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All TopicsForum: Fundraising Opportunities for Breastcancer.org → Topic: Take the Fright Out of Breast Cancer™

Topic: Take the Fright Out of Breast Cancer™

Forum: Fundraising Opportunities for Breastcancer.org — Help support our organization, Breastcancer.org! Please note, this is NOT a forum for fundraising for other organizations.

Posted on: Sep 5, 2017 02:24PM - edited Sep 22, 2017 03:10PM by Moderators

Moderators wrote:

Hello Community!

We started this education and fundraising campaign to address fear as one of the many barriers that may keep people from getting the best care possible. We know we can never remove all of the fears around breast cancer. We know everyone responds to and lives with fear differently. Our goal is to motivate people to courageously and confidently make informed health and life decisions.

GET INVOLVED

Share the facts about breast cancer and breast health found in our toolkit.
Host a fundraising event (make it a Halloween party if you think that will help your friends and loved ones get involved).
Contribute your stories of addressing your own fears of breast cancer (just as no two cancers are alike, there is no one way through it).
Support each other by joining our growing community.

BREASTCANCER.ORG'S MISSION

Breastcancer.org is a nonprofit organization dedicated to informing and empowering people to protect their breast health and overcome the challenges of breast cancer. For more than 18 years, we have provided expert medical information to millions to help reduce the fears and anxieties associated with a diagnosis by providing the most reliable, complete, and up-to-date information about breast cancer, as well as hosting the largest and most active online breast cancer peer community.

YOUR DONATION'S IMPACT

Your support funds Breastcancer.org's educational and support programs. In a moment when many feel overwhelmed by their diagnosis and the critical decisions they have to make about their care, Breastcancer.org is there to answer their most pressing questions about breast cancer and connect them to a supportive peer community when they need it.

To quote Jackie, a Breastcancer.org Community member:

"Whenever I would have a new symptom or a question would pop into my mind, I could always find the answer on Breastcancer.org."

Your generous support is vital because it helps us deliver on our mission. Every gift counts. Give today in support of the millions who rely and depend on Breastcancer.org, not just this October, but every day.

Thank you!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Page 14 of 18 (513 results)

Posts 391 - 420 (513 total)

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Oct 11, 2017 09:38PM Libber wrote:

Micmel - You are not a poor peon Breast Cancer Care survivor. You are a person who is beating this beast. No labels allowed. We are all people who have to deal with whatever life throws at us. My mantra is no labels. Do what you have to do. I have had Type 1 Diabetes for 37 yrs. but for goodness sake I am not a “diabetic” I hate that label. I am a woman. Body parts that don’t work or have been removed don’t define who I am.

Wildplaces- completely agree with your points. Couldn’t have said it better.

Dx 10/12/2015, ILC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 11/4/2015, IDC, Right, 1cm, Stage IA, Grade 3, 1/2 nodes, ER-/PR-, HER2- Radiation Therapy 4/1/2016 Whole-breast: Breast, Lymph nodes Targeted Therapy 7/1/2016 Surgery 11/8/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy Xeloda (capecitabine) Surgery Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol)
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Oct 11, 2017 11:42PM - edited Oct 11, 2017 11:42PM by Traveltext


We can feel like peons or whoever we like here, but the fact remains that management have a long history of ignoring us. With the community, it's the opposite. It has a long history of supporting all who come here, from newbies to those doing late stage treatments.

Over the years many thousands of posts have been written on this board about how much most of us hate the way that breast cancer is presented in October, how breast cancer is trivialized in the promotions, and how the focus is too much on awareness (male breast cancer being an exception here) and not enough on a cure. People are led to believe that if only we got screened, breast cancer could be prevented (or at least it would be caught early enough to be certain to be cured). And the realities of breast cancer are often not accurately presented.

the real question is, why did BCO ever have come up with this promotion and think that it would be okay? Judging by the past, they will likely just ride it out and then keep doing whatever they please.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

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Oct 12, 2017 12:13AM - edited Oct 12, 2017 12:22AM by Micmel

Just so I am not confusing what was said. I would never call myself, (or anyone for that matter) a poor peon with breast cancer. It was mentioned in this manner in a previous posting.

