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Topic: Pregnant and diagnosed with invasive breast cancer

Forum: DCIS plus HER2-positive Microinvasion —

Meet others with this diagnosis.

Posted on: Apr 21, 2017 03:38PM - edited Apr 21, 2017 03:39PM by Lynne11

Lynne11 wrote:

hi, I have newly been diagnosed with DCIS. I am 23 weeks pregnant. I had a wide scope lumpectomy and had two lymph glands taken. Just got results today and another tumour was found in the lymph gland. Waiting for a MRI to see if it has spread to the rest of my body. Anyone out there in a similar position. From a scared momma to be

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Apr 21, 2017 04:21PM melmcbee wrote:

Lynn Im so sorry that you are going thru this. I just wanted to give you a hug and tell you someone will be around soon who can give you advice. Also use the search function and type pregnant or pregnancy and it should pull up some threads that will help. Prayer

Melanie Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/9/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/9/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/23/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/9/2013 Breast, Lymph nodes Surgery 5/30/2013 Reconstruction (left); Reconstruction (right) Surgery 12/4/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Dx 11/19/2019, ILC, Stage IV, metastasized to other, ER-/PR+, HER2- (IHC) Chemotherapy 8/19/2020 Abraxane (albumin-bound or nab-paclitaxel) Immunotherapy Tecentriq (atezolizumab) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine)
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Apr 21, 2017 04:30PM Moderators wrote:

Dear Lynn11,

We, too, are so sorry you have to be here, but really glad you found us. Our Community is an incredible source of support and information. We agree with melmcbee that you might consider using the search function and find others who have been diagnosed with breast cancer while pregnant.

While you wait for some others to respond to your post, you may be interesting in checking out the main Breastcancer.org site's pages on:

Also, you may want to post in the Young With Breast Cancer forum to meet other women facing the unique issues that younger women with a breast cancer diagnosis face.

We hope this helps and we look forward to hearing more from you soon!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Apr 21, 2017 05:07PM - edited Apr 22, 2017 10:19AM by Beesie

Lynne, I'm so sorry; it's never a good time to be diagnosed with breast cancer, but being diagnosed when you are pregnant is just not fair! You should be experiencing the joy and anticipation of your upcoming birth, not worrying about a breast cancer diagnosis.

First thing you should do is get a copy of your pathology reports from your biopsy and surgery, so that you have all the information about your diagnosis. In the title of your post, you mention invasive cancer, but then you say that you've been diagnosed with DCIS. What you need to clearly understand is whether your diagnosis is DCIS (Stage 0), DCIS-Mi (Stage I), or IDC (Stage I or higher). The tests you receive and the treatment options presented to you might vary considerably depending on your diagnosis. Staging, tests and treatment recommendations are always based on the most serious condition that the patient presents with.

  • DCIS (ductal carcinoma in situ) is non-invasive, and a diagnosis of "DCIS" is always Stage 0. If you have invasive cancer (probably in addition to some DCIS - they are often found together), it means that your diagnosis isn't considered to be Stage 0 DCIS, but instead is based on the amount of invasive cancer you have.

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  • The earliest Stage I (invasive cancer) diagnosis is DCIS-Mi. DCIS-Mi is considered to be the diagnosis when someone has DCIS along with a very tiny amount of invasive cancer - which is no larger than 1mm in size and is called a 'micro-invasion'. That was my diagnosis. And that's what this particular discussion forum is about.

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  • If the size of the invasive tumor is larger than 1mm, or if there is nodal involvement (as it appears that you have), then the diagnosis is Stage I (or higher) IDC (invasive ductal carcinoma). The stage is determined based on the size of the tumor and the amount of nodal involvement.

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  • As I mentioned, it it is common to have IDC and DCIS together. Because DCIS is non-invasive and is the least serious condition (vs. invasive cancer and nodal involvement), if someone has DCIS in addition to either invasive cancer and/or nodal involvement, while the DCIS will need to be surgically removed, it will otherwise be ignored - simply because any treatment that is recommended to address the invasive cancer/nodal involvement will be more than adequate to address the DCIS.

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You mentioned that you have invasive cancer and cancer in your lymph node. If this is the case, this means that even though you may also have DCIS, your diagnosis is at least Stage IB IDC. I would suggest therefore that you ignore the link that the Moderators provided about DCIS, because the information in there will not apply to your situation. Your treatment plan might be quite different than the treatment plan for someone who has Stage 0 DCIS.

I'd also suggest that you might want to ask the Moderators to move your post to either the IDC Forum or the Just Diagnosed Forum, so that you can get support from others with a similar diagnosis. This forum isn't very busy, so not many people will see your post here, and the people who read this forum probably will have different tests, and a different treatment plan, than you. You will get more relevant and helpful support in one of the other forums.

Sending (((Hugs)))

Edited to clarify some of the explanations.

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Aug 24, 2017 08:08AM snowday123 wrote:

just found out that my ex sister in law was diagnosed during her pregnancy (number 6!) eight years ago. She was 36 yrs old. No one had called her after suspicious mammogram and when ob casually asked during prenatal visit how the biopsy turned out she had no idea what he was talking about. It had spread to her lymph nodes. She refused pregnancy termination and they gave her least toxic chemo first - delivered baby just a bit early and then followed with more toxic chemo and then radiation as she'd had lumpectomy. Feels and looks great at 44 and her eight year old son is fine. It was so good to talk to her again - she'd hidden the cancer from anyone outside the immediate family although my daughter had noticed she lost her eyebrows and told her to call me after my recent dx. Good Luck - there are happy endings

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