Posted on:
Apr 22, 2021 01:08PM
U
Joined:
Mar 2013
Posts:
292
Latest activity:
Apr 23, 2021
Posted on:
Apr 22, 2021 01:08PM
Ukkate
wrote:
My Oncologist told me that my risk of a secondary cancer was pretty high and said that I ought to get my breast removed at some point (he recommended at the 10 year mark when I would likely have my implant replaced). I'm 8 years out now and I made an appointment with the breast surgeon (my surgeon retired) and he said that insurance would likely deny this without a genetic risk. He's referring me for genetic testing but has anyone been successful getting this so many years later? My insurance information is vague.and talks about different risk calculators (which aren't applicable if you've already had BC).
Let me know if you've gone though this.
Dx
3/7/2013, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER-/PR-, HER2+
Surgery
4/10/2013 Mastectomy: Left
Targeted Therapy
5/13/2013 Herceptin (trastuzumab)
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dani444
Joined:
Jun 2018
Posts:
513
Latest activity:
Apr 16, 2022
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Apr 22, 2021 03:54PM
dani444
wrote:
I had a preventative mastectomy a couple years after my UMX. I know that’s not as long as what you are dealing with. I had no trouble with my insurance covering it and my genetic testing was negative. I am sure they would have a way with your high risk to justify it to the insurance. I hope you have a good meeting with your surgeon, I understand all insurance companies are different but I hope they can appropriately advocate for you.
DX @ 46, premenopausal, mammaprint low risk
Dx
8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2-
Surgery
10/25/2018 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Silicone implant
Radiation Therapy
12/6/2018 Lymph nodes, Chest wall
Surgery
8/20/2020 Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Silicone implant
Surgery
4/19/2021 Reconstruction (Left): Fat grafting; Reconstruction (Right): Fat grafting
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
U
Ukkate
Joined:
Mar 2013
Posts:
292
Latest activity:
Apr 23, 2021
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Apr 23, 2021 10:04AM
Ukkate
wrote:
Thanks for responding. It was the surgeon that gave me the "brush off". My original surgeon has retired and I feel like she would've fought harder for me. I'll talk to my oncologist (who recommended this in the first place!)
Dx
3/7/2013, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER-/PR-, HER2+
Surgery
4/10/2013 Mastectomy: Left
Targeted Therapy
5/13/2013 Herceptin (trastuzumab)