"The management here have built a very solid thick line between "us" vs. "them". They run the site, they are the professionals. We are the poor peons with breast cancer who come here for support and advice, and to record our 'stories'. There's a lot of talent here which is totally un-utilized. management rarely considers we have anything of value to offer, obviously, since we're never consulted before they embark on their various campaigns." ........Now to move on from that statement:

I agree there is un tapped talent here. When I visited the BCO offices recently, I certainly didn't get the impression that "they" were "vs" us. They even were so familiar with the way this thread had caused such an uproar, that they named some ladies by their screen names that they noted had actually offered some excellent suggestions and ideas. they were compiling, and taking notes for future promotions. I spent an hour speaking with them about their website and how much I used it, I told them that no matter what campaign they come up with, as long as the material is so sensitive and claims so many lives, it will always never be ok, people become upset and offended at the constant reminders out there enough already. until that cure comes slamming home to us all who desperately need it. The campaigns and fund raisers must continue. Now I don't know about you, but if I knew a cure had been obtained because of a slogan and or campaign I wasn't really over joyed with, or maybe even go as far as to say I hated it. It certainly doesn't mean that I would say uh. "I don't like how that cure was funded, I think I'll pass". None of us would. Next year the plans and strategies may change based on all these opinions. They may not. But at the end of the days most times, if I am out and about and I see boobies this and boobies that. I just ignore it and thank god im lucky enough to even see another holiday season at all. Sleep well everyone. Getting closer to the weekend. Hugs ~M~

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 11/6/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Oct 12, 2017 12:51AM - edited Oct 12, 2017 12:58AM by PoseyGirl

Dear Micmel

Well said and good insights. Thank you for sharing your experience visiting BCO.

I completely agree that fundraising is vital to find a cure. But it's not my impression that this is BCO's mandate (finding the cure). I do think the message is important out there, especially for an organization whose raisond'être is to provide information and resources. I think that the realities of breast cancer must be represented properly by each and every one of us to create the right urgency among those who don't truly understand all that bc is or isn't.

I concur that the subject matter is sensitive and that in any very public campaign with many stakeholders there will always be some dissent. However, when the din becomes a roar, there is something going on. I'm not on this thread because I'm an armchair critic or because I want to watch BCO go up in flames or because any of this is fun. This is an important organization doing a lot of good.

I simply believe the campaign is blatantly inappropriate and setting us back a decade in terms of public messaging. I think a good and powerful campaign is within reach and I think words and branding do matter. They matter a lot precisely because we do desperately need a cure and because this IS so sensitive a topic.

Thank you, though, for bringing some order back to the 'house' here ;)

Radiation Therapy 1/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 6/23/2016, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2+ (IHC) Chemotherapy 7/11/2016 AC + T (Taxol) Targeted Therapy 9/15/2016 Herceptin (trastuzumab) Surgery 11/29/2016 Lymph node removal: Right; Mastectomy: Right Hormonal Therapy 12/21/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 12, 2017 01:20AM Meow13 wrote:

I believe these campaigns like taking the fright out of breast cancer give people the wrong impression. The impression I am talking about is getting mammagrams and reducing risk factors will keep you safe or somehow make a cancer diagnosis a non event. If you caught it early you will be just fine. It is not true, the fact is the treatments have not changed that much and people die all the time from this disease regards.

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Oct 12, 2017 01:51AM - edited Oct 12, 2017 05:52AM by Wildplaces

ok let's go back to basics - Breast cancer vampires and bats do not belong on the same slogan!

Any which way you put it.

It's not a subject for dissent, it is just plain silly.


Furthermore what would the Community say if the slogan is

" Take the fright out of lung cancer!"

" Take the fright out of glioblastoma"

" Take the fright out of pancreatic cancer"

Not so catchy ahh?

Why not ?

They have a worse prognosis at initial diagnosis? Those are the scary cancers...??

Does the slogan

Take the fright out of breast cancer

Send out the message that breast cancer is somehow softer, it will not kill you, you have more options, maybe not even cancer after all just a chronic illness ...??

What has been HARD won with breast cancer - and remains elusive for many stage 4 women/men can not be dismissed by saying...ohhh but you are probably going to be fine, don't be frightened - show up for your mammogram.

All suffering matters.

And in my opinion HOW you raise funds counts - because what you may get feel you are getting away with today, might come to bite you in the butt/ bat 😱 tomorrow.

I think most of us would have been more philosophical if BCO said - well you see Pfizer is crazy about bats and they will invest big time if we can just get the party going...now I am sure that is a PINK song


It's started and it will not be easy but there must be some way to turn this around.



Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 12, 2017 09:27AM nihahi wrote:

I couldn't disagree more with the mindset of "it doesn't matter how you raise funds". Ethics matter to me, no matter what the topic.

Why do we need to keep reinforcing the reality that bco is NOT pursuing this campaign on behalf of a "cure", but for a technical update to the website, as per their statement.

The most discouraging part of this to me...every year there is an outcry from members about bco launching or attaching itself to fundraising that is insensitive, inaccurate and downright offensive to many of the members. Every year, they say "we hear you, we will do better"...the hypocrisy is predictable at this point. WITHOUT the members/discussion boards, bco would be just another "informational website", one of thousands if not millions out there. So why, EVERY YEAR, does bco choose to discount the feedback of the members, and pander to the "corporate mindset" of its board members?

"Comparison is the thief of joy" Dx 10/1991, IDC, 2cm, Stage II, 0/7 nodes, ER+/PR- Surgery 11/7/1991 Mastectomy: Right Chemotherapy 11/29/1991 Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex) Hormonal Therapy 5/31/1992 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/7/1992 Reconstruction (right) Surgery 5/7/1997 Reconstruction (right) Surgery 4/12/2013 Reconstruction (right): Free TRAM flap Surgery 1/8/2014 Reconstruction (right) Surgery 4/14/2014 Reconstruction (right): Nipple reconstruction
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Oct 12, 2017 10:08AM - edited Oct 12, 2017 10:11AM by Outfield

From what's been stated as the intent of the campaign, "Take the Fright" would not send money in any direction likely to lead to cure. It's coming back into this website. There are other organizations that do channel funds toward research, but those organizations aren't what we're talking about. We're talking very specifically about BCO.

I agree with Nihahi on a very basic level. The ethics of how we conduct ourselves does matter. It matters in everything we do. My own day is filled with tiny decisions where I consciously or unconsciously weigh a choice that would benefit only me and hurt others versus a choice that would not benefit me but also would not harm others. Some of these decisions are little. Do I point out that the cashier gave me too much change? Do I let the driver in trying to merge? Some are not quite as little. Do I agree to the inconvenience of changing my follow-up appointment because there is a patient who needs to be seen urgently? Do I misrepresent my patient's history when referring for a limited service because I really want them to have it? Some are much, much bigger. Do I tell this patient my mistake harmed them? Do we do experiments on people who are going to die anyway? The process of using your, your organization's or your society's values to make these decisions is ethics.

In medical ethics, the first step is to clearly frame a question, and I can't see how that would be different in any other ethical dilemma (ethicists out there, correct me if I'm wrong). Our question here isn't whether scientists should take money from sources who have (intentionally or unintentionally) hurt patients if they are researching something that could cure disease. Our question is whether an organization that wants to improve its website should use a fundraising mechanism that offends and hurts some of its community.

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Oct 12, 2017 03:32PM VL22 wrote:

A good discussion. I personally have no issue with BCO funneling money back into the website - they are honest about it and it is necessary. However, I don't think you can or should take the "fright" out of BC. Not with so many men and women still dying from this disease every year. That being said, without this web site, I'd be lost. The connections I've made here are truly getting me through

Dx 5/5/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2017, IDC, Right, 1cm, Stage IB, Grade 3, ER-/PR-, HER2- Chemotherapy 8/10/2017 AC + T (Taxol)
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Oct 12, 2017 05:09PM dlb823 wrote:

From Outfield's post... "Our question is whether an organization that wants to improve its website should use a fundraising mechanism that offends and hurts some of its community." To which I would add... "...and helps to perpetuate a misinformed public perception that it's okay to celebrate a deadly disease by associating it with a holiday." It's not just that I and others are personally offended by it, but I feel it's in stark contrast to BCO's educational commitment. You cannot on one hand say, "We are the premier resource for factual information about breast cancer," while at the same time making a cutesy connection between breast cancer and Halloween. At least not IMO.

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Oct 12, 2017 08:22PM - edited Oct 13, 2017 04:51AM by Wildplaces

Wow!!! 😊🌷

Outfield - well said!

I come here because it is one of the few places ( maybe the only one) where I can freely voice my fear.

I am not looking for factual info, I have ample access to numbers and oncology.

I am looking for the wisdom and sensitivity of the women who live with breast cancer.

Seeing their fear helps me be honest about mine.

I need a safe non judgemental place to be honest about that fear.

SadiesS said in one her posts " I am going to stare this bugger down"!

She is tough clever kind and has Stage 4 breast cancer.

It's NOT about taking the fright out - it's about facing that fear and starring the F...ing thing down!

Did I just give you another door out????

Okay maybe without the profanity...



Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2017 11:58AM Outfield wrote:

VL22 - The Community here has been very valuable to me. They basically held my hand and gave me wise advice while I waited to be seen by a lymphedema therapist after my lymphedema came on. I will always be grateful for that. I'm a little suspicious of what BCO is planning to do to their website since they've said they want to make it a "more personalized" experience - I don't particularly want a "personalized" experience, that feels creepy - but I recognize their right to change their website.

Deanna - absolutely. That's why it hurts me. Conflating a fun holiday for kids and a serious disease deeply insults me and the suffering I've gone through, but - you're right - the public connection of cutesy marketing ploys and this horrible disease helps nobody. "Oh, be glad you got breast cancer and not a serious cancer."'

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Oct 13, 2017 01:05PM AnimalCrackers wrote:

By the way - who decided that the 13th of any month, no less October (Halloween month), was a good date to associate with Metastatic Breast Cancer Awareness?  Especially this year, since it falls on Friday the 13th.  We've had our quota of unlucky for a lifetime already.  We are painfully aware that we have MBC, and we are painfully aware that there is no cure, but just in case any of us were feeling particularly lucky to be alive let's heighten awareness of just how unlucky we are by assigning unlucky number 13 to the day.  Maybe it was a precursor to hijacking Halloween to take the fright out of breast cancer.  After all Halloween is on the 31st.  13/31 or 31/13 - there's a certain symmetry to that.  Coincidence?  

Sorry for the rant.  Maybe there's a full moon brewing.  But no worries, nothing to be afraid of here.  

Cathy, diagnosed Stage IV de novo June 2014 (age 52). Bone mets at initial diagnosis. Progression to Liver April 2017. Bisphosphonate infusions (Zometa) every 3 months. Clinical Trial LSZ102 (oral SERD) and Kisqali (Ribociclib) 5/18/17-11/16/17. Dx 6/23/2014, IDC, Left, 4cm, Stage IV, metastasized to bone, mets, ER+/PR+, HER2- Hormonal Therapy 6/23/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/4/2016 Femara (letrozole) Targeted Therapy 1/4/2016 Ibrance (palbociclib) Dx 4/2017, IDC, metastasized to liver, ER+/PR+, HER2- Hormonal Therapy 5/17/2017 Targeted Therapy 5/17/2017 Kisqali
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Oct 14, 2017 12:50PM HapB wrote:

I have just started reading some of the posts on this thread and just want to briefly give my thoughts. I thnk that many of the nonprofits for Breast Cancer do patients a terrible disservice by minimizing breast cancer and this “take the fright out of BC” is a prime example. These campaigns give the public the impression that breast cancer is no big deal, should not be feared, and is cancer-lite. I have a basis of comparison, as this is my third unrelated cancer. The reaction that I have received from family and friends with this cancer is very different. The general public does not take this cancer seriously, which is so wrong. Breast cancer is not pink and pretty and should damn well be feared! Thousands of nonprofits and for profit companies take advantage of BC to solicit funds for their operations or to sell their products! A very small percentage of all the money that the public thinks is going to find a cure for breast cancer actually gets to researchers! It is morally wrong. I particulary dislike when I see products that are actually carinogenic or unhealthy use a pink ribbon to sell their poisons! We, as breastmcancer patients, need to speak up and tell the public that we need money to go to reesearch. I suggest everyone who has a FB page post a suggestion that if anyone really wants to help BC patients that they donate to a reputable research hospital. There is virtually no other cancer that is used as a marketing tool. It is wrong to tell the public that this cancer is not to be feared!
Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
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Oct 14, 2017 10:17PM Wildplaces wrote:

HapB,

Thank you.

