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Topic: Brip1

Forum: Genetic Testing —

ATM, BARD1, BRCA1, BRCA2, BRIP1, CDH1, CHEK2, NBN, NF1, PALB2, PTEN, RAD51C, RAD51D, STK11, TP53, and mismatch repair genes (MLH1, MSH2, MSH6, PMS2, EPCAM)

Posted on: Aug 20, 2017 11:43AM

Bay21004 wrote:

Got genetic testing done and tested positive for the brip1 test that shows have a higher chance of getting ovarian cancer I met with my OB oncologist and I'm only 36 and I am thinking of getting my ovaries removed has anyone gotten their ovaries removed at a younger age what are some of your symptoms?

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Sep 15, 2017 08:19AM Ltwig wrote:

Hi! Me too. I am trying to figure out when to do it. I am almost 40 and they are wanting to do it this year. I would love to hear from others who have done it.

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Sep 15, 2017 12:01PM - edited Sep 15, 2017 12:01PM by Lula73

my sister and I both tested positive for BRIP1. Strong history on paternal grandfathers side and typically later in life diagnoses. I'm 43, my sister is 40. Genetic counselor said remove mine now since my BC was ER/PR+ and then MO confirmed that recommendation when I ended up with blood clots on tamoxifen and can't take it anymore. For my sister counselor recommended removal by age 50. She plans to do it at 45 and split the difference. I'm waiting on the surgery date now so I can't tell you about my personal experience with after effects, but it's basically instant menopause. When are they wanting to get you in to do it? Do you have a BC diagnosis too?

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/14/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/3/2018 Femara (letrozole)

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