Hi, i am quite desperate, I have been on fosamax for 5 years, (2008-2013 sametime as femara) because my bone were stable and I had completed my 5 years on femara the specialist gave me a drug holiday. So recently I had a bone density scan (2 years + later) and to my surprise i had a significant decreased, (despite that I no longer take femara and I have been doing 1 hour of physical training including weight lifting/bearing every single day, eating right) so my rheumatologist wants me to start prolia. I have been googling the net for info about this drug and this is nothing very reassuring, it seems that a lots of people have very bad side effects. However reading this forum it is more reassuring as it seems to have less peoples with bad side effect but the posts that I am finding are dating past several years, so I would like to know your experience recently with the drug, so I can make a better decision. Right now i have an appt with my doc on july 15th to get the injection but I am still unsure if I will go with it. so I have a few questions also if any of you can answer them along with your experience.
1. does the prolia drug stopped our bone to increase density naturally or we can still increase density of our bone naturally while on prolia and what happen once we stopped the drug, are we loosing the density we have increased with the drug. (look likes what happened with the fosamax I took).
2. I am also schedule for a root canal on July 8 (with endo) and the restoration (part 2) with the dentist on July 13, So the dentist gave me an antibiotic prescription (for 10 days) to start taking them one week prior to the root canal as a prevention. so can I have my prolia injection on the July 15, (shortly after my last pill of antibiotic)
3. I also have TMJ, does any of you has TMJ and does it get worse with prolia.
4. what kind of side effects you guys have with prolia, did any of you had very bad side effects and at what time did it start as I have been reading on the net that some of them got it with the 2nd injections and others that start like several months after the first injection. Anything serious?.
I really would like to heard from people who went through the same nightmare cancer trip than me. I am really desperate right now with all this, I don't feel living but just surviving, I just keep doing things to help me survive longer, i.e.: cooking healthy meal and exercises to help my bone and stay away from cancer, plus going to all kind of medical appts and now with the result of my bone that has decreased I felt like I did all this for nothing. I am really tired of this shit. I am just not sure if I should give a try to prolia or increase my weight bearing exercise to 3 hours a day, and if it would really make a difference. my bone density, went from (L1-L4) -2.2 to -2.7, and femoral neck from -2.5 to -2.9.
please tell me your experience with prolia. tks
1/16/2007, IDC, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2+
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