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Jun 2, 2011 12:49AM
petjunkie
wrote:
In my case, the date of my disability was not the date I was diagnosed stage IV, but the date I stopped working. So for me, that was Nov 1. I was eligible to receive benefits starting in May, so my first check arrived in June. It only took about 3 weeks for my application to be approved-- but if I had been working, they wouldn't have approved me. You have to be totally disabled-- unable to work-- and then there is the waiting period before benefits begin.
I think that SSI is supposed to help bridge the gap for people who qualify. I had savings and a retirement account, so I didn't qualify for SSI, so I don't know much about it.
The other bummer is that there is a 2-year period before you are enrolled in medicare. So I had no income for 6 months, then got only social security income (which in my case was about 20% of my former salary), and with my small social security income I'm paying a ton for COBRA coverage and in copays for medical stuff. It's crazy.
The only way I could do it was to get help from family and also to cash out my 401K to pay off bills and cover me for that 6 months. Even now, I would be struggling terribly if my parents weren't helping me out. I'm 36, single, and hadn't paid into the system long enough to have my Social Security payments be very high. I can't get insurance through a spouse. It's hard on single folks, for sure.
I did get my student loans forgiven because of permanent disability. If you can plan now, try to get the best handle you can on current expenses and sock away every dime for an emergency fund that i hope you never have to use. I cut down as much as possible on my spending and am now trying to learn how to get good deals through coupons, etc. It's a whole new life, for sure...
Dx
10/2007, DCIS, 6cm+, Grade 3, 0/5 nodes, ER+/PR-, HER2+
Dx
10/2009, IDC, Stage IV, Grade 3, mets, ER+/PR-, HER2+