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Mar 20, 2017 08:29AM
vlnrph, I'm so sorry, I didn't receive a notification of a reply here. Thank you for your response.
My genetic counseling appointment in January was with Cincinnati Children's Hospital Dept of Human Genetics:
The Division of Human Genetics is a leader in genetics education. The Genetic Counseling Graduate Program is one of the oldest and largest such programs in the United States. We have American Board of Medical Genetics certified training programs in medical genetics, medical and clinical biochemical genetics, clinical cytogenetics, and clinical molecular genetics for training leaders in human genetics.
According to my paperwork, I was assigned a "clinical team" based on the referral from my breast surgeon and oncologist. That team includes three people: the person we actually saw who mapped my family history, talked through things with us, etc. is a MS/LCG, then detailed notes and recommendations written by one team member who is a "Clinical Molecular Geneticist" and another who is a physician, associate professor, and is a co-director of one of the specialized genetics programs.
**Side note: Cincinnati Children's is an amazing institution and we've been incredibly blessed to live so close. We have many friends and family whose lives have been benefited by their services.
I know there is a lot I don't understand about all of this. My GYN called me in specifically to talk about the results last week and my husband went with me, both for his benefit and my own so I had a second person to remember or hear things I missed. My GYN has been my doctor for 10+ years and I trust her. I asked if we could wait on making a decision about my ovaries until after the breast cancer issue was taken care of (appt with my surgeon next week) but my GYN said she wasn't comfortable waiting even six months given my family history, the results, my polycystic ovaries, and lack of 100% foolproof ovarian cancer screening. My outpatient surgery to remove ovaries and tubes is scheduled for April 21. For now there is a bilateral mammogram and MRI set up for late May (we're working around my older son's high school graduate as much as possible so there's a gap in there, my choice.)
I have been a part of a study I was referred to after my original diagnosis though need to see if that's the one you mention. I will definitely be checking the FORCE website – thank you for that referral!
Still pretty overwhelmed.