" it is wrong to tell the public that this cancer is not to be feared"

Is a very powerful statement.

If not convinced by the thoughts and feelings of those with breast cancer,

There is one more thought to consider?

Do you want to be seen as telling women not to really fear this, it's ok to postpone that check up, that mammogram probable does not need to be done before 50....and so on.

There are responsibilities with the reputation of such an organisation.

I found solace in this community

It is with deep regret that I write this.

Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 14, 2017 11:19PM kathindc wrote:

HapB, well said.

I had an interesting thought: how many women/men were/are on the planning committee/event team for this campaign; of those, how many have been diagnosed with breast cancer; and lastly, how many of them thought this campaign was a good idea to go ahead with?

I know we were told that we were given an opportunity to be involved with this by way of one of the announcements, but I personally don't pay much, if any, attention to them. If others are like me that explains the low response from the community. And when this happened, wouldn't it have been a smart idea to have put the request for feed back on the threads?

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Oct 14, 2017 11:21PM Jojo0529 wrote:

well said traveltext. I am still

Shocked that this was even an idea! I read it a few times thinking I must have missed something. Breast cancer is very scary. Taking the fear out?????? Invalidates us a group .. we have every right to be fearful.., omg it is infuriating. Who came up with this idea? Someone who has stock in mammography equipment

ONCO 17 ....ki-67 25% miotic 1. Dx 7/30/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/20/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 9/3/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2015 Arimidex (anastrozole) Surgery 1/11/2016 Prophylactic ovary removal; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
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Oct 14, 2017 11:29PM Jojo0529 wrote:

agreed! Well said Posey. I am still amazed that someone thought this was a good idea ... actually the fact that bco thought this was a good idea is scary and puts fear in not out ...

ONCO 17 ....ki-67 25% miotic 1. Dx 7/30/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/20/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 9/3/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2015 Arimidex (anastrozole) Surgery 1/11/2016 Prophylactic ovary removal; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
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Oct 14, 2017 11:33PM Traveltext wrote:

HapB, the community was not consulted about the format of this campaign. Ages ago, the community was asked about their fears in relation to breast cancer. Many people here poured their hearts out Addressing this topic not thinking for a minute that somehow their fears would be morphed into a campaign linking fear of breast cancer with Halloween. This was unethical sleight of hand by management IMO, and we were duped.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

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Oct 14, 2017 11:53PM Tomboy wrote:

In a very real way, BCO itself, just by being present and available on the web for me when I googled just a few days before doing chemo, actually did take some of the fear out of it for me. I had never really thought to be afraid of breast cancer, I guess I never thought it would happen to me. But over the course of years, I had become fearful of ever having to do chemo, because I saw some of its consequences that happened to various friends. Even though in many cases it can save or prolong lives, it can also be very damaging.

To me, there was little difference between BCO, and the very well informed and great women who post here. I know technically, its different, but when talking of the friends and acquaintances I have found here, and the 'site' itself, it's the same thing. Shorthand BCO when I mean Beppy or Molly or Sandy.

I almost don't care how they make money, as long as they stick around for new women to find. Because unlike pink candy, they really do make a difference. I am an artist and might not be the best one to ask, but I made this pink ribbon, because of my reading on here and elsewhere, I really know BC can be treated, but not cured. I call it, The Real Pink Ribbon. Since I also thought it was odd that MBC day was the 13th, and BC awareness month was October. Copyright by me, but I would love to partner with BCO to sell them for a fundraiser, because I myself can no longer do the work I did before treatment.

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Oct 15, 2017 01:10AM Wildplaces wrote:

naaah, could never confuse the individual women I was so privileged to glimpse at with a site/organisation..

Their kindness and generosity knows no bounds.



Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 15, 2017 10:21AM nihahi wrote:

tomboy...gawd, I hope you are being sarcastic...

