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Topic: Alternative Treatment

Forum: Alternative Medicine —

This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.

Posted on: Aug 8, 2011 09:32AM

dougbrimor wrote:

Has anyone used alternative treatments such as Lorriane Day, Chris Beat Cancer, The Hallelujah Diet and skipped the cookie cutter 6 weeks of radiation and five years of Tamoifen?  I am so confused , even the 2011 cancer book that the radaition department gave me in my red folder states that radiation can cause a second cancer, that they are working on improving these satatics.  I read the whole book cover to cover and was just blown away by what they are admitting of these chemicals.  Anyway, would like to know if anyone else is swinging on this bridge?  Thanks

Dx 7/18/2011, <1cm, Stage I, ER+/PR+, HER2-
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Sep 26, 2012 10:30PM purple32 wrote:

tillycat

Looks like you had no choice but to have chemo!
Sending good thoughts your way!

((HUGS)))

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 4/30/2012 Lumpectomy: Left
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Sep 26, 2012 10:40PM graced wrote:

Tillycat, sending healing energy your way from New Jersey!

Dx 5/1/2012, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/22/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 7/8/2012 Breast
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Sep 27, 2012 02:01AM Momine wrote:

Tilly, I am so sorry. Hope you feel better soon.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
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Sep 27, 2012 07:36AM HLB wrote:

Sorry Tilly, I hope you are up and about very soon! Someone posted a big long informative post about something called Artemix. I forget which thread but if u search for that word and I think the posters name was rosetapper. This sounds like a really promising alt treatment. The poater is working with a researcher. I'm going to see if I can find it.

Dx 10/2004, IDC, 1cm, Stage IIA, Grade 2, 2/11 nodes, ER+/PR+, HER2- Surgery 10/29/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 11/29/2004 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/1/2005 AC + T (Taxol) Surgery 9/14/2005 Reconstruction (left); Reconstruction (right) Hormonal Therapy 7/22/2012 Femara (letrozole) Dx 7/23/2012, IDC, Stage IV Hormonal Therapy 3/31/2015 Aromasin (exemestane)
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Sep 27, 2012 07:41AM HLB wrote:

Found it! Now if I can just copy paste from phone:

ep 25, 2012 02:34 PM Rosetapper wrote:

Yes, there are several VERY HOPEFUL holistic approaches that may help your mother.  I currently have metastatic breast cancer of the lymphatic system.  My alopathic options are nonexistent at this time because I've either already had all of the available chemotherapies or am unable to have them due to bad reactions.  There have been very successful clinical trials throughout the world (including the University of Washington) with regard to Artemisinin.  Artemisinin is derived from the Artemesia plant, and has three derivatives that have proven helpful in fighting ALL cancers successfully:  Artemisinin, Artesunate, and Artemether.  The clinical trials have shown that the cancer in people who take this supplement either stops spreading, is reduced, or goes into remission.  That's right--remission!!  When my cancer metastasized to my lymphatic system, I felt extremely ill, and I immediately contacted one of the lead researchers at the University of Washington, who directed me to purchase the pharmaceutical grade product that was used in clinical trials in East India, and he also provided me with the protocol (which is important, because you have to follow a low-iron diet and take the product 3-4 hours after eating).  Artemisinin works in a unique way:  It is attracted to cells that contain an abnormally large amount of iron (these are cancer cells), it enters those cells, and then a peroxide action occurs--the cells explode, killing them instantly.  As you can imagine, MANY cancer cells are killed with every dose of Artemisinin.  It also crosses the blood-brain barrier to kill cancer cells in the brain, and it is capable of killing cancer cells in the lungs and bones.  If you do a keyword search and read about the studies done on it, you'll see that it has been determined to be far more effective than any chemo currently on the market, without side effects.  It is also anti-estrogenic and anti-progesterone.

