Just had another DEXA, because I am on femara/letrozole, and I am trying to prepare for meeting with the onc in a few weeks.
My hip is fine at -0.1, where it has been for the last two years.
Spine is not so good. The total score is -2.3, with one vertebra (L4) all the way down at -2.9.
The difference between the two scores is apparently considered significant by bone docs (although not by my onc, who seems to know very little about bones).
Upon reading, I find out that spine DEXA is not considered accurate in people with scoliosis. Scoliosis can cause the measurement to become "spuriously" depressed, i.e. scoliosis can make it look like your bones are worse than they really are.
The reason is that the bone mass is measured as a ratio, where one factor is the area of bone. When the spine is twisted, the area looks larger than it is (because you view it slightly from the side instead of straight on), making the density look lower than it is.
Does anyone else have any experience with this? If DEXA is not accurate on a spine with scoliosis, how do you decide if the spine is OK? I do not want my spine to collapse, but I also don't want to take major drugs unnecessarily.
6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2-
6/20/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
9/13/2011 Mastectomy: Left, Right
3/8/2012 Prophylactic ovary removal
4/1/2012 Femara (letrozole)
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