"Comparison is the thief of joy" Dx 10/1991, IDC, 2cm, Stage II, 0/7 nodes, ER+/PR- Surgery 11/7/1991 Mastectomy: Right Chemotherapy 11/29/1991 Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex) Hormonal Therapy 5/31/1992 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/7/1992 Reconstruction (right) Surgery 5/7/1997 Reconstruction (right) Surgery 4/12/2013 Reconstruction (right): Free TRAM flap Surgery 1/8/2014 Reconstruction (right) Surgery 4/14/2014 Reconstruction (right): Nipple reconstruction
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Oct 15, 2017 11:29AM - edited Oct 15, 2017 12:30PM by Lisey

I just have to jump in here. Who the hell would wear a female skeleton on their bodies to show support for BC survivors? It's so macabre. Also, just to point out. While 30% of early stage will reoccur, that means that 70% never do. IMO that means 70% are cured after they end their treatments.

Edited to add: I'm in marketing as well and while I think the campaign may be a little insensitive towards some members struggles and battles, overall the campaign was meant to be lighthearted and fun and appealing to the positive. I personally have no issues with it at all. Using themes in campaigns to make them fun make donors wallets flow - so I completely understand why they chose Halloween / costumes. The wealthy love costumes and dress up. (I'm involved in a conference every year that has a 'ball' at the end and you will see all these wealthy senior people in the theme of the year - no matter how out there). Stage 4 women are NOT the audience, wealthy donors/corporations are.

I'm grateful for BCO, love their forums - though people get really spiteful at times - if this campaign helps them stay afloat, I support it.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 15, 2017 02:03PM Tomboy wrote:

I would not have found the women I love and respect without bco, it's where I found them. I refuse facebook for many reasons, and although there are other forums for breast cancer, I really think BCO is the best, by far. The pink ribbon was not meant to show support, it was to tell the truth. If there was a cure for breast cancer, then why would we keep looking for something if we've already found it?

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Oct 15, 2017 02:09PM Lisey wrote:

There isn't an universal cure at all. However, many women are cured with the treatments. We do need a universal cure for all the cancers, but to suggest that no one is cured is inaccurate imo. Most medicines have a percentage of people they do not work on. My little cousin had Leukemia and the treatment she had 'cures' about 75% of all young patients. So would you suggest that those 75% aren't cured just because 25% fail to respond? I would say, most 'cures' are never 100% effective, including antibiotics. That doesn't mean they don't cure people... just not everyone. Women are 100% cured from breast cancer with treatment, we just have to wait decades to know which ones they are..

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 15, 2017 02:12PM Tomboy wrote:

How long before your cousins family knew she was cured?

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Oct 15, 2017 02:14PM Tomboy wrote:

The 'cures' for most kinds of cancer are mostly brutal.

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Oct 15, 2017 03:00PM Meow13 wrote:

Tomboy, Amen. My SIL endured grueling treatment now she is at peace. She tried everything to stay with us.

Better treatment is what we should be spending money on not ridiculous studies like the one linking BC to hair dye.

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Oct 15, 2017 04:35PM Wildplaces wrote:


Lisey - " who the hell would wear a female skeleton to support BC survivors? It's macabre"

Your words not mine. I agree.

Please tell me what makes the skeletons, vampires and bats of Halloween and BC less macabre??

I understand the potential marketing ploy - lets get a whole lot of " wealthy senior people" sloshed at a party - I believe that is an outdated, plain lazy and ineffective tactic.

The wealthy stay wealthy because they know how to guard the significant portion of their money, even when in costume. You want to reach them - GET REAL! And start by not insulting their intelligence.


Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 15, 2017 04:52PM - edited Oct 15, 2017 04:59PM by Wildplaces

Lisey - on "cure" ??

I note that you had a Stage 1a IDC - low grade, ER positive, no nodes and good testing - your stated treatment of choice was a Bilateral Mastectomy.

What else beside the 1 in 3 fear/concern of Metastatic Breast Cancer drove that decision?

Lisey - 1 in 3 women ( lets go 1 in 4/5 if the stages are earlier) live with gruelling treatments.

Metastatic BC cancer has a 1 in 3 chance of 5 year survival at present.

I understand the wish to move beyond our cancer.





Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)

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