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Topic: Vit D3 levels and Oncologist recommendations

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Dec 23, 2017 06:18PM

beach2beach wrote:

Hi,

I've been on Tamoxifen for 3months and am post dbl mastectomy 4mths. I went for my 3mth visit to the oncologist and got a call a week later that my Vit D3 levels are high at 70 and I should cut back on what I take. I have been taking D3 inconsistently(every other day or so) for several years due to having very low levels. Had not had levels checked for at least 2yrs prior to this one. I go out in the sun as often as I can during the spring and summer and soak up some D. Nice to know it's finally up but now I have to cut back?

My question is has anyone been told what a good level is for us? How high is too high?

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 23, 2017 10:36PM Lula73 wrote:

70 is a good level according to the docs isee-it’s what we shoot for. Now if I could just be more consistent...

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/14/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/3/2018 Femara (letrozole)
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Dec 23, 2017 10:40PM marijen wrote:

My Mo said 70 is too high but I don’t think she is well informed. I too have read 60- 70 is good. Beach2beach how much do you take everyday? I take 5000 everyda but not much sun here.

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Dec 23, 2017 10:44PM - edited Dec 23, 2017 10:44PM by Nancy2581

I heard 70 was good too, but I've never gotten up there. Just had mine checked and it was 43. I take 6000 everyda

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/21/2014 AC + T (Taxol) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/28/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Dec 24, 2017 02:23AM chronicpain wrote:

The Endocrine Society recently came out with recommendations for a minimum of 30, but 40-60 is preferred as an assay can vary up to 8 points. No one gets toxic on 70 but if he knew you were missing a few doses, if you then started taking more religiously, you could get over 100, to be avoided.

Standing naked in the bright sun on a roof for a half hour daily will get many white people around 80-90,


Do not forget the calcium you need from diet and/or proper supplements, calcium is building blocks for bone, as vit D cannot do everything for your bone alone.



After a decade of autoimmune problems, Dx 10/2017 at age 63, IDC, Left, 9mm, Oncotype 13, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-, 11/22/2017 Lumpectomy, Arimidex. Declined radiation.
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Dec 24, 2017 06:37AM beach2beach wrote:

Lula, Marijen and Nancy,... I thought 70 also was a good number. I had been low, like 20 for years. I take 5000 usually everyday, but as I said, I'm not consistent and I know it has taken a long time(years) for me to get to 70. Think I will continue and see what the number is next time.

@Chronicpain..lol Now there would be a sight, me on my slanted rooftop naked, scars and foobs to the world worshiping the sun!. I'll have to stick to my bathing suit and the beach. I usually start by going to Fla for a week vacay in March.


Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 26, 2017 08:55AM claireinaz wrote:

My naturopath likes 70 but my MO freaks out when it gets near 70 because she said it can cause calcium levels in blood to rise and show some kind of perceived problem suggesting recurrence when there isn't any.

I'll take my chances with that and keep my levels at 70 at least.... ;)

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Dec 26, 2017 11:54AM marijen wrote:

Calcium in the blood means calcium in the tissues. DCIS is calcium deposits. To get the calcium into the bones you need K2 and magnesium also. It depends on how close to the equater you are too. In the Northern states it takes a lot more sun time to get enough Vitamin D. There are many many you tube videos on Vitamin D. Thanks claireinaz, I didn’t know too much gets more calcium in the blood

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Dec 26, 2017 11:57AM - edited Dec 26, 2017 11:59AM by marijen

Magnesium and calcium absorption:

http://www.mgwater.com/calmagab.shtml

There is already a topic going on K2 with great information here


https://community.breastcancer.org/forum/120/topic...


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Dec 26, 2017 02:22PM gb2115 wrote:

We like our patients to be above 30 for 25 D. Our lab puts the upper limit of the normal range at 100. I have seen research where they say not to go above 80. Toxicity is a problem when too much D causes blood calcium levels to go up, which really shouldn't happen if everything else is working normally. The kidneys do a pretty good job of keeping a specific range for that. So a high calcium needs to be investigated always because that's not normal or good and it indicates that things are not working normally somewhere.

That said, if I were taking D supplements and was told I had a value of 70, I would probably cut back a little. Based on the research it really looks like 30 is adequate, and I'm never one to overdo things and always like to err on the side of caution! :-)


Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Dec 29, 2017 08:19AM claireinaz wrote:

Not sure about the science of calcium, etc and D levels, but my MO always hyperventilates when my Vit D is over 70 and says something about blood calcium and concern about that somehow alerting to a potential recurrence.

I still like my Vit D to be over 70. I take 5000 units daily, and don't usually use sunblock on exposed parts (except my face) unless I'm out for more than 30 min. Sun is the best way to boost Vit D levels (I know, I know, skin cancer. But I get a yearly all over body skin exam by my dermatologist, too).

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus

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