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Nov 7, 2016 07:22AM
Will finally post my story here aswell since I guess it fits in quite well. I am hoping to be able to influence women's decisions and thereby maybe help them save their lives! This is a 100% positive story :-).
All started in 2006 when my 30-year-old sister (8 years older than me) suffered from breast cancer. Her young age, 2 sick cousins, 1 diseased aunt gave reason to think that we might have inherited the BRCA gene. Luckily, my sister had surgery (breast-sparing at first), radiotherapy and chemo and finally was cancer free.
Her whole experience and knowing more about the high risk of also falling sick at a very young age I decided to have a look at my options.
1. Find out whether I am positive, and if yes, think about next steps.
2. Don't get tested and just wait and fear!
Actually, it didn't take me a minute to decide what I wanted, and I was only 26 years old, just ending my university career. I wanted to know about my fate. How many people get the chance to find out about a live-threatening condition BEFORE anything happens? So I got tested, was positive and said to my doctor: " So what can I do about this?" His answer was prophylactic mastectomy. A little shocking at first but then I thought .. 90% risk of getting sick in the next couple of years and go through the same as my sister, or have this done, get beautiful breasts that will never hang :-), and reduce my risk to close to 0. My choice was made fast. Half a year later, after my university diploma I had DM with immediate reconstruction with silicon (2 reasons for that:1. I was too slim for using my own fat, 2: I didn't want any more than the two scares below my breasts.
I won't go into detail about the whole surgery, but I just tell you I NEVER regret being tested or taking the step of mastectomy. I know opinions differ, about whether or not it is necessary to remove (still) healthy tissue, but for me this was the only logic consequence.
After seeing the beautiful result, my sister soon decided to have the same thing done too and has been healthy for the past 12 years now, so ...
I hope this helps and please feel free to ask anything you would like to know about my experience.
Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Prophylactic mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant