Osteonecrosis of the Jaw
Here is a article about jaw necrosis. I have it. It is rare.
My jaw necrosis started July 2016 with slight pain and swelling to area where my wisdom tooth was. I have bone mets and have been on xgeva over 3 years.
What I have learned
Dont see a dentist that you dont know is good. Get referrals from friends or your healthcare team for a honest dentist
Use a electric toothbrush-oral B or soni care. Floss
My troubles started August 2016. I had been having annoying pain for a month in area wisdom tooth was. It had some swelling. I couldnt see, but a tiny bit of bone was exposed.
My new dentist in his flashy office saw I had good dental insurance. He saw the bone exposure. So he does 1 root canal, then a second one the next week. I had no pain in this area. I did after the root canals. My mouth was open 1-2 hrs. The jaw pain was horrible. Milkshake diet for a while.
When the caps where placed end of october. He finished xrays and said I needed 2-3 more root canals. I saw another dentist for second opinion. He said same thing.
By this time I had diagnosed myself as having jaw necrosis. My oncologist gave me his periodontist who confirmed my diagnosis. We stopped Xgeva a while. He thinks I could have hit this area with my toothbrush which may have started this thing. I did many rounds of antibiotics that fall. I started using sonicare. Costco had a discount on it and brushes-plus there return policy is great.
I now have older dentist and my older periodontist. I have had 3 more crowns done. I think the root canals werent needed and have delayed healing. My exposed bone area is about 5mm round-smaller than dime. I am back on Xgeva.
I have heard vitamin K can help healing, but have forgotten to ask my periodontist. I go in about monthly and he tries to pull it off. He also scraps off the boney spurs. Its like having course sandpaper back there. Once the pointy bone spurs are scraped off it isnt so bad. Of course the pain with it can get right annoying. I think when its growing it gives me pain and swelling
Remember this is RARE.
Anyone else gone through this?
MBC bone mets, afinitor,aromasin,xgeva
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