Topic: Pink October

Forum: Employment, Insurance, and Other Financial Issues — Employment, insurance, and financial concerns are common. Meet others here to discuss and for support.

Posted on: Oct 5, 2010 07:27PM

Posted on: Oct 5, 2010 07:27PM

Laurie_R wrote:

Am I the only one who doesn't mind Oct. and all the pink?  When I think about it it reminds me that SOMEONE is keeping us on the minds of people who are lucky enough not to be among our members.  Maybe enough people will feel either guilty or lucky enough to donate and if enough people donate maybe this will be the year they find a cure.  Wouldn't that be wonderful and enough of a reason for all the pink???

Laurie R Brown Dx 11/15/2009, ILC, 3cm, Stage IIIA, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Oct 5, 2010 07:32PM Enjoyful wrote:

I'm concernd about the unscrupulous companies that package something in pink to capitalize on our grief.  Other than that, of course I'm grateful of any contributions truly made to the cause.  Some of the products are just plain funny, though.  Eggs printed with a pink ribbon?  Really?  :-)

E

BENGHAZI! Dx 9/2004, IDC, 1cm, Stage IIIA, Grade 2, 4/14 nodes, ER+/PR+, HER2- Dx 8/28/2009, IDC, 2cm, Stage IV, Grade 2, ER+/PR-, HER2-
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Oct 5, 2010 08:17PM Laurie_R wrote:

unfortunately most of the time there is bad with the good...I still don't cringe when I see the pink ribbons or October rolls around

Laurie R Brown Dx 11/15/2009, ILC, 3cm, Stage IIIA, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Oct 5, 2010 09:53PM pickle wrote:

Laurie you are not the only one! I embrace the pink. Although I have never liked pink, I am truly grateful that people recognize what it stands for and they open their wallets. More money is raised for BC in the month of October than any other time. I know that there are corporations that may take advantage of the marketing/sales opportunity but the majority are legitimate. I donate to the local food bank and yet I know that some people who use it don't need it: I donate to other charitable organizations that I'm sure some people take advantage of but I still give anyway because I know that the ones who take advantage are a small minority. I just want to do whatever I can to raise money so we can get a cure or a vaccine and wipe out this disease. I don't want my daughter or another generation to have BC in their future. If I have to wear the pink to get some cash then so be it.

Dx
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Oct 6, 2010 01:47PM turtle42 wrote:

I love to see all the pink in October. For one it keeps breastcancer in the spotlight and the compaines who do use the pink donate some portion of the sale to some sort of awareness program or treatment program. I will always embrace the pink.

Dx 8/1/2006, IDC, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 8/6/2006 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Prophylactic ovary removal Radiation Therapy 8/16/2006 Breast, Lymph nodes Hormonal Therapy 11/30/2006 Arimidex (anastrozole) Surgery 6/22/2014 Mastectomy: Left, Right
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Oct 6, 2010 03:36PM - edited Oct 6, 2010 03:37PM by lovemygarden

I fall into the "Pink Stinks" category, to be honest. Since this forum section is about finances and insurance, I feel compelled to point out that almost none of the "pink"-related organizations do much of anything of real value to help those of us who HAVE or HAVE HAD breast cancer. Especially those like myself who fall between the cracks because we don't have insurance but are not YET poor enough to qualify for any help from the so-called charity programs. There are a lot of us bc gals who are teetering on the edge of financial disaster but none of the Pink money goes for that.

Let's be honest: a free wig and a free exercise class don't mean diddly-squat in practical terms. Those things are LUXURIES, not necessities --  and its the necessities that current patients need help with.

That is only one of the reasons why Pink and Pinktober offend me, but since this is a financial topic area, I'll just stick to that. Smile

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Oct 6, 2010 03:58PM Suzybelle wrote:

Pinktober has become big business.  It's hard not to get cynical when some of the very products with the pink ribbons slapped all over them contribute to cancer.

 Still, I am grateful for any money that is going to research to cure BC - I just wish, like Madelyn, that the monies were used to fund research rather than feeding the big pink machine.

 And boy, it sure has gotten big.

