Log in to post a reply
Aug 15, 2020 09:00AM
Flashlight, would it change your treatment? I just had genetic testing done via Invitae and they only charged me $250. I had done Myriad many years ago and this was for additional tests.
Your MO is wrong about testing only one. Just because I was negative, doesn't mean my sisters are. That said, it does lend some indication of what your results are likely to be. My MO still suggested that my sister might want to have it don. MY sister declined and I agree, in our situation it doesn't seem to offer any more information regardless. It won't change how our daughters are checked by their doctors or our treatments.
That said, I wish I had not done further testing. My mother and two of my three sisters and I were diagnosed with breast cancer as well as a cousin on my mom's side. The counseling was very helpful and although I went ahead with the testing, maybe just going to see a genetic counselor would be of help. The counselor actually thought if I had any genetic issue it would have come from my father's side not my mother's.
The paperwork I filled out was grueling. It took me hours to complete, but I did it a little at a time. The questions were all important, but some were difficult to find answers for.
Things that surprised me were the death dates of aunts/uncles/grandparents, etc. Why? Because I came from large families and most all, for many generations, lived well into their 80's/90's, so even if I was unsure of how they died, they lived longer than the average for their time period. I only knew of two conditions that caused two of my uncles to die early, one of polio and one of another disease.
While breast cancer was prevalent in my immediate family, (siblings and mother), cancer didn't seem to occur in my extended family.
While doctors advocate genetic testing, and rightfully so, the reason I wish I didn't have it done is due to the fact that I already knew I was BRCA negative. Also, some of my nieces are now in their 40's and 50's and none had breast cancer so far. I was the youngest in my family so my children are in their 30's.
I am certain the cost of testing would not be more than $250. I know that is a lot too, but less than your price of $400.
Just like all things breast cancer, we have to apply what we know to our particular case. Genetic testing is not a one size fits all either. If you are considering it, I would start with genetic counseling. There is no pressure there and I am on a Medicare Advantage plan and had no co-pay for it. It is at least worth finding out. I had the counseling in 2003 and honestly didn't think doing it again would be helpful and I was wrong! My counselor gave me so much to think about that I would never have considered otherwise. Remember, you don't have to do this now, you can wait until the Covid issues are lessened. I canceled two times over a year and a half before I finally did the counseling.
Good luck. Let us know what you decide!
6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+
12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)