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May 26, 2021 05:52PM
May 26, 2021 05:55PM
Thanks for this conversation. I really do wonder if simply stopping the Exemestane will help, to my original query. I have about 9 more months of it, then I'm done. I'm not really ON Prolia; I had three injections, I think, and then because it reversed my osteopenia completely per a dexa scan, insurance wouldn't cover it anymore. So I haven't had any further injections for three years.
If anyone has any experience with their bone density improving when they stopped AI, I would really like to hear from them as I need some hope, not negative experiences, although I understand how disappointing it must be to wind up with bone problems on top of *(&( BC. I get it.
Thank you, Alice, for that voice of reason.
My grandmother had osteoporosis, broke her hip, had a terrible replacement, and I think that led to her demise, though she lived to be 99. My mother had it as well, with dowager's hump beginning in her 80s. I am much, much more active than they ever were. I eat better than they did. I am trying not to wind up like them, and navigate recurrence risk too, which is something they didn't have to do.
I have also heard that about less calcium, hapa. I read that since our typical western diet is high in protein, usually animal protein, that protein like that actually leaches calcium from our bones. I eat yogurt, very little cheese--it's like a garnish, but lots of fruits and veggies daily. LOTS of it :), and no animal protein other than fish. I've been eating like that for years, since before my dx but certainly afterward. It's supposed to reduce recurrence risk.
It's maddening, trying to protect every part of us and avoid recurrence at the same time.
9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus