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Topic: New dx Osteoporosis!

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Jun 16, 2014 07:37AM

B123 wrote:


Hello folks,

I have been on Arimidex for about 2 years now, I was on Fareston but insurance did not want to pay so I had to switch!  I am 44 and was Osteopenia for lower back and hip over one year ago, now my new bone scan says -2.7 osteoporosis! WHAT?!  My onc is suggesting Fosomax for 2 years IV fusion or Reclast.. I am not one to take things like that, I had any kind of Infusion drugs.. Does anyone know anything about them or about the drug Atelvia?  I could really use some advice, I am too young for Osteoporosis! I have 3 kids and am very active.. I just don't understand how taking a drug to save  your life can destroy it at the same time! Im devastated... 

Thank you everyone! Be well...

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-
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Jun 16, 2014 11:12AM peggy_j wrote:

Have you considered switching to tamoxifen?

Dx 2/2011, IDC, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Jun 16, 2014 11:53AM B123 wrote:

I tried it at the beginning of my dx but my bones hurt and I had some stomach issues.. I didn't wait to see if it would resolve, I just went to Fareston, which was great! But I don't think they know enough about it plus my ins at the time was terrible! Now it's much better.. But to have osteoporosis is crazy.. Even if I were to do the I fusion, the arimidex will still take away bone? So troubling... 

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-
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Jun 16, 2014 12:22PM peggy_j wrote:

I don't know much about AIs--I can't take one because I have a rare bone condition, am already right at osteoporosis in the hip, and can't take any of the bone helping drugs except SERMs.  (all the drugs work so differently). I was on tamox for two years (I'm 49 and pre-meno) and didn't have your SEs, but every body is different. One of my docs said that the SEs from tamox can settle down after a few months (sounds like you heard the same thing).

You said: I just don't understand how taking a drug to save your life can destroy it at the same time! 

I know.  This is one thing that's frustrating with cancerland (and a lot of medicine). There are often SEs with any Tx, and we need to weigh the pros and cons and decide what's best for us.  If it's any consolation, there's a website you can go to that measures your risk of fractures. I'm guessing that your risk is like mine--very little risk in the next ten years (which seems to be the longest horizon that the docs ever forecast). Of course, the risk when I'm 70.... who knows?

Dx 2/2011, IDC, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Jun 16, 2014 12:30PM B123 wrote:

this is true Peggy, I completely agree.. It's scary, just when you think your finally on your way up, something pulls you down. Yes I'm low risk but still it's there and it's a big change in under 2 years..  Did you say if you take anything for bone loss prevention?  I just hate the idea of a fusion, don't want anything running through my veins, and then SE of some kind that I can't control.. but hate more to go in every month for a shot. 

Thank you for helping!

Dx 8/6/2011, 2cm, Stage IB, Grade 2, 2/17 nodes, ER+/PR+, HER2-

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