Join Us

We are 218,061 members in 84 forums discussing 160,867 topics.

Help with Abbreviations

Topic: 10 Myths and Facts About Male Breast Cancer ​

Forum: Advocacy — Join here to discuss issues where we can have a voice!

Posted on: Sep 19, 2020 04:56PM - edited Sep 19, 2020 04:56PM by Traveltext

Traveltext wrote:

PLEASE SHARE: 10 Myths and Facts About Male Breast Cancer

Men living with this disease are coming out and rejecting the shame and embarrassment of being diagnosed with a so-called women's disease. Many of us are active patient advocates for our brothers and sisters with breast cancer. In the United States, alone, around 2,620 men are diagnosed annually, and over 500 will die from breast cancer.1 Help us spread the word: breast cancer is a genderless disease!


https://advancedbreastcancer.net/living/male-breas...



NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Page 1 of 1 (23 results)

Posts 1 - 23 (23 total)

Log in to post a reply

Sep 19, 2020 06:12PM ceanna wrote:

Thanks Traveltext. I will share your link. Thanks for all your work to advocate for male BC awareness and treatment. All the best, Ceanna

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
Log in to post a reply

Sep 19, 2020 06:19PM bcincolorado wrote:

Thank you for sharing. I actually saw a male patient there who was being scanned when I went in for my last test. So many people do not realize it affects men as well.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/7/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole)
Log in to post a reply

Sep 19, 2020 07:29PM edj3 wrote:

One of my husband's high school friends was dx'd before I was, and as is often the case his cancer was further along when caught. He's been quite outspoken about male breast cancer and every chance I get, I like and share his posts.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 19, 2020 07:37PM DebAL wrote:

Thanks for posting traveltext. Discussing with my son right now. You are such a special member of this community. I enjoy coming across your posts. Hope you are doing well. Deb

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
Log in to post a reply

Sep 20, 2020 12:21AM ShetlandPony wrote:

That’s a good article, Traveltext.

Can you tell me what percentage of men with a breast cancer diagnosis have a known genetic mutation that may have contributed? I mean BRCA, PTEN, etc. all taken together. I ask because having case of male breast cancer in the family is on the list of things that can contribute to a recommendation for genetic testing. Am I wrong in thinking that the majority of men with breast cancer do have a genetic mutation or family history? I know this is a misconception where female breast cancer is concerned...

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
Log in to post a reply

Sep 20, 2020 03:15AM Traveltext wrote:

ceanna. We go back a while. Stay safe

edj3. Where does Your husband's high school friend post?

Deb. thank you.

Bcinc. Good spotting. He was one of around 2,500 guys diagnosed annually in the US.

SP. BRCA1 men have a 3% chance of getting Bc, while BRCA2 men have a 12% chance. Overall, one figure I have seen puts 6% of bc men having a genetic predisposition. Yes, a family history of male bc is a red flag for genetic testing. My mom had bc, I have it, my 3 male siblings don’t, my 47yo daughter is in a screening program, but my 43yo son is not eligible.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Sep 20, 2020 06:33AM Rah2464 wrote:

Traveltext great article and thank you for pushing for awareness of male breast cancer. Sorry to hear your son is not eligible for screening. Sounds like our medical community still needs to advance their protocols. I have no doubt that your efforts will push that forward.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 20, 2020 01:41PM MinusTwo wrote:

WOW Traveltext - Great link. The list is clear & informative. Even better, it's written so men might actually read it. I've forwarded the link to my brother, who had prostate cancer. I'll send it to my son when he has time to be more receptive. And I'll certainly pass it along to others. Thanks for posting. And thanks for staying active in this cause.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Sep 20, 2020 02:24PM edj3 wrote:

Traveltext he posts on FB. Every time he's gone for follow up, he shares info similar to what you've shared. And he's been very public about his entire treatment process--diagosis, mastectomy, chemo and now Tamoxifen.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 20, 2020 03:30PM MinusTwo wrote:

And between all of us, we will keep this thread on the active list for at least a week.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Sep 20, 2020 10:21PM MinusTwo wrote:

Hopefully all of you are reading this!! It's very important.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Sep 21, 2020 12:43AM suzygirl wrote:

SP

In January my then-71 year old husband was diagnosed with Stage 3a IDC, six years after my own breast cancer diagnosis. He has had a mastectomy, AC-T chemo and tomorrow starts radiation. Virtually all men are offered genetic testing, although like the the vast majority of males, he was found to have no known genetic risk factors, much like most women. Men are somewhat more likely to have a close relative with breast cancer than women (20 percent as opposed to 15 percent) and my mother in law was a breast cancer survivor. He had no other risk factors except older age. His brother and sister in law are a pathologist and gynecologist and they carefully quizzed colleague geneticists who said his case is almost certainly the result of a random mutation.