Dx 1/27/2010, ILC, <1cm, Stage I, Grade 2, 0/10 nodes, ER+/PR+
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Oct 6, 2010 04:24PM - edited Aug 20, 2013 02:53AM by pickle

I can't relate to the financial issues regarding insurance coverage etc because I live in Canada so coverage was not an issue for me. I didn't have to worry about any co-pays, deductibles or anything like that. I can't imagine how difficult it must be for some of you gals facing financial decisions due to SFBC ( Stupidd F'N BC). I had enough to worry about without adding the financial stress. However, I am grateful for the funds that get raised. The money goes to research which develops new drugs and treatments, as well as wigs, prosthesis, mental health programs, social work progarms etc for those that need it.  I really feel for all the people that are faced with no insurance .....I understand why you may not give a darn about other free services. It must be so disheartening for so many people that don't have adequate coverage. I may be naive but I really hope that any funds that are raised during the big PINK ribbon campaign works towards better solutions for everyone. I am still hopeful and I will continue to embrace the PINK....$$$$ = cure....we don't have an alternative to the PINK yet so I say take what we can get and hopefully we will find the cure.

Edited to add: We absolutely need a cure but awareness and early detection still need to be highlighted. IBC and ILC still don't get the attention they need. Everyone is still looking for the little round lump....guess what...I am educated and well informed but ILC was a sneaky little cancer that caught me off guard...no one ever told me to look for anything but a lump...I now know that a thickening of tissue even though it is not a round lump is a big red flag. What do people with IBC know ahead of time. ...not much! There is still a lot of eduaction to be done.

Cheers to all my BC sisters

Beth P

Dx
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Oct 16, 2010 08:24PM thesuiteshoppe wrote:

I find Pink October fairly useless for those of us who are suffering with the disease.  I see pink all around me, but I'm struggling to pay for my next surgery, and I need dental work done but I can't find a dentist who will give me a 'pink discount'.  Yet, tons of dentists here in Utah are donating to the Susan B. Koman for the Cure foundation. How about donating directly to the folks who have the disease?  Or just doing something nice for someone with breast cancer in honor of Pink October?  Medication, chemotherapy, stress, all of those things take a toll on our health and our teeth and our bodies.  There are so many industries that could really make a difference for us this month. It makes me wonder if the great big charities really have our best interests at heart or not.  A couple of weeks ago I went to a luncheon provided by the Utah Susan B. Komen chapter.  It was a nice lunch, but the guest/final speaker was insulting.  She had never had cancer, she had always been wealthy and beautiful, and she really had nothing of value to say to the courageous women who were listening to her.  I wondered how much she was being paid to speak to us.  I wondered how much money was being wasted on the hotel ballroom, and the mediocre food.  As lovely as the gesture was, a nice luncheon for survivors, I wondered if it couldn't have been put to a more practical use.  Please don't label me as ungrateful, I just believe that there is too much need among cancer patients to waste charitable contributions.

Dx 6/22/2011, DCIS, 4cm, Stage I, Grade 2, 0/0 nodes, ER+/PR-
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Oct 16, 2010 08:50PM karen1956 wrote:

I don't mind the pink....its not just awareness for me...but I want people to put a face to BC...to know how many lives are impacted by the beast....I'm not for pink vacuums or pink food processors, but I don't mind the pink ribbons or bracelets etc...We not only need a cure, we need a prevention....we need support for women (and men) who don't have insurance for hte $ to pay for the needed Tx....

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Oct 17, 2010 07:06AM - edited Oct 17, 2010 07:11AM by lovemygarden

suiteshop, I am in 100% agreement with you. It's as if current bc patients are the forgotten stepchildren when it comes to financial help. As someone who is uninsured but not yet poor enough to qualify for "charity" level assistance, I discovered the disparity very early on.

I also get riled up when I hear people (who btw are mostly those who do NOT have a serious disease!) criticize "Big Pharma" for greediness etc etc. Especially now in an election year. I'm normally not snippish but on that topic I do jump in and set them straight: If it wasn't for "Big Pharma" (Genentech) I would not now be getting Herceptin. Yes, most of my providers are giving me some sort of discount (the labs are the big exception to that, for some reason none of those cut fees unless you are hardship-qualified) but $100,000+ for the Herceptin would have been impossible unless I were to sell my house and go live in a rathole somewhere. Genentech saved my medical AND financial future, and I'm by no means the only one.

But where are the Pink Elephants (Komen, ACS, etc etc) in edge-of-disaster situations like this? NOWHERE. If Genentech had declined to supply my Herceptin, would any of them have stepped in to help? Hell no.

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