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Topic: Tamoxifen for brca2 no previous cancer

Forum: Positive Genetic Test Results —

BRCA 1 & 2, ATM, BARD1, CDH1, CHEK2, MRE11A, NBN, p53, PALB2, PTEN, RAD50, RECQL, and RINT1 genes

Posted on: Jun 11, 2019 04:54PM

ps04551 wrote:


I’m searching for info. My daughter is 33. Has brca2. 7-8 years ago removed fibroid cystic mass....june2019 another mass seen on MRI. Extremely small, waiting for results.....regardless of outcome my daughter insists she is having her breasts removed. Can anybody tell me if tamoxifen is useful in staving off a first time cancer? If I read correctly. It will lower risk for up to 10 years.

We are in Rhode Island. Would love to hear from someone with more knowledge then myself.

Right now grasping at straws.

Thank you

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Jun 12, 2019 02:53PM vlnrph wrote:

Sorry to hear that your daughter is grappling with issues like these at such a young age. You may want to go to the FORCE website, it stands for Facing Our Risk of Cancer Empowered. Begun by those with BRCA mutations, the focus is now also on other genetic concerns such as ovarian malignancy. They have lots of information on line.

Tamoxifen is certainly a reasonable short term choice especially to preserve fertility. Pregnancy is possible after going off of it. It cannot prevent every tumor since the target is estrogen receptors. Triple negative disease exists.

Even after double mastectomies (prophylactic is not really a correct term), a small amount of breast tissue remains so there is still a tiny chance to develop a lesion there. One needs to know their body and report unusual findings. I hope the medical team can help through this decision making process and that you can be a good support person!

IDC too! 🎻💊👪🐩 🇫🇮 🌹🦋 Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-

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