Topic: Parathyroid? Bone/Joint Pain/ High Calcium Blood Level

Forum: Bone Health and Bone Loss — Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: May 2, 2021 06:33AM - edited May 2, 2021 06:37AM by jons_girl

Posted on: May 2, 2021 06:33AM - edited May 2, 2021 06:37AM by jons_girl

jons_girl wrote:

Hi Friends: (Sorry for lengthy post)

I recently got blood work results back. And some of my numbers are higher than normal.

My Alk Phos numbers seem to keep going up. Starting in 2017 at my cancer dx timeframe my number was 70 then May of 2020 78 then sept 2020 jumped to 92 then Jan 2021 102. Feb 2021 114 and April 2021 110. It's gone up quite a bit

I had my alk phos isoenzymes tested too. That test is supposed to show where the elevated alk phos is coming from. It showed it's coming from my BONES not from liver. Liver alk phos is normal

So I'm a little concerned. I've been having joint/bone pain for awhile now.

I am NOT ON a AI inhibitor, haven't had rads or chemo and no tamoxifen so I know the pain isn't from meds or anything like that

My blood CALCIUM has jumped from the 9s to now 10.2. So I don't know if that's concerning??

It's interesting that I have OSTEOPENIA and my calcium blood level is high. Strange.

My PARATHYROID test showed a level of 22 I think in normal level. But my Calcium was high at 10 again.

Just sharing because I'm concerned. Maybe this is nothing to be concerned about. I've never had my bones checked other than a dexascan.

But I'm wondering what type of scans I should ask for?

Should I have bone scan AND parathyroid scan?

I've read some of the parathyroid threads and wonder if I have issues?

Thank you in advance for your thoughts!

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 7/5/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal
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Jun 11, 2021 09:52AM alicebastable wrote:

The scans look at things in your body in different ways. I had a CT scan last Friday. Today I had a PET scan to follow up since there were areas of concern on my CT. But there was a non-contrast CT done today as part of the PET scan. When I asked about it, the technician said it's to get a perfect line-up of the body. When I was first diagnosed with two simultaneous cancers in 2018, I had CT and bone scans, each looking for different things.

I'm curious if your insurance covers things like PET scans when it's the patient requesting it? Mine is very strict about medical necessity.

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach. Surgery 7/10/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole breast: Breast, Lymph nodes
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Jun 11, 2021 09:28PM jons_girl wrote:

Hi Alice:💐sorry to hear about all the scans. Not fun. Thanks for sharing that information about ct and bone scan and pet scans. Interesting.

I was told pet scan sees bones and everything a cat sees too. That’s what I think I was told. So I don’t understand all this. Lol.

I’m not the only one requesting the pet scan. Although I asked my dr if we could try to see if insurance would pay for it. Otherwise I’d probably have to have ct and bone scan. So just one scan this way I think.
My doctor referred me for the pet scan. Supposedly my insurance didn’t require authorization for the pet scan. I was surprised but maybe it’s because I had cancer before and never had pet scan? My insurance is pretty good about covering stuff I need done. Ruling out Mets etc for this pain I’ve been having.

Hope you get answers with the scans you’ve had too! Have a wonderful weekend!

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 7/5/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal
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Jun 11, 2021 10:29PM alicebastable wrote:

Hmm, you must have good insurance. Mine always asks for authorization before paying for scans (or part of, I had a large portion to pay for today's PET scan) even though I've had more than one type of cancer.

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach. Surgery 7/10/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole breast: Breast, Lymph nodes
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Jun 12, 2021 06:26AM jons_girl wrote:

interesting! Thanks for sharing that info. Yes I guess my insurance is good insurance. I have a insurance app that I can search what prices are(my amount I’d have to pay)on a area map. So I chose a cheaper area hospital to have the pet scan at. My cost will be 265 I think. Not too bad I don’t think? I would think a pet scan is expensive but not sure.

Hope you get results soon. I hope all is ok for you.

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 7/5/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal
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Jul 8, 2021 08:01AM - edited Jul 8, 2021 08:02AM by rosie24

Well I had blood work done to prepare for upcoming endocrinologist appointment in August. It's early but i worked it in with other bloodwork I get regularly. Both PTH and calcium are in the normal range somehow. PTH was 80, high end of the range is 88. Last check was 150. Calcium 10.2, shows as within the range, has been as high as 11. Has anyone experienced these wide swings? I was sure I was going to request a referral for a surgeon, or at least scans to look for the problem parathyroid(s). But now I have no real reason to??

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- Hormonal Therapy 1/23/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy; Lumpectomy (Left) Surgery 12/3/2019 Lymph node removal Radiation Therapy 3/17/2020 Whole breast Dx IDC/DCIS, ER-/PR-, HER2-
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Jul 8, 2021 08:32AM seeq wrote:

Rosie24 - I think they should look at the history of bloodwork, not just the latest test. I thought I read anything over 10 for serum calcium is high if you're over 50 (not sure if you are). FWIW, my Sestamibi and u/s were negative. I have my phone consult with the parathyroid specialist this afternoon - I guess I'll find out then if we're going to move forward with surgery.

De novo diagnosis with large/numerous liver mets. Breast lump identified one month later. Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Jul 8, 2021 11:09AM ceanna wrote:

Rosie, I had wide swings which gradually got higher. Anything over 10 for calcium is a concern to be explored. Like SeeQ, I had normal Sestamibi and ultrasound, but ultimately specialist found an para adenoma. Immediately, actually during surgery when they tested again for blood calcium, it was in the 9s, and has remained there ever since. Endocrinologists tend to want to watch and wait, but you know your levels each test, and if other things point in the direction of less bone density (I had early osteopenia which is reversing) and beginning kidney issues) be sure to force the issue with your docs.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Internal catheter Surgery Lumpectomy; Lumpectomy (Right)
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Jul 8, 2021 12:02PM seeq wrote:

Well, I just finished my telephone consult with the Pth specialist. We're moving forward with surgery, so now I'm just waiting for the center to call me with scheduling and insurance information. Serum calcium was 10.7 yesterday, had been 10 just two months ago.

Rosie - the surgeon was talking about calcium serum levels and mentioned mine had been over 10 several times in the last year, and had been as high as 11, which was a clear indication of hyperparathyroidism. Each blood test is just a snapshot. I think I'd push for the consult based on history.

De novo diagnosis with large/numerous liver mets. Breast lump identified one month later. Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Jul 8, 2021 08:38PM ceanna wrote:

SeeQ, all the best for a successful surgery. I hope your calcium levels drop as quickly as mine did after the removal of one para. Please keep us up to date on your surgery schedule. The surgery procedures take a short time, but they do check calcium levels during surgery to determine how many of your paras they need to remove. Once your level drops, they know they've found all involved, so that takes a little more time in surgery room itself. My recovery from that surgery was very quick.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Internal catheter Surgery Lumpectomy; Lumpectomy (Right)
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Jul 8, 2021 09:45PM seeq wrote:

ceanna, thank you. I'm looking forward to having this resolved. I'm most concerned about my bones (osteopenia), but I'm hoping for some other improvements. I guess we'll find out.

De novo diagnosis with large/numerous liver mets. Breast lump identified one month later. Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio

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