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Topic: Bad Reaction to Zometa

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Mar 30, 2015 08:19PM - edited Mar 30, 2015 08:30PM by GypsySue

GypsySue wrote:

i'm wondering if anyone else has had this reaction to Zometa...

After 14 months of Femara, I have developed osteoporosis. My onc prescribed Zometa every 3 months but 12 hours after the very first infusion in early March, I experienced severe muscle pain in my trunk, tightness in my chest, and passed out 3 times that night while going back to bed after using the toilet. It took about 3 days for the muscle pain to go away

I reported these side effects to my onc and he said we will be "holding up on the Zometa", but he also said "I'm not sure that the passing out is related to the Zometa".

I don't know what else it could be...I don't have a history of passing out.

Has anyone else experienced a similar reaction?

Thanks,

Gypsy

“To the dumb question "Why me?" the cosmos barely bothers to return the reply: why not?”--Christopher Hitchens Dx 11/26/2013, IDC, Right, 1cm, Stage IV, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 12/12/2013 Femara (letrozole) Hormonal Therapy 7/29/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 30, 2015 08:38PM MusicLover wrote:

I am so sorry to hear this.  I have been getting zometa every four weeks for @19 months.  I know that it helps to drink a lot of water the day before the infusion and also the first 24 hours after.

If you need a bone strengthener and zometa is a problem you can request something else like xgeva (sp?).

(I have felt a little crappy after the infusion, especially after the first one, maybe I would call it mild flu like symptoms, it sounds like you had major flu like symptoms.)

As per PET scan, 3 or 4 nodules in the right breast, 2 of which were actually in the middle of my chest, the other 2 were side by side in the breast. Also DCIS in the left breast. Dx 9/23/2013, IDC, Right, 2cm, Stage IV, Grade 2, 1/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 10/9/2013 Femara (letrozole)
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Mar 30, 2015 10:17PM GypsySue wrote:

MusicLover, thanks for your response.

I will ask about Xgeva. I also plan to ask if my treatment could be changed to Faslodex or Tamoxifen. I have dental issues and am afraid of ONJ. Won't see my onc again until May so I have time to ruminate on all of this


“To the dumb question "Why me?" the cosmos barely bothers to return the reply: why not?”--Christopher Hitchens Dx 11/26/2013, IDC, Right, 1cm, Stage IV, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 12/12/2013 Femara (letrozole) Hormonal Therapy 7/29/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 30, 2015 10:44PM MusicLover wrote:

I didn't realize you were dx'd almost the same time as me, almost the same dx and tx. Best wishes to you.

As per PET scan, 3 or 4 nodules in the right breast, 2 of which were actually in the middle of my chest, the other 2 were side by side in the breast. Also DCIS in the left breast. Dx 9/23/2013, IDC, Right, 2cm, Stage IV, Grade 2, 1/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 10/9/2013 Femara (letrozole)

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