Topic: Alternative Treatment

Forum: Alternative Medicine — This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.

Posted on: Aug 8, 2011 07:32AM

Posted on: Aug 8, 2011 07:32AM

dougbrimor wrote:

Has anyone used alternative treatments such as Lorriane Day, Chris Beat Cancer, The Hallelujah Diet and skipped the cookie cutter 6 weeks of radiation and five years of Tamoifen?  I am so confused , even the 2011 cancer book that the radaition department gave me in my red folder states that radiation can cause a second cancer, that they are working on improving these satatics.  I read the whole book cover to cover and was just blown away by what they are admitting of these chemicals.  Anyway, would like to know if anyone else is swinging on this bridge?  Thanks

Dx 7/18/2011, <1cm, Stage I, ER+/PR+, HER2-
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Aug 8, 2011 08:14AM Melizzard wrote:

Absolutely!  There are many gals here who have refused chemo and rads.  I have been one of them on several occasions and would highly recommend you avoid those baddies for as long as absolutely possible.  There "may" come a time where it would be unavoidable (as it did for me when they wanted to put me in hospice care a few months ago), and you have to take desperate measures in order to get back in control of things.  ;) 

But that day may never come for you.  Assuming it won't, I would definitely start with the alternative therapies cuz chemo and radiation will still be waiting in the wings in you change your mind.  ;)  There are many valuable websites in this regard and I think the most comprehensive one is www.cancertutor.com/  

There, you can find alternative protocols for every stage of cancer.  

So sorry you have to be swinging from this bridge, but congratulations on taking charge of your OWN health and not just leaving it to someone else.  ;)

xxoo

Melissa

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Aug 8, 2011 08:32AM Yazmin wrote:

".......Assuming it won't, I would definitely start with the alternative therapies cuz chemo and radiation will still be waiting in the wings in you change your mind.  ;) "

Wise words from Melissa, here. That's exactly what I have been trying to convey on this web site for years. I just was never able to put this way. To take every substance that exists from the get-go might preclude using them later on if need be.

And thank you for the link as well, Melissa. 

Please question more. And then more.
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Aug 8, 2011 09:47AM dlb823 wrote:

No doubt there is much overkill in bc tx, especially for some very early stage cases.  OTOH, please be very sure that you learn everything you can about your very individual dx, and not follow what anyone else did, because there could be aspects of your disease that are very different from theirs. Your life is the one at stake -- not someone you don't know giving you advice on the internet, either here or on an alternative website -- and I say that with complete respect for the previous posters.  My point is that your situations may not be alike at all.

The best advice I can give you is to talk with multiple medical professionals -- whether that's conventional bc specialists, naturopathic docs, or integrative docs -- about each decision.  And be sure they have a lot of experience with breast cancer (not just cancer as a broad condition) and understand what makes your bc unique (Oncotype-Dx results, margins, etc.).  Only then, IMO, can you make an intelligent, informed decision about what's best for you.    

Personally, I'd lived very naturally, never taken any meds, and done a lot of holistic stuff prior to bc.  So when dx'd, after much research and soul searching, I decided more of that stuff may not be enough, although I did refuse Tamox or an A/I and am back to using only alternative stuff now.  But I had a much different pathology than you do, and mention my decision only to share that being open minded to some conventional med as a first line of defense, so that hopefully I will never have to deal with it again in the future, turned out to be the right (albeit surprising, if you knew me) decision for me.  

Good luck with your search for answers!   Deanna

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Aug 8, 2011 10:28AM - edited Sep 22, 2011 06:39PM by del4

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Aug 8, 2011 02:52PM dougbrimor wrote:

Thank you all for responding, I am just in a fog and on overload with all that I have read, and feel that I would not have cancer if my immune system was not surpressed, and then to add to that these chemical drugs with known effects, stating in the American Cancer booklet that they gave me, that second cancers do occur from radiation and Tamoxifen.  What I have read on Tamoxifen has scared me to death.  I met with the radiation doctor at Copper Hospital last week, and he said you look like a deer in the headlights.  If you are that uncomfortable with radiation you could choose a masectonmy, I thought that I would fall off the table.  We are not mere diseases but human beings and his insensitivity was as cold as a winters night and he has a cookie cutter matter of dealing with patients.

Dx 7/18/2011, <1cm, Stage I, ER+/PR+, HER2-
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Aug 8, 2011 05:06PM Member_of_the_Club wrote:

The saving it for later approach is controversial.  Your most effective effort against breast cancer is the initial one, so I never understood this.  Two things about tamoxifen: (1) Most women do just fine on it.  I took it for the full 5 years, no problem.  (2) Its something you can try and if you have bad side effects, stop.

 Your cancer was caught early so you have choices.  You probably should do something, however.  If you don't want adjuvant treatment like radiation or tamoxifen, a mastectomy is an alternative.  To me, the radiation and tamoxifen would be a much simpler approach (Personally, I think people understate the long-term consequences of more involved surgery and overstate the long term consequences of radiation and hormonals). 

You sound overwhelmed and panicky.  Many of us dealt with those early days by talking with a professional.  Most cancer centers have oncology social workers whom you can consult with for little to no charge.  They can help with both your fears and your decision making. 

Dx 9/30/2004, IDC, 3cm, Stage IIB, Grade 2, 1/17 nodes, ER+/PR+, HER2-
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Aug 8, 2011 07:04PM Member_of_the_Club wrote:

Hi.  Just want to say I think this thread was moved from the complimentary section, no?  I don't usually post about mainstream treatments in the alt section, so don't flame me.

Dx 9/30/2004, IDC, 3cm, Stage IIB, Grade 2, 1/17 nodes, ER+/PR+, HER2-
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Aug 9, 2011 08:38AM Member_of_the_Club wrote:

Yes, there is a difference between absolute and relative benefit.  The more advanced your cancer, the more advanced your risk, the greater your benefit from any treatment.  The point is that tamoxifen saves lives.  Will it save yours?  Well, if you have DCIS or a very early stage bc, probably not.  Maybe.  But unlikely.  You are going to survive anyway.  If you were node positive as I was, teh cahcnes that it will save your life is much higher.

Dx 9/30/2004, IDC, 3cm, Stage IIB, Grade 2, 1/17 nodes, ER+/PR+, HER2-
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Aug 9, 2011 08:47AM - edited Aug 18, 2012 09:03AM by del4

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Aug 9, 2011 09:24AM mollyann wrote:

Susan,

Thank you for the article on Tamoxifen. Those are the exact figures posted by the manufacturer of Tamoxifen in terms of absolute and relative risk. I could find the Tamoxifen manufacturer's website and product results if anyone is interested.

MOC, I don't see any references for your theory.

Look it up. Ask questions. Question authority. Respect other's choices.

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