Dec 22, 2017 05:05PM
Dec 22, 2017 05:13PM
$2.5 million, for something that most likely could be done pro bono? $2.5 million, to rebuild a site that is not broken and is in fact working quite well? Yikes, that does bear explaining.
I agree with Nihahi that if BCO are interested in sharing information about their plans, it would be preferable if they could post the information here on the discussion board so that everyone can easily access the information at the time of their own choosing. Of course it's BCO's choice to share this information or not.
Lisey, as someone who has been on the board almost 12 years and who has over 8,900 posts, I can assure you that I have not been using this site for my own benefit. That may have been true for the first 6 months I was here, but since them, most of my posts have been written for the assistance of others. The time and effort I have put into my responses over these years has been my 'donation' to this site.
This discussion board would not exist but for the contributions of people like Traveltext, nihahi, BarredOwl, marie5890, MTwoman, MelissaDallas, djmammo, Annette47, SpecialK, ElaineTherese, Exbrnxgrl, Binney4 and the dozens of other people who selflessly take the time to write posts that offer advice, support and comfort, and who do the research and digging to provide helpful and accurate information to all the men and women who come to this site every day with their questions. To suggest that these people, and all the others who contribute here, are "not doing any work to actually make it happen" is astonishing.
No offense to the people who run breastcancer.org, but frankly when it comes to the rest of the site, I've found other sites that I feel have more thorough, accurate, up-to-date, and helpful information about all the various aspects of breast cancer diagnosis and treatment. So to me, this community forum is what BCO is all about and the forum simply wouldn't exist as it does today, as a thriving discussion board, without the active participation of the board members. Therefore we are the biggest stakeholders in this community forum. We are the community. That's why I agree with Nihahi that BCO should put the information out in a way that it can be easily accessed by all of us who participate on this discussion board. And that's why I think we have every right to voice our opinions, raise concerns when we have them, and offer suggestions as to what we believe will and won't work as the site is updated and changed.
In the end, however, BCO own this site, and they make the rules and they get to decide. Of course.
Edited to Add: I notice that this thread does not appear in "Active Topics". I guess that's BCO's way to limit discussion on these issues.
Dx 9/15/05, DCIS-MI, 6cm+ Gr3 DCIS w/IDC microinvasion, Stage IA, 0/3 nodes, ER+/PR- “No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke