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Topic: feeling defeated with severe osteoporosis

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Nov 22, 2019 12:11AM

kmb4 wrote:

Hi Everyone,

I have not been here for awhile but today I got some bad news and decided I needed to get back here and research some more. to give you a little bit of information about my history. I am 62 yrs old and In 2017 I had Invasive ductal carcinoma in one breast. I had a bi-lateral mastectomy with reconstruction. no chemo or radiation since lymph nodes were clean. I was stared on anastrozole for my breast cancer and fosamax for my osteoporosis. I take calcium and vitamin D. well today I went back to my endocrinologist after having my bone scan after 2 yrs. I am now in severe osteoporosis. I feel like I'm treading water backwards here since I know the anastrozole causes bone loss. I have lost ground on the fight. I have not been good about exercise but will now start walking 30 minutes a day. my hips are the worst. I guess I just needed to come here an ask if anyone has found a good way to naturally help bone. I see my oncologist nurse in January and will see what she recommends. Maybe try a different drug that doesn't attack my bones. I just feel defeated

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Posts 31 - 43 (43 total)

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Dec 17, 2019 09:02AM ctmbsikia wrote:

Received my 1st Prolia shot yesterday. Happy to report I feel fine. My MO is aware of fracture implications when stopping this medication. She mentioned Fosamax as a possible med for when I go off this and the AI.. I have also read where Reclast has been given to patients coming off Prolia with no adverse effects.

Also had annual lung CT which shows calcification of coronary arteries. MO recommends I see a cardiologist. I bit my tongue and kept my thought to myself, but to me it's much better to drop dead of a heart attack than to put up with this crappy cancer.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Dec 17, 2019 09:23AM BrooksideVT wrote:

A few sessions of physical therapy can teach you resistance exercises designed to strengthen your bones. Some communities or hospitals offer an exercise program called something like Strong Bones, designed primarily for seniors. All of us should be doing these as we get older to support our muscles and bones. And walking, of course.

Dx 11/21/2012, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/6/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 2/20/2013 Breast Hormonal Therapy 3/31/2013 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/3/2014 Aromasin (exemestane) Hormonal Therapy 11/20/2014 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 9/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 17, 2019 06:37PM DorothyB wrote:

Most YMCAs offer a free program (and you do not need to be a member of the Y) called LiveStrong which teaches various exercises for strength training as well as doing cardio and providing other support.

Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3
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Dec 21, 2019 02:35PM trinigirl50 wrote:

Perhaps they can change you to Tamoxifen.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Dec 22, 2019 10:14PM jessie123 wrote:

The reduced bone mets with Prolia information may have changed. I read this article last night, but don't know how to post it. It's in "medpage today" and I was able to copy the article title ---

Denosumab Does Not Alter the Course of Early Breast Cancer -D-CARE trial failure spurs reassessment of adjuvant treatment with bone-modifying agent

The article went on to say that Fosamax does reduce the risk, but Prolia does not.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Dec 22, 2019 11:42PM MinusTwo wrote:

I'm not looking to reduce further risks of cancer. Just increase bone health - or at least keep it stable.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 24, 2019 10:33AM trinigirl50 wrote:

or Aromasin. Supposed to be less harsh on your bones.


trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Dec 24, 2019 04:01PM Nancy2581 wrote:

I am on fosamax and have been for 2 years. My dexa scan before going on femara two years ago showed I had osteopenia. I just had a dexa scan a few weeks ago and the osteopenia is gone. The fosamax reversed it. Everything came back normal so fosamax at least for me is doing a good job.


Nancy

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Dec 24, 2019 05:56PM ElaineTherese wrote:

Yay Nancy! What a relief, no? I'm glad Fosamax works for you. (It's a lot cheaper than Prolia, too!)

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Dec 24, 2019 07:30PM jessie123 wrote:

Nancy -- so glad to hear that. I haven't even gone on the AI's yet because I already have osteopenia and I just don't want osteoporosis or Prolia. Now I might consider the AI since the Fosamax is working for you.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Dec 25, 2019 08:19PM - edited Dec 25, 2019 08:22PM by Nancy2581

Thanks ladies. I am really glad the fosamax is working. I was so afraid my dexa scan was going to be worse this time around.

Elaine - nice to hear from you. Hope you are doing well. I read on the other thread you lost some weight. Lucky lol. I'm jealous since I've gained. Grrrrr

Jessie I would definitely give both a try. You can always stop. Fosamax and femara are my security blanket

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Dec 26, 2019 01:02PM ElaineTherese wrote:

I am doing well, Nancy. Yep, I lost some weight, but I've gained two pounds in the last two weeks. Thanks, Christmas. Time to eat more salads!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Jan 2, 2020 09:28AM windingshores wrote:

I have had osteoporosis for 13 years and have been on Femara for 5, with no new fractures. I hope that can be true for others. I am not medicated for bones.

I cannot tolerate any of the osteoporosis meds, many of which affect my afib. I had three spinal fractures prior to osteoporosis (traumatic fall) but have NO new fractures in all this time. Due to the spinal issues I cannot do weights or many exercises that might strengthen bones. I do Tai Chi three times a week and walk.

The aromatase inhibitors cause a more rapid drop in bone density but then things stabilize. Similar to the drop at menopause, which is steep but then stabilizes. I have read that bones rebound 10% once we go off the AI's.


Dx 2/2015, DCIS/ILC/IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery Lymph node removal; Mastectomy: Right Surgery Mastectomy: Left; Prophylactic mastectomy: Left Hormonal Therapy

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