Perhaps as a result of seeing breast cancer first hand in his mother and wife, although our diseases were less advanced, and his more mature age, my husband has felt absolutely no shame or stigma at any point. He has been completely open with friends, even strangers when asked, about his diagnosis. Some men are very surprised to learn breast cancer is even possible in a male, many are curious about how he discovered it (inverted nipple, and only then did he notice the lump below it), but most of his friends knew it was a possibility. He has had great support from his male (and female) friends, although only one flower bouquet while our house overflowed with flowers in my case. One of his friends joked he must have caught itthat time I forgot to wash my hands, and he himself often laughs about being a member of the sisterhood. Not of course, that male breast cancer is not deadly serious. It is.




Dx 9/25/2013, IDC: Mucinous, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Dx 12/5/2013, DCIS, Left, 6cm+, Stage 0, Grade 2 Surgery 12/5/2013 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right Hormonal Therapy 2/20/2014 Arimidex (anastrozole) Dx IDC, Right, <1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- (FISH)
Log in to post a reply

Sep 21, 2020 01:19AM Traveltext wrote:

Thanks for posting your hubby’s story here suzygirl. He’s where I was at six years ago. My story is here:

https://malebreastcancercoalition.org/Survivor%20Stories/rod-ritchie/

I know of a few husband and wife bc couples. I’m sure empathy abounds it these situations. I also had a mom with bc and have a BRCA1 mutation, but with a variation of unknown significance. Like hubby, I’m sure mine was a random mutation. The are thousands of genetic variations and only future research will prove anything meanwhile, it is what it is. Likewise, I’ve been open about having the disease and will tell anyone, show the scar etc.

The Male Breast Cancer Coalition site above has many stories of men. For years now I’ve edited them for MBCC.




NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Sep 21, 2020 06:47AM DebAL wrote:

wow traveltext. Thanks so much for sharing your story. I'm looking forward to reading the other links also.

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
Log in to post a reply

Sep 21, 2020 11:03AM Beesie wrote:

Traveltext, great information, thank you! I had no idea that the percent of men with breast cancer who have a genetic mutation is so low.

They say that 'you learn something new every day'. I guess I'm good for today then! Happy

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
Log in to post a reply

Sep 21, 2020 03:15PM ShetlandPony wrote:

Yes, thank you for the education. I was under the misconception that male bc was much more driven by known genetic mutations than female bc. But it appearst to be more similar to female breast cancer, with the majority of cases having no known genetic mutation to blame.

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
Log in to post a reply

Sep 21, 2020 03:42PM AliceBastable wrote:

Traveltext, thank you for making this information available when we're about to get inundated with PINK. It's a people's cancer, not just a women's cancer.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Sep 21, 2020 09:58PM MinusTwo wrote:

OK - let's hear it for supporting Traveltext !!! Thanks for posting ladies.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Sep 21, 2020 10:33PM - edited Sep 21, 2020 10:36PM by Traveltext

Thanks for your support everyone here. Each year, when Pinktober rolls around, out comes the Manifesto.

Created s couple of years ago by me and the late BCO member Rob Fincher, you can spread the PDF around if you wish.

http://malebc.org/wp-content/uploads/2015/12/MBCmanifesto6.pdf


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Sep 22, 2020 02:58PM MinusTwo wrote:

Oh damn - it's almost that pink month again already. But I like your manifesto and will share.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Sep 22, 2020 04:11PM DebAL wrote:

Im sharing your manifesto as well traveltext!. Printed out a few copies to post around the hospital where I work. I jotted down my email as a contact and I'll reach out to you if I get any responses.

A local hospital system in Ohio is having local air time with short commercials. I was pleased to see that one of the commercials with a surgical oncologist mentioned she has male BC patients and that this disease affects men as well as women. Baby steps but moving forward with more awareness

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
Log in to post a reply

Sep 22, 2020 05:11PM - edited Sep 22, 2020 05:15PM by Traveltext

This Post was deleted by Traveltext.
NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Sep 22, 2020 05:20PM Traveltext wrote:

Thanks to the post bumpers, we are keeping this topic live.


In December last year I received funding as a patient advocate to attend SABCS in San Antonio. This is the prime bc event in the US and over 6,000 medical people attend and there's a topic for everyone. I met so many lovely people I'd known only from social media and we all had a ball.

Here is an article I wrote on gender bias.

http://malebc.org/institutional-gender-discriminat...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Page 1 of 1 (23 results)