He's been quite outspoken about male breast cancer and every chance I get, I like and share his posts.
Sep 19, 2020 04:37PM DebAL wrote:
Thanks for posting traveltext. Discussing with my son right now. You are such a special member of this community. I enjoy coming across your posts. Hope you are doing well. Deb
Sep 19, 2020 09:21PM ShetlandPony wrote:
That’s a good article, Traveltext.
Can you tell me what percentage of men with a breast cancer diagnosis have a known genetic mutation that may have contributed? I mean BRCA, PTEN, etc. all taken together. I ask because having case of male breast cancer in the family is on the list of things that can contribute to a recommendation for genetic testing. Am I wrong in thinking that the majority of men with breast cancer do have a genetic mutation or family history? I know this is a misconception where female breast cancer is concerned...
Sep 20, 2020 12:15AM Traveltext wrote:
ceanna. We go back a while. Stay safe
edj3. Where does Your husband's high school friend post?
Deb. thank you.
Bcinc. Good spotting. He was one of around 2,500 guys diagnosed annually in the US.
SP. BRCA1 men have a 3% chance of getting Bc, while BRCA2 men have a 12% chance. Overall, one figure I have seen puts 6% of bc men having a genetic predisposition. Yes, a family history of male bc is a red flag for genetic testing. My mom had bc, I have it, my 3 male siblings don’t, my 47yo daughter is in a screening program, but my 43yo son is not eligible.
Sep 20, 2020 03:33AM Rah2464 wrote:
Traveltext great article and thank you for pushing for awareness of male breast cancer. Sorry to hear your son is not eligible for screening. Sounds like our medical community still needs to advance their protocols. I have no doubt that your efforts will push that forward.
Sep 20, 2020 10:41AM MinusTwo wrote:
WOW Traveltext - Great link. The list is clear & informative. Even better, it's written so men might actually read it. I've forwarded the link to my brother, who had prostate cancer. I'll send it to my son when he has time to be more receptive. And I'll certainly pass it along to others. Thanks for posting. And thanks for staying active in this cause.
Sep 20, 2020 11:24AM edj3 wrote:
Traveltext he posts on FB. Every time he's gone for follow up, he shares info similar to what you've shared. And he's been very public about his entire treatment process--diagosis, mastectomy, chemo and now Tamoxifen.
Sep 20, 2020 12:30PM MinusTwo wrote:
And between all of us, we will keep this thread on the active list for at least a week.
Sep 20, 2020 07:21PM MinusTwo wrote:
Hopefully all of you are reading this!! It's very important.
Sep 20, 2020 09:43PM suzygirl wrote:
In January my then-71 year old husband was diagnosed with Stage 3a IDC, six years after my own breast cancer diagnosis. He has had a mastectomy, AC-T chemo and tomorrow starts radiation. Virtually all men are offered genetic testing, although like the the vast majority of males, he was found to have no known genetic risk factors, much like most women. Men are somewhat more likely to have a close relative with breast cancer than women (20 percent as opposed to 15 percent) and my mother in law was a breast cancer survivor. He had no other risk factors except older age. His brother and sister in law are a pathologist and gynecologist and they carefully quizzed colleague geneticists who said his case is almost certainly the result of a random mutation.
Perhaps as a result of seeing breast cancer first hand in his mother and wife, although our diseases were less advanced, and his more mature age, my husband has felt absolutely no shame or stigma at any point. He has been completely open with friends, even strangers when asked, about his diagnosis. Some men are very surprised to learn breast cancer is even possible in a male, many are curious about how he discovered it (inverted nipple, and only then did he notice the lump below it), but most of his friends knew it was a possibility. He has had great support from his male (and female) friends, although only one flower bouquet while our house overflowed with flowers in my case. One of his friends joked he must have caught itthat time I forgot to wash my hands, and he himself often laughs about being a member of the sisterhood. Not of course, that male breast cancer is not deadly serious. It is.
Sep 20, 2020 10:19PM Traveltext wrote:
Thanks for posting your hubby’s story here suzygirl. He’s where I was at six years ago. My story is here:
I know of a few husband and wife bc couples. I’m sure empathy abounds it these situations. I also had a mom with bc and have a BRCA1 mutation, but with a variation of unknown significance. Like hubby, I’m sure mine was a random mutation. The are thousands of genetic variations and only future research will prove anything meanwhile, it is what it is. Likewise, I’ve been open about having the disease and will tell anyone, show the scar etc.
The Male Breast Cancer Coalition site above has many stories of men. For years now I’ve edited them for MBCC.
Sep 21, 2020 03:47AM DebAL wrote:
wow traveltext. Thanks so much for sharing your story. I'm looking forward to reading the other links also.
Sep 21, 2020 08:03AM Beesie wrote:
Traveltext, great information, thank you! I had no idea that the percent of men with breast cancer who have a genetic mutation is so low.
They say that 'you learn something new every day'. I guess I'm good for today then!
Sep 21, 2020 12:15PM ShetlandPony wrote:
Yes, thank you for the education. I was under the misconception that male bc was much more driven by known genetic mutations than female bc. But it appearst to be more similar to female breast cancer, with the majority of cases having no known genetic mutation to blame.
Sep 21, 2020 12:42PM AliceBastable wrote:
Traveltext, thank you for making this information available when we're about to get inundated with PINK. It's a people's cancer, not just a women's cancer.
Sep 21, 2020 06:58PM MinusTwo wrote:
OK - let's hear it for supporting Traveltext !!! Thanks for posting ladies.
Sep 21, 2020 07:33PM - edited Sep 21, 2020 07:36PM by Traveltext
Thanks for your support everyone here. Each year, when Pinktober rolls around, out comes the Manifesto.
Created s couple of years ago by me and the late BCO member Rob Fincher, you can spread the PDF around if you wish.
Sep 22, 2020 11:58AM MinusTwo wrote:
Oh damn - it's almost that pink month again already. But I like your manifesto and will share.
Sep 22, 2020 01:11PM DebAL wrote:
Im sharing your manifesto as well traveltext!. Printed out a few copies to post around the hospital where I work. I jotted down my email as a contact and I'll reach out to you if I get any responses.
A local hospital system in Ohio is having local air time with short commercials. I was pleased to see that one of the commercials with a surgical oncologist mentioned she has male BC patients and that this disease affects men as well as women. Baby steps but moving forward with more awareness
Sep 22, 2020 02:20PM Traveltext wrote:
Thanks to the post bumpers, we are keeping this topic live.
In December last year I received funding as a patient advocate to attend SABCS in San Antonio. This is the prime bc event in the US and over 6,000 medical people attend and there's a topic for everyone. I met so many lovely people I'd known only from social media and we all had a ball.
Here is an article I wrote on gender bias.
Nov 23, 2020 03:35PM MinusTwo wrote:
So bumping again for a newbie on the active threads.
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