Nine days after I started the protocol provided by the researcher from the University of Washington, all of my symptoms disappeared.  I've been in good health and symptom-free since then (five months), and my oncologist is both astounded and pleased with my progress.  Of course, some of my lymph nodes are still somewhat enlarged, but my goal is remission....so I've stepped up the amount that I take (which is closer to what was used in the studies in Heidelberg).  I'm currently taking Artemix (which contains all three dervatives) plus three capsules of Artemisinin from Wellcare Pharmaceutical Company, P. O. Box 2858, Palos Verdes, CA 90274 (www.hepalin.com/artemix.http).  Studies also show that Artemisinin can be 35% more effective if taken with four capsules of calcium magnesium butyrate (www.jigsawhealth.com/supplemen...) at the same time.  I only recently purchased this product (which tastes and smells absolutely horrid), and I plan to add it to the Artemix and Artemisinin that I already take.  Because absorption of Artemisinin can drop off, your mother might consider taking it nightly for 6-8 weeks and then stop taking it for three days in order to build up her absorption and then resume taking it for the following four nights.  She can continue with this regimen of 3 off/4 on thereafter and should have good results.

Also, there is a product called AngioBlock, which is simply Bindweed, the most common weed found in America.  It works similarly to Faslodex but without the bad side effects, such as diarrhea.  It keeps cancer tumors from establishing blood vessel networks so that they eventually starve from lack of nutrients and die.  I've been taking it twice a day for eight weeks, and I think it's probably doing "something" because all of the abnormal blood vessels in my skin (matting due to failed schlerotherapy as well as hemangioma birthmarks) have disappeared completely.  Again, my oncologist is amazed and is planning to share this information with other doctors, who may wish to know of a potential new way to treat cavernous hemangiomas in children.

Lastly, there is Poly-MVA, a metallo-vitamin that boosts the immune system so that it can fight off cancer.  It's VERY expensive ($900 per month initially for Stage IV cancer), and I'm about to begin taking it.  Again, remission is my goal.  Of course, I can't afford $900 per month, but my brother recently received a huge bonus and is willing to spend part of it to help me fight my cancer....and he has offered to buy this treatment for six months to see if it helps me.  

I suppose I should also mention that I recently attended a breast cancer conference in Sacramento where a doctoral student presented the results of her research into "unexpected remissions."  I won't go into everything she presented; however, one of the attendees I met told me that her breast cancer metastasized to her lymphatic system and bones back in 1988....and all she did was meditate/visualize two hours a day and follow a macrobiotic diet with lots of juicing.  She said that the cancer simply "went away."  The doctor student noted that both meditation/visualization and juicing with a diet high in fruits and vegetables were used by ALL persons she interviewed who had gone into remission.  Just FYI...

I hope that some of these suggestions help.  Please, though, order some of the Artemix and Artemisinin right away--most people see improvements after 7-14 days.  If you have questions about the protocol, Dr. Narendra Singh of the University of Washington is very helpful.  He can be reached at narendra@u.washington.edu.  Good luck!

Dx 10/2004, IDC, 1cm, Stage IIA, Grade 2, 2/11 nodes, ER+/PR+, HER2- Surgery 10/29/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 11/29/2004 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/1/2005 AC + T (Taxol) Surgery 9/14/2005 Reconstruction (left); Reconstruction (right) Hormonal Therapy 7/22/2012 Femara (letrozole) Dx 7/23/2012, IDC, Stage IV Hormonal Therapy 3/31/2015 Aromasin (exemestane)
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Sep 27, 2012 08:23AM NattyOnFrostyLake wrote:

Tillycat!  I'm glad you're getting the embolism taken care of. And as the mods mentioned, you have internet access :) so you are not cut off from the world.

Do they just want to watch you until you're back to normal?

Stay cosy and let us know how you are doing. I'm sending you a cup of cyber tea. Smile

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Sep 27, 2012 08:31AM - edited Sep 27, 2012 08:42AM by NattyOnFrostyLake

HLB,

Thank you for the information from rosetapper on Artemisinin. I've been following Dr. Lai's work at the University of Washington for a few years. This is a good reminder about it.  Dr. Lai's page at the University has changed over the years as he's become more well-known. I see Dr. Singh is taking emails. Great news!

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Sep 27, 2012 08:41AM exbrnxgrl wrote:

Natty,
We've all been so good, don't change the direction...People do think, they just make different decisions. HLB/rosetapper's info was great. Let's leave it at that.
C

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 27, 2012 08:46AM - edited Sep 27, 2012 08:54AM by NattyOnFrostyLake

No actually, many people don't think. They are told it's not their job to think or research independently and that thinking should be left to the point of service people.

