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Topic: Xgeva and I'm NOT stage IV? Thought I was getting Prolia!!!

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Feb 28, 2017 06:59AM

claireinaz wrote:

Dear all,

After months of research about Prolia, I decided to move forward and get what I thought was a 2x a year injection at yesterday's regular MO check up, recommended by my MO.

After driving 27 miles home through snow, I looked at the drug info they gave me and found that they had giving me Xgeva/denosumab, which apparently is administered every month, not 2x a year? I also did research and all I could find were Stage IV ladies posting about it to treat bone metastases (which I don't have). Even the drug company advertises it this way...

Do you think they made a mistake? They had one of the chemo nurses give it to me....so I wonder. Are any of you getting this for osteopenia and are you getting it every month? that seems like a hassle, and I don't want to have to drive just to get an injection monthly. I wanted the 2x a year injection.

I'll call them later today, but thought I'd see what all of you have to say.

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Feb 28, 2017 07:09AM cive wrote:

Xgeva is Prolia on steroids!  You are correct that Xgeva is given more often( I get it every other month) and is a higher dose than Prolia.  Both are Denosumab, just different dosing.  I think maybe there was just some confusion because you got it at your MOs office.

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Feb 28, 2017 07:30AM cliff wrote:

its the same thing, old ladies even get it once a year for osteoporosis. it is to prevent calcium loss in bones during treatment. I get it once a month. I also get one tamoxifen each day for treatment of my stage 4 cancer. the combo seems to be pretty good.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 28, 2017 10:16AM claireinaz wrote:

Thanks you guys!, I think they might have given me some drug "swag" (ha ha) that advertised the Xgeva but that I got Prolia, which was what my doc and I agreed on. I got a zipper pouch that will be great for makeup; it had a bottle of calcium supps in it (nice, but I don't use their brand) plus the drug insert with all the fine print. The nurses might have just been being kind.

I've emailed my MO for clarification and am waiting to hear.



9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Mar 4, 2017 06:12AM hodges wrote:

I just received 2nd injection of Xgeva. I tolerated the 1st injection well. However, the 2nd injection is giving some hip and jaw pain. Has anyone had to discontinue Xgeva because of these side effects??

Happy

Surgery 8/10/2013 Lumpectomy: Left; Lymph node removal: Left, Right, Sentinel, Underarm/Axillary Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy External: Breast, Lymph nodes, Chest wall, Bone Targeted Therapy Perjeta (pertuzumab)
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Mar 4, 2017 07:29AM claireinaz wrote:

My MO emailed me and told me the Xgeva was given in two strengths-one for osteopor probs and one for mets--I got the lower, osteoporosis dose. Sorry for freaking out on all of you a little bit. I wish the nurses would have explained that I was getting this type of bone-protector instead of what they referred to as "Prolia". It was confusing.

So far I haven't had side effects. Recky1, you should document your pain and where exactly it is, and then call your MO. It sounds like you might be experiencing side effects. I hope they go away!

Claire

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Mar 4, 2017 07:43AM cive wrote:

What you got is "Prolia".  The only difference between the two is the dosing.  Exactly the same medicine, just different dosing.

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Mar 5, 2017 07:53AM claireinaz wrote:

Thanks cive, even more confusing the way dosages are referred to as actual different drug names. Thanks for helping me figure it all out, sisters.

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jun 23, 2017 02:36PM cliff wrote:

I had to stop exgiva, my side effect was excruciating pain for 6 days to two weeks. went to the male breast cancer convention in KC in april, and asked around, no body else had that side effect.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 23, 2017 08:10PM MinusTwo wrote:

My MO pushed for Xgeva. My OG/Gyn said no - go with Prolia. And she told him so too.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 24, 2017 08:06AM claireinaz wrote:

Update: Since my initial injection of Prolia, I have had no side effects whatsoever. It (so far) has been a non-event. Next injection scheduled during my regular 6 month check up in August.

Horrible you had such dramatic side effects, Cliff. Are you getting Prolia now?

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus

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