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Topic: Anyone BC survivors with cancers on both breasts plus BRCA1?

Forum: Genetic Testing —

ATM, BARD1, BRCA1, BRCA2, BRIP1, CDH1, CHEK2, NBN, NF1, PALB2, PTEN, RAD51C, RAD51D, STK11, TP53, and mismatch repair genes (MLH1, MSH2, MSH6, PMS2, EPCAM)

Posted on: Aug 11, 2021 02:35PM

My-Lan28 wrote:

Hi Ladies

I was diagnosed Breast Cancer on August, 2020 , I had cancer with 2 stages on both of my breast. My left breast had stage0 DCIS 5cm (grade 3) and beside it there were stage 1B IDC with multi focal tumors ( grade 2) of 1.7cm , 0.8cm, 0.3cm, 0.2cm, 0.2cm. My right breast again I had stage0 DCIS 0.8cm ( grade 2) and stage1A IDC 0.9cm (grade 2). No lymph nodes involved.

I done all my treatments included of Bilateral Mastectomy, 4 chemos, 15 radiation and taking Tamoxifen. Right after my surgery my oncologist send my breast cancer sample to USA to get mamma print to see i am benefit from chemo. When the result come back with 19% risk of recurrence but I took chemos, radiation and Tamoxifen, it will bring down to 7% of risk of recurrence. I am very scare, I had 2 young kids 7 and 13. I am 46 this year

I just got my genetic test result BRCA1 and my Oncologist recommended me to get Hysterectomy. I am very worry and wondering any ladies have the same situation, please share your experiences, So I can have some hope and release some of my anxiety.

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Aug 25, 2021 09:45AM - edited Aug 25, 2021 09:45AM by Merkmurf

I was diagnosed with stage 3a ILC in my left breast around 11/14/2020 before my bilateral mastectomy I felt a lump in my right breast, diagnosed with stage 1a on about 1/14/2021. I did 8 rounds of chemo, 30 radiation treatments, and now Arimidex. I have a hysterectomy scheduled for 8/30/2021. I also have the ATM gene mutation. This has been quite the year, I have two boys ages 15 and 16 and I refuse to leave my husband as the only parent. Oh, also, they didn't get clear margins when they removed the tumor on my left breast. Hopefully radiation got the rest! I should be getting an MRI to confirm the cancer is gone.


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