They are scolded for thinking for themselves.

Let's not sweep that fact under the rug.

[for some reason, this message kept repeating. Mods, would you please delete the message errors below?]

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Sep 27, 2012 08:48AM - edited Sep 27, 2012 08:52AM by NattyOnFrostyLake

message error

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Sep 27, 2012 08:48AM - edited Sep 27, 2012 08:51AM by NattyOnFrostyLake

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Sep 27, 2012 08:49AM - edited Sep 27, 2012 08:50AM by NattyOnFrostyLake

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Sep 27, 2012 08:54AM exbrnxgrl wrote:

While it may be true of some, it is not true for all and just fans the flames that create the oppositional posts that cause this and similar threads to degenerate. I just don't want to go there again.
C.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 27, 2012 08:57AM NattyOnFrostyLake wrote:

Actually it was you that fanned the flames by jumping in. I suggest moving on.

See y'all later.

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Sep 27, 2012 09:03AM exbrnxgrl wrote:

I made no sweeping judgement statements. I simply tried to point out that painting people with a broad brush is not fair .But yes, I will be moving on. I was sincerely interested in information, not judgemental statements. I hope to find a source of alt info without the judgement.
C

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 27, 2012 10:01AM Ang7 wrote:

Please don't "move on" exbrnxgrl~

I value your posts and ideas.

Very pleased Penguin Cold Cap user Dx 5/25/2009, IDC, 2cm, Stage IIA, Grade 2, 1/4 nodes, ER-/PR-, HER2+
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Sep 27, 2012 10:30AM abigail48 wrote:

I think it woulrd be good phsycology to think of it as the cancer not my cancer, if you own something that probably means you don't want to lose it.

I got tnhis from the supermarket:  on the package of steak cut portobellos, "a good source of selenium"  I thought selenium was in the soil & produce grown from that soil had the element, but not sure....that must be why mushrooma sre reccommended though

gary sprays colloidal silver around him when he travels by air.  someodne alsways asks him what he's doing.  he never gets sick from the terrible air circulating in the cabin. 

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Sep 27, 2012 10:31AM - edited Sep 27, 2012 11:58AM by abigail48

This Post was deleted by abigail48.
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Sep 27, 2012 10:31AM - edited Sep 27, 2012 11:58AM by abigail48

This Post was deleted by abigail48.
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Sep 27, 2012 11:57AM abigail48 wrote:

moderators:  that post was repeated & repeated:  please delete.  recently when I've attrmpted to post the notice comes on that I've posted in too rapid succession.  this is because nothing happens the first time I try to submit

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Sep 27, 2012 03:07PM exbrnxgrl wrote:

Ang7,
Thanks. Would love to learn more but not with sweeping statements of judgement or editorials. I'll still be on lots of other threads!
Caryn

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 27, 2012 03:16PM - edited Sep 27, 2012 03:22PM by Bluebird-DE

You are so welcome, I enjoy talking about the health possibilities we gain when we use what are known as traditional, folk medicines and alternatives.  They used to say I was born w a medicine bag in my hand, later made mud medcine instead of mud pies LOL.

Grace - I once used cinnamon oil w/o carrier, for pms, it worked really well, but that was one HOT oil, never did it again.  I use jojoba mostly for carrier.  Appreciate the info.  Must get that ordered.  And thanks for all the water purification info.  Not only do we absorb the chlorine and metals, etc. But also from our shampoo and personal care, so we need to use what does not have questionable ingredients.  Cancer prevention, not always, but every little bit of change helps. 

Tilly - darn it, and are you out yet? Didn't get to page 59 yet.

HLD great info - I forgot about the artemisinum, I had a bottle of that and when I ended up w the cancer challenge, I had about 12 left, so took them, should order more someday.  I do kinesiology tests to find out when I need it.  

Caryn? Editorials?  How else would the info be shared without the words and much needed details?  I only say that sometimes it is better to sit and listen when one wants to learn, as I do if visiting the chemo and radiation forums.

