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Topic: Breastcancer.org: Bone Health Section

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Jun 7, 2011 05:24PM - edited Aug 12, 2011 04:43PM by Moderators

Moderators wrote:

For some great information, check out Breastcancer.org's Bone Health section.

Hope this helps!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Posts 1 - 12 (12 total)

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Jun 7, 2011 08:29PM hymil wrote:

Hey we got our own forum area Hooray!  Thanks, mods Smile
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Jun 7, 2011 08:36PM luv_gardening wrote:

I'm still working my way through the articles.  Shame they aren't linked though.

I'm hoping people will see the new section and use it now the mods have been so kind as to start it for us. 

Dx 7/2/2009, ILC, 4cm, Stage IIIA, Grade 2, 9/24 nodes, ER+/PR+, HER2-
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Jun 8, 2011 08:03AM Heidihill wrote:

http://www.breastcancer.org/tips/bone_health/loss.jsp

http://www.breastcancer.org/tips/bone_health/measuring.jsp

http://www.breastcancer.org/tips/bone_health/breast_cancer.jsp

http://www.breastcancer.org/tips/bone_health/keep_bones_strong.jsp

Hope these are linked now.

Dx 8/2007, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/24/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 8, 2011 08:29AM otter wrote:

Thanks, Heidi -- live links are better, and yours work nicely. Those articles are a great start for those of us who need general information. 

The second article does a nice job of explaining what a DEXA bone scan is, and how the results are interpreted.  There's even a picture of the screen results/printout from the scanner.  The fourth article provides quite a bit of detail on the treatment options, including the "SERMS" (e.g., tamoxifen and Evista), bisphosphonates, and the newest treatment option -- "denosumab" (Prolia), which is a monoclonal antibody that's injected subcutaneously.

I'm hoping we will get more threads going in the next few days.  I have some links to medical articles and editorials I'll dust off in the next few days; I'll post the useful ones.

otter

Dx 2008, IDC, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2-
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Jun 8, 2011 12:12PM Claire_in_Seattle wrote:

I want to direct you to the work of Dr Miriam Nelson of Tufts.  She did the pioneering work in strength training and the importance of staying fit as we age.  This is a summary from work done more than 20 years ago.  It made a major impression on me at the time as was reviewed in Prevention Magazine.

This is from the Strong Women website:

My study followed 40 postmenopausal women for a year. All
were healthy, but sedentary; none was taking hormones. Half the volunteers - the
control group - simply maintained their usual lifestyle. The others came to the
Tufts University laboratories twice a week and lifted weights.

Most women begin to lose bone and muscle mass at about age
40; in part because of this, they start to slow down. And that's exactly what
happened to the women who didn't exercise. One sedentary year later, their
muscles and bones had aged, and they were even less active than before.

The women who lifted weights changed too - but in the
opposite direction. After one year of strength training, their bodies were 15
to 20 years more youthful.

  • They became stronger - often even stronger than when they
    were younger.
  • Without drugs, they regained bone, helping to prevent
    osteoporosis.
  • Their balance and flexibility improved.
  • They were leaner and trimmer, though eating as much as
    ever.
  • The women were so energized, they became 27 percent more
    active.
Completed all treatment (AC +T, lumpectomy, radiation and 5 years of AIs - anastrazole). Now celebrating every single day for the wonderful life I have been granted. Dx 8/2009, IDC, Left, 2cm, Stage IIB, Grade 3, 1/21 nodes, ER+/PR-, HER2- (FISH)
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Jun 8, 2011 03:13PM otter wrote:

Claire, I have an idea.  How about starting a new thread on this new "Bones" forum, dealing with exercise and weight-lifting as a way to maintain bone density and/or combat bone loss?  You could just copy-and-paste your post (above) and make it the O.P. on that new thread.

I think the issue of weight training to combat the effects of aging is important enough to have it stand alone as a thread/topic, rather than have it buried in this general "informational" thread.  Okay?

otter

Dx 2008, IDC, Stage IA, Grade 2, 0/3 nodes, ER+/PR-, HER2-
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Jun 8, 2011 03:48PM KayeBG wrote:

I would love to see a forum titled Bones-Weight Training or something like that for us to exchange info.  Glad I spotted this thread.  I want to do this, but am concerned about doing it "right" especially because I am already having lyphemdema issues and I do not trust the over zealous young trainers at our health club.

kayebe

Dx 11/2/2010, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR-, HER2-
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Jun 8, 2011 09:04PM LtotheK wrote:

KayeBG, I'm am with you.  Would love to get a trainer in place, but super-wary of the LE potential issues!

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Feb 23, 2012 05:58PM Annabella58 wrote:

How about us lat flap ladies?  I have plenty of strength, but if I overuse my left arm, my breast distorts.  (under the muscle and thin rads skins)

How can we lift weights?  If I do, the "iron bra" comes back.

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Apr 7, 2014 02:07PM Rosieo wrote:

Hi everyone

Need advice!! My last dexa scan figures went down.  My oncologist and primary want me to

take something prescribed for this.  My primary suggests Prolia.  I have read from people that take

it on the Prolia website but I would rather speak to some of you ladies on here.  

Thanks 

Rosieo

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Apr 7, 2014 03:59PM spendygirl wrote:

Hi Rosieo.  I've learned that not even many doctors are familiar with Prolia yet, so I wanted to tell you what I know.  I had my first Prolia injection in December, 2012.  To be honest, I didn't really have any side effects.  I was a little more tired than usual, but I was blaming it on Femara.  When I went for my next injection six months later, I was informed that my insurance would not cover it because of the cost.  So I had to take Fosamax.  I could only tolerate it for 7 weeks.  I had debilitating back pain, so much so that I was convinced I had mets somewhere.  Coincidentally, my tumor markers went up at the same time.  Had a bone scan, everything was fine.  Onc took me off that for a month, then went on to take Actonel.  It was not quite as bad but the same exact symptoms.  I decided I would rather risk a fracture than feel like that all the time.  After failing two oral bisphosphinates, my insurance covered Prolia and I had an injection in January.  Again, fatigue - but really no other side effects.  So at least for me, this is tolerable.  I'll have a Dexa scan this month to see if it's working.

Good luck to you and if you have any other questions, I'll be happy to tell you anything I know.  

Tracye

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May 3, 2016 12:29PM Ratherbecooking wrote:

I am hoping someone can give me advice on the Prolia injection and fibromyalgia. It is being recommended to me while taking Arimidex since my bone density is decreasing, but I am very concerned that it will cause a spike in fibromyalgia symptoms.

Does anyone here have muscular/skeletal pain issues and has used Prolia successfully or with SE?

Thank you in advance.

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