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Topic: Good/bad experiences with Prolia?

Forum: Bone Health and Bone Loss — Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Mar 11, 2016 01:16PM

conniehar wrote:

I will most likely be starting Prolia in the next couple weeks. I am 48 with osteo. I have tried Actonel and can't take it and have had two infusions of Reclast and have not gotten any improvements on my scans. The bone loss is getting worse. I exercise often and focus on weight bearing exercises, take Calcium ,Vit D and magnesium. My current endo sent me to another specialist and no one seems to be able to find a cause for my continued bone loss.

I was terrified to take the Reclast due to horror stories I found on-line but I did it and didn't have any side effects. I am now am terrified to take Prolia. When I go to askapatient.com, there are a ton of posts from people with debilitating pain, etc. I have seen a few positive posts on here about Prolia but am still scared. Given my age, I feel like I can't just ignore it, but nothing I am doing is helping.

Thanks!

Connie Dx 3/7/2007, ILC, 6cm+, Stage IIIA, Grade 3, 1/12 nodes, ER+/PR+, HER2-
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Jan 11, 2018 09:28PM MinusTwo wrote:

Veeder - the new study showed that following up Prolia with a biosphosphonate did NOT keep the bones from reabsorbing. So you didn't miss any benefits.

Yes, TMJ is a well known side effect. Particularly for an extraction. I made sure all my dental work was done before I started. Both my periodontist & dentist agreed with what your docs said - stop for 6 months before invasive dental work.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 12, 2018 10:38PM Veeder14 wrote:

Hi Minus Two,

Actually the doctors wanted me to be treated with a bisphosphonate after the Forteo treatment. But I choose Prolia which isn't technically one.

Maybe the 6 months off Prolia for dental work is becoming standard but it sure was a hassle at the time and only worked because I didn't take the next injection. Thanks for writing in.

Dx 1/2/2018, ILC, Left, <1cm, Grade 1, ER+/PR+, HER2-

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