Will see you all later - yesterday D I S H decided to do maintenance and my work was waylaid for 8 hrs, still catching up.

LOVEEssa 

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Sep 27, 2012 04:26PM abigail48 wrote:

artisisinin?? sp??I think is wormwood.  that ex pat russion defected to maine for awhile then returned when the political climate changed there.  he'd been years in the gulag & when got out had a bad cancer he cured completely with wormwood.  I intend to look into it, the herb itself probably.  it's a witches herb I heard, will do more work reading about it, havn't thought of it for years, since shlohetzin or whatever his name was

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Sep 27, 2012 04:33PM 1Athena1 wrote:

Tillycat, how are you doing?

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
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Sep 27, 2012 04:35PM Tillycat wrote:

I am still in hospital (what would I have done before wifi? - probably tried even harder to make my escape, although on third floor so not likely to jump just yet!)
I have been loaded up with pain relief, 100mmg fentanyl patches + declofenac 3 x per day + 60 mg oromorph when I need it (up to every hour if ness) I had so much yesterday I kept seeing my cat (Colin) sitting on my bed looking at me - although I miss him it was a bit worrying to have him there with me :-) I haven't had as much morphine today and he hasn't visited either. I may be able to go home on Sat, depends on how I feel and whether Colin has come to visit again!!
Thank you for the info on artemisinin, I am sure it has come up before so definitely worth trying
Love tillycat xx

Live and love each moment. Stage iv since 2009, liver, bone, lung, lymph and brain mets Dx IDC, Stage IV, Grade 3, 0/16 nodes, ER+/PR+, HER2-
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Sep 27, 2012 05:13PM - edited Sep 27, 2012 05:52PM by 1Athena1

Oh, man, Tillycat, sorry about the pain, although I am glad your kitty kept you company.:-) Here's hoping you can go home on Saturday!

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
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Sep 27, 2012 05:18PM abigail48 wrote:

there's a site about non-alcoholic absenth, the drink from wormwood-artimisinin, receipe for wormwood lemonade

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Sep 27, 2012 06:32PM exbrnxgrl wrote:

Essa,
I am surely a fool for letting myself continue to be sucked into this but statements like the one below are painting all with a broad brush and clearly editorializing, not providing alt tx info.

"No actually, many people don't think. They are told it's not their job to think or research independently and that thinking should be left to the point of service people.

They are scolded for thinking for themselves.

Let's not sweep that fact under the rug."

The post to which I originally responded has been edited and the statement that caused me to comment has been removed. But, as I said, I am the fool at this point so I really do need to follow Natty's advice and move on.
Take care, Caryn

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 29, 2012 05:24PM Bluebird-DE wrote:

But let's always turn statements to the topic of alternative treatment and we find that even there is the same issue. There is so much to share even when we are not to our eyebrows in the alt tx for now. 

The ability to think for ourselves.  Being refused tx or scolded is so real, such a stressor.  Scenario.  People finally find a doctor and are then pretty much expected to do their protocol.  Even alternative types.  I am not much ofa afollower, always was the one voted most likely to march to my own drum.  Proving that right.  I found a few medical doctors who were integrative and alternative but realized it did not feel right to follow their decisions for my life, literally my life.  I take what I can and leave the rest, if the doctor will allow.  But the oncs and such will not, they want the full-fledged conventional or nothing with me.  Fortunately, I pretty much have a team in place from all corners of the region and a few from across the country who are giving me reign to make my decisions and respecting that while helping the best they are able.  I am so grateful.  But it took me from July 2011 to a few weeks ago.  I literally read and searched for all these long long months, terrified quite often.  But I had to think for myself.  That's just me.

You're fine Caryn, there is a lot to learn, it's in all the pages, back to August 2011.  Also other threads here.  So so so much.  I know you are trying to find your way, just ask questions. I don't get back too often since started work again (thank Creator and Mother Nature for the raspberry seed) so PMing me is quickest to get my attention for anyone.  I might miss ? on threads. 

LOVEEssa

LOVEEssa

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Sep 29, 2012 06:15PM 1Athena1 wrote:

Tillycat, are you home yet?

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-

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