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Topic: Bone Loss Reversed 16 Months After Finishing AIs!

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Nov 3, 2014 11:54AM

NatsFan wrote:

A ray of hope - I finished my 5 years of letrozole sixteen months ago. I had plus T values prior to dx, but after chemo and 2 years on letrozole I had mild osteopenia, and two years later it had gotten worse - still osteopenia, but heading towards osteoporosis. I had another DEXA scan last week. I was hoping, since I was off letrozole now, that things hadn't gotten worse, or at best, maybe had even improved just a bit. But I was astounded when I got my results this weekend and they showed that my bone density is now NORMAL!!! No more osteopenia!!! Woohoo!!!!!

My MO has me on calcium and Vit D, and I exercise an average of 6 days a week, including weight training, yoga, pilates, and running, so I think those things helped as well.  

This was such unexpected good news - not something that happens often with anything b/c related.  I'll be 60 next year, and I'd just figured that at my age my osteopenia was permanent and the best I could do was try to stave off osteoporosis.  I never dreamed it was possible to achieve normal density again!  Happy

Mary Dx 12/31/2007, IDC, 2cm, Stage IIB, Grade 3, 1/15 nodes, ER+/PR+, HER2-
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Nov 3, 2014 12:00PM lbrewer wrote:

thats awesome! I never remember to take my calcium.  Maybe now I will!

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Nov 3, 2014 12:14PM MsPharoah wrote:

This is so encouraging!  Thanks for sharing.

MsP

Oncotype 24 Dx 12/4/2012, ILC, Right, 1cm, Grade 1, 0/1 nodes, ER+/PR-, HER2- (FISH) Surgery 2/17/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 4/8/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 8/20/2013 Femara (letrozole) Radiation Therapy 9/3/2013 Breast
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Nov 3, 2014 01:12PM farmerlucy wrote:

That is fantastic news! Thanks for sharing!

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Nov 3, 2014 01:23PM WinningSoFar wrote:

Wow, I'm impressed. 

Dx 7/1999, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 7/1/1999 Lumpectomy: Right Radiation Therapy 7/30/1999 Whole-breast: Breast Surgery 7/1/2000 Prophylactic ovary removal Dx 9/26/2011, IBC, Right, 4cm, Stage IV, metastasized to bone, Grade 3, 0/5 nodes, ER-/PR-, HER2- Targeted Therapy 10/31/2011 Avastin (bevacizumab) Chemotherapy 11/4/2011 Abraxane (albumin-bound or nab-paclitaxel) Surgery 5/5/2012 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Radiation Therapy 4/14/2013 External: Bone Chemotherapy 3/1/2014 Abraxane (albumin-bound or nab-paclitaxel) Surgery 12/11/2014 Reconstruction (left); Reconstruction (right) Dx 3/2019, ILC/IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- (FISH) Targeted Therapy 3/15/2019 Verzenio Hormonal Therapy Femara (letrozole)
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Nov 3, 2014 06:18PM ruthbru wrote:

Hooray! My bone density, which had stayed in the normal range but had been dropping, went back up too after I was done with Arimidex. I think it is really important to keep up with the exercise, calicium, vitamin D etc. to minimize the damage while on anti-hormonals , and that you a better chance to rebound once you are done!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Nov 3, 2014 08:14PM cider8 wrote:

nice!  So good to hear.

~Paula~ [R] Pure Mucinous, DCIS, & IDC. BMX w/DIEP in NOLA 5/11; 12/11; 9/12. DD AC/T end 9/11. Tamox. 2mm IDC found 9/12 = 33 rads end 01/13, Oncotype 34. [L] IBC = TCx6 end 7/13, MX (remove flap), 44 rads (2x/day) end 10/13. Zoladex & Arimidex. Dx 2/25/2011, IDC, 1cm, Stage IIA, Grade 2, 1/21 nodes, ER+/PR-, HER2- Dx 4/5/2013, IBC, Stage IIIB, ER+/PR+, HER2- Dx 8/22/2013, IBC, Stage IIIC, Grade 3, 10/28 nodes, ER+/PR+, HER2-
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Nov 3, 2014 11:02PM Heidihill wrote:

YAY!!!

Dx 8/2007, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/25/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 3, 2014 11:30PM Meow13 wrote:

Fantastic news. So happy you are doing so well. I have 2 years to go.

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Nov 4, 2014 02:25AM Moderators wrote:

We are delighted to hear the good news Natsfan! 

You're giving hope to others who are in similar situations, so thank you for sharing it!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Nov 4, 2014 06:22AM dltnhm wrote:

Hurrah! That's fantastic news!

Age 48 @ diag. Left SS NS UMX, Sent.Node Biopsy & part. Axillary (Node) Ex., & DIEP recon. on 1/10/12; AC DD Chemo began 2/22/12 ended 4/4/12; Taxol 12x: infusions began 4/26/12 ended 7/11/12! Rads x28: 8/06/12 - 9/13/12; Tamoxifen began 10/01/12 Dx 11/23/2011, IDC, 2cm, Stage IIIA, Grade 2, 7/19 nodes, ER+/PR+, HER2-
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Nov 4, 2014 07:22AM Momine wrote:

Excellent!

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/20/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/13/2011 Mastectomy: Left, Right Radiation Therapy 1/9/2012 Surgery 3/8/2012 Prophylactic ovary removal Hormonal Therapy 4/1/2012 Femara (letrozole)
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Nov 4, 2014 08:08AM ruthbru wrote:

Nats, I just copied your whole post on to the Arimidex thread. I was pretty sure you'd be okay with that, & it was nice to be able to pass some encouraging news along!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Nov 4, 2014 09:22AM NatsFan wrote:

Thanks Ruth.  I remember how upset I was when each DEXA scan showed the osteopenia getting worse.  I wanted to give others who are facing this issue a concrete example that it's possible for bone loss to be reversed.   

Mary Dx 12/31/2007, IDC, 2cm, Stage IIB, Grade 3, 1/15 nodes, ER+/PR+, HER2-
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Nov 4, 2014 09:53AM Blessings2011 wrote:

Yay, NatsFan!!!!! ThumbsUp

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole)
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Nov 8, 2014 04:23PM proudtospin wrote:

Nats, my congrats to you!  I have had a similar experience and do confess that I too am diligent with my calcium, Vit D and the dang gym! 

iris Dx 6/2008, DCIS, Stage 0, ER+ Dx 2/2017, Left, Stage IV, metastasized to bone/liver, Grade 3, 1/1 nodes, ER+, HER2+
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Nov 9, 2014 07:46AM badger wrote:

Thanks, Mary, and congrats!  I finish year five of tamox next June and per onc will likely go on an AI.  Good to read a positive note.  Will get a baseline DEXA and keep on walking. ♥

7,715.5 miles walked ~ Find your calm. Move forward from this place. Dx 12/22/2009, IDC, 2cm, Stage IIB, Grade 1, 1/4 nodes, ER+/PR+, HER2-

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