Jun 17, 2022 07:19PM wondering44 wrote:
sarahmaude - I didn't read your post as criticizing your care in any way. I was glad you shared the information about Signatera. I had not heard about this and learned something new today to research. Thank you for sharing.
My thought process in my post was not to generalize that "all" women receive a less than a subpar standard of care. I am happy to hear and read about women who get excellent care. My mother-in-law received excellent care for her first BC treatment years ago. She chose a different facility in another area when she received her recent diagnosis and treatment plan at a facility. I was ecstatic to listen to her new team's different treatment plan, which was very different from the facility that diagnosed her new cancer. I have another friend who had treatment at a different facility here and had outstanding care. My insurance was out-of-network for to use the same facility she did. I checked before I made a decision on what facilities to use for my care.
I, alone, decided to use those facilities and medical professionals for my health care. That choice cost me more than I wanted to pay. That choice affected not only me but my partner too. I do not live in a rural area. I have excellent health insurance, and I have a phenomenal support team. For one short time, my prior care brought me to a lonely place in my life, even with my outstanding support team. I realized I couldn't be the only patient getting the same treatment, and there are some women with less health insurance or support than I had. My post was to support other women who have had less than an adequate standard of care. I can work to make a difference for another woman who will one day walk in those same doors I did or another woman who will walk through doors like the ones I did here.
Sharing negative experiences could educate others that they are not alone in their negative experience for treatment. Sharing positive experiences in health care could inform a woman that there is much more to choose from to get it right, like others who found the right medical teams and facilities.