Topic: Disability Insurance and Finding a Doctor

Forum: Employment, Insurance, and Other Financial Issues — Employment, insurance, and financial concerns are common. Meet others here to discuss and for support.

Posted on: Feb 27, 2011 10:39PM

Posted on: Feb 27, 2011 10:39PM

makingway wrote:

I need to find a doctor in my area who acknowledges that lymphedema and post mastectomy pain syndrome are actual valid conditions/disabilities. I need this documentation in order to win my Disability case. My surgeon refuses to acknowlege that I have either. Most likely because the surgery caused the conditions. My general doctor does not have any experience with these conditions.Can anyone recommend a doctor in the Orange County/Los Angeles CA area?

Visit my website for helpful tips when using cold caps:penguincoldcap.wix.com/help Dx 3/2/2009, ILC, 4cm, Stage IIB, Grade 2, 1/19 nodes, ER+/PR+, HER2-
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Feb 28, 2011 12:41PM gale1525 wrote:

My BS is really good, as soon as I got lymphedema she recommend PT for it. I don't have the post mastectomy pain sydrome, but after surgery I didn't have a problem with getting pain meds. My doctor is Tomi Evans she it a really caring person and everyone who I know that had her loves her. She is in Long Beach 701 east 28th street, Long Beach, ca 90806 PH# 562 426-0338.

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Feb 28, 2011 12:55PM dlb823 wrote:

makingway, UCLA treats LE very seriously, including having LE specialists on staff.  Here's a link to their information.  Short of seeing them (which you might consider, especially if you're also looking for relief), the wording used here might even be helpful in describing your situation:

http://www.simmsmanncenter.ucla.edu/information/insights_summaries/2003/2003_Rosenberg.asp

I didn't look further, but I would be surprised if UCLA doesn't have an excellent pain management department, as well.   Deanna

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Feb 28, 2011 07:38PM makingway wrote:

Thank you both illustro and Deanna! I will have to pay out of pocket to see a qualified doctor, but I don't have any other choice. My survival depends on my winning my disability case. I've searched PMPS on the interent. There just aren't many current articles on the subject. Lots of blogs, but no science seeking understanding or remedies.

Visit my website for helpful tips when using cold caps:penguincoldcap.wix.com/help Dx 3/2/2009, ILC, 4cm, Stage IIB, Grade 2, 1/19 nodes, ER+/PR+, HER2-
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Mar 1, 2011 09:06AM momcat1962 wrote:

Then you haven't many, JbinOK! I have an autoimmune disease that so many I know are in far worse condition than I, and their apps are barely looked at! Disability is NOT easy to aquire.

Making: Keep trying! Appeal, if you do not get results! Let us know!

JER. 33:3 ...ADH Surgery 7/29/2013 Lumpectomy; Lumpectomy (Left)
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Mar 1, 2011 02:43PM makingway wrote:

JBinOK-The doctors you are referring to are not there to treat people. Their function is solely to evaluate, as you wrote 'determine', 'if' the patient has a condition. I was required by Soc. Sec. to see one of these doctors.  It was the least thorough exam I've ever had in my life. I think that's what Momcat1962 was referring to with her 'barely looked at' statement.The doctor did little more than have me walk across the exam room. I assume that since I could walk, he assumed I had no condition. He didn't even ask me about the type of pain I was experiencing i.e., Is it sharp, dull, throbbing? The result of his inadequate exam led to Soc Sec. disapproving me of benefits. One of their findings was that I could carry 10 lbs. on a continual basis and lift 20 lbs regularly. I don't know what planet they are living on, but it isn't the same one I'm on... I have appealed their 'determination' but now I must find a legitamate doctor who understands my conditions (which isn't easy, since most have no knowledge of PMPS) and is willing to take the time to fill out the tedious paperwork required by Social Security.
Visit my website for helpful tips when using cold caps:penguincoldcap.wix.com/help Dx 3/2/2009, ILC, 4cm, Stage IIB, Grade 2, 1/19 nodes, ER+/PR+, HER2-
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Mar 25, 2011 12:11PM lookingforward4more wrote:

This is an interesting thread! I recently had to leave my job of 7years due to increasing problems from my breast cancer treatment. I have had nuropothy in my feet and hands from my chemo treatment that is not resolving (three years). The sharp and burning in my feet require me to take four pain pills per day. I have also develped stage 2 lympodema in my arm and hand and have had two bouts with cellulitis that required me being in the hospital. I am depressed and dealing with a lot of bone pain. There are other issues from my treatment as well. The reason I am listing them for you all is that I am applying for social security disability and will desperately need the income when my savings run out! I went to a respected and well known disability attorney and he agreed to take my case and thinks that I will get approved. It make take a year or two but I can't work anymore so I have no choice.

85% of social security disability applications get turned down the first time. You need to be very diligent and keep appealing the negative decisions. Thankfully my oncologist, nuerologist and pain specialist are supporting my application, but still I anticipate a difficult journey. It is sad that breast cancer patients have such a difficult time getting assistance when so many of our "treatments" result in long term pain/health issues. I take arimidex and my neurologist said "how is your chemo treatment going" and I said "oh, I finished chemo two years ago!" to which he said "arimidex is a form of chemo, a pill form, but still a form of chemo". I did not know that! It is important to have supportive doctors and to tell them EVERYTHING you are coping with. God bless!

Dx 11/13/2007, IDC, 3cm, Stage IIIA, Grade 2, 2/24 nodes, ER+/PR+, HER2-
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Mar 28, 2011 03:09PM makingway wrote:

dlb823-You are mistaken, UCLA does not take lymphedema seriously. I called for a physician referral and there are none-NONE!! They did refer me to a doctor in Santa Monica who is not affliated with UCLA. I swear I feel like I've been thrown to the wolves...
Visit my website for helpful tips when using cold caps:penguincoldcap.wix.com/help Dx 3/2/2009, ILC, 4cm, Stage IIB, Grade 2, 1/19 nodes, ER+/PR+